June is #CDKL5Awareness month and @cdkl5_ifcr is taking over this channel to shout out about #CDKL5 Deficiency Disorder all day long! Want to learn more about this rare disease? Check out the information available at CDKL5.com.

#CDKL5 Deficiency Disorder is a rare, genetic disorder with a broad range of clinical symptoms and severity. Hallmarks are early-onset, intractable epilepsy and neurodevelopmental disability impacting cognitive, motor, speech, and visual function. #CDKL5Awareness @cdkl5_ifcr

Did you know... #CDKL5 Deficiency Disorder is a developmental and epileptic encephalopathy characterized by severe early-onset intractable epilepsy with seizures beginning in the first weeks and months of life. @cdkl5_ifcr

June is #CDKL5Awareness month and @cdkl5_ifcr has BIG GOALS to Move CDKL5 Forward! Visit CDKL5.com/MOVE and watch the community move miles and raise funds for #CDKL5 research!

See our progress and join in! cdkl5.com/move #CDKL5

Does your child have a diagnosis of #CDKL5 Deficiency Disorder? Be counted with @cdkl5_ifcr as part of our community and join "Connect CDKL5." When we band together, we are best able to advocate for our loved ones.

Did you know... Cortical Visual Impairment is a brain-based visual impairment and is common in #CDKL5 Deficiency Disorder. People with CVI struggle with visual attention and visual recognition resulting in a lack of access for understanding the world around them. @cdkl5_ifcr

Many thanks to Rare Revolution Magazine for letting us shout out about #CDKL5 Deficiency Disorder on their channels! Please follow @cdkl5_ifcr as we work to move CDKL5 forward towards a healthier future at CDKL5.com.

Today is World CDKL5 Day 🌍💜 #CDKL5 deficiency disorder is a rare genetic 🧬 condition that includes early-onset #epilepsy & neurodevelopmental impairment that affects cognitive, motor, speech and visual function. Learn more at CDKL5.com 💜 #CDKL5Awareness

Today, we raise awareness for CDKL5 Deficiency Disorder, a rare genetic condition causing developmental and epileptic encephalopathy and early-onset seizures. #CDKL5 #CDKL5Awareness Thank you to the CDKL5 - IFCR for hosting us at your conference last week!

Love to see it! #CDKL5Forward

🚨 Share your insights by Aug 31! #CDKL5 Survey Opportunity You are invited to participate in a new research study that will help to understand the changes in functional abilities that are meaningful to a child's function and quality of life. redcap.telethonkids.org.au/redcap/surveys…