If you are impacted by inherited #ALS or #FTD , you won’t want to miss this meeting co-sponsored by EndTheLegacy, ALS Hope Foundation and Les Turner ALS Foundation. Info below.

London-based gene therapy biotech AviadoBio dosed its 1st patient in a first-in-human Phase 1/2 clinical trial of AVB-101 for Frontotemporal Dementia (FTD) w/ progranulin (GRN) gene mutations ASPIRE-FTD trial is enrolling patients at Europe & US sites. aviadobio.com/first-patient-…

Thoughtful commentary on how to better select cohorts in #ALS clinical trial design, including ⁦EverythingALS⁩’ new vocal biomarker. Listen Up: Emerging Vocal Biomarker Could Aid ALS Drug Development | BioSpace biospace.com/article/emergi…

Last night’s ⁦Les Turner ALS Foundation’ Hope Through Caring Gala⁩ celebrated the advances in #ALS and honored the transformational accomplishments of ⁦Merit cudkowicz⁩. It was wonderful to see ⁦Kylan Morris⁩, Janie Gobeli, Tina Cascio and so many other friends. #EndALS

Generation of induced pluripotent stem cells (CSSi017-A)(12862) from an ALS patient carrying a repeat expansion in the C9orf72 gene sciencedirect.com/science/articl…

So pleased to see the Regimen F HEALEY #ALS platform trial fully enrolled, sponsored by Calico and AbbVie, and co-led by Dr. Senda Ajroud-Driss of Northwestern Feinberg School of Medicine. Huge thanks to the dedicated participants in this trial arm.

Looking forward to this phase 1 trial in #ALS from ProJenX moving ahead.

Northwestern Medicine would like to wish everyone who celebrates a lot of joy, love, and blessings to you and your loved ones this Eid! May this special day bring abundant happiness and peace into your lives. Eid Mubarak! #Eid Mubarak #Eid AlFitr2024 #Eid mubarak2024 #Eid #NMBetter

#HealeyALSPlatformTrial 2morow 4/11 @ 5pmEST: Join us 4 updates by Merit cudkowicz, who'll be joined by #PlatformTrial Reg E Co-Lead Shafeeq Ladha, MD & several biostat's, to provide community update on Reg E's investigation of Trehalose by Seelos Therapeutics. Reg: bit.ly/3KKsme2

#Caregiving is exhausting, physically and emotionally. You must replenish your strength for your own wellbeing and that of the person you support. #Selfcare is a necessity, not a luxury.

(image: All On The Board) #Alzheimers #dementia #mentalhealth #quote

This is exciting news for all #neurodegerative diseases. An @arpa_H program has been on the #ALS community’s wish list for a long time as we look to improve patient outcomes.

Upshot: the ⁦BrainStorm 3b⁩ trial will expand # of sites later this year and enroll people earlier in their disease. You can listen to a replay of this morning’s call - link in article. BrainStorm Cell Announces Agreement with FDA on a SPA. biospace.com/article/releas…

Without taking anything away from women’s #NCAABasketball champs So Carolina, who played an amazing tournament, I’ve been very impressed with the grace and gamesmanship shown by Caitlin Clark. Sometimes champions don’t walk off the court with the trophy.

Happy #eclipse day everyone! 🌞