Cardiomyopathy UK(@Cardiomyopathy) 's Twitter Profileg
Cardiomyopathy UK

@Cardiomyopathy

UK charity supporting families affected by heart muscle disease.

For free specialist advice, freephone 0800 018 1024 or email [email protected].

ID:27851998

linkhttp://cardiomyopathy.org calendar_today31-03-2009 11:25:12

8,9K Tweets

5,4K Followers

482 Following

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🔬 Researchers identify factors that affect the risk of developing dilated cardiomyopathy (DCM) in people with a genetic change that can cause the condition but who don't yet have symptoms.

📰 medicalxpress.com/news/2024-04-s…

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Researchers at Great Ormand Street Hospital are developing a simple cheek swab to monitor arrhythmogenic cardiomyopathy (ACM) in children.
independent.co.uk/news/uk/patien…

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The latest issue of MyLife magazine is out now and available to read on our website. learn more about our five-year strategy, the latest updates in cardiomyopathy research and more.💻

Follow the link below to read the latest issue:

📲 cardiomyopathy.org/mylife

The latest issue of MyLife magazine is out now and available to read on our website. learn more about our five-year strategy, the latest updates in cardiomyopathy research and more.💻 Follow the link below to read the latest issue: 📲 cardiomyopathy.org/mylife
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Join us & Cardiomyopathy UK in building a survey on living with cardiomyopathy. If you are UK based, over 16 and have been affected by , share your insights in an online interview. Help shape better services & receive a voucher!

Learn more: bit.ly/CMUKsurvey24

Join us & @Cardiomyopathy in building a survey on living with cardiomyopathy. If you are UK based, over 16 and have been affected by #cardiomyopathy, share your insights in an online interview. Help shape better services & receive a voucher! Learn more: bit.ly/CMUKsurvey24
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📢 Mavacamten has been approved in Scotland for the treatment of obstructive HCM 📢

Mavacamten, the first ever drug specifically for a type of cardiomyopathy, has been approved for use in Scotland.

Learn more:

📲 cardiomyopathy.org/news-blogs/lat…

📢 Mavacamten has been approved in Scotland for the treatment of obstructive HCM 📢 Mavacamten, the first ever drug specifically for a type of cardiomyopathy, has been approved for use in Scotland. Learn more: 📲 cardiomyopathy.org/news-blogs/lat…
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❤ April Support Group Meetings❤️

For more information ⬇️

🔎 cardiomyopathy.org/support-groups
💌 [email protected]

(+ Coffee & Catch Up ☕ every Friday at 2pm!)

❤ April Support Group Meetings❤️ For more information ⬇️ 🔎 cardiomyopathy.org/support-groups 💌 services@cardiomyopathy.org (+ Coffee & Catch Up ☕ every Friday at 2pm!) #cardiomyopathy
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Living with PPCM (peripartum cardiomyopathy) in South East Wales? ❤ 🏴󠁧󠁢󠁷󠁬󠁳󠁿

We now have a South East Wales PPCM Support Group, which will meet 6 times a year, both online and in-person (Newport).

For more info, head to our website ⬇️ cardiomyopathy.org/PPCM-Wales

Living with PPCM (peripartum cardiomyopathy) in South East Wales? ❤ 🏴󠁧󠁢󠁷󠁬󠁳󠁿 We now have a South East Wales PPCM Support Group, which will meet 6 times a year, both online and in-person (Newport). For more info, head to our website ⬇️ cardiomyopathy.org/PPCM-Wales #cardiomyopathy
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📌Based in Hertfordshire/West Essex? 📌

We now have a & Support Group, which will meet 6 times a year, both online and in-person (Bishop's Stortford).

For more info, head to ⬇️
cardiomyopathy.org/herts-west-ess…

❤️

📌Based in Hertfordshire/West Essex? 📌 We now have a #Hertfordshire & #WestEssex Support Group, which will meet 6 times a year, both online and in-person (Bishop's Stortford). For more info, head to ⬇️ cardiomyopathy.org/herts-west-ess… #cardiomyopathy ❤️
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Thriving With Your Child’s

A 4-week online programme for parents & carers of young people with cardiomyopathy.

Led by a trained counsellor w/ personal experience of raising a child with cardiomyopathy.

To find out more, email: [email protected]

Thriving With Your Child’s #Cardiomyopathy A 4-week online programme for parents & carers of young people with cardiomyopathy. Led by a trained counsellor w/ personal experience of raising a child with cardiomyopathy. To find out more, email: cameron.doye@cardiomyopathy.org
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Register for our new webinar ‘Life insurance & pension advice for those affected by cardiomyopathy’ hosted by our Cardiomyopathy Specialist Nurse Jayne and Bill Bartholemew Dip PFS, a wealth management partner from True Potential Wealth Management.

📲 buff.ly/3TwRlab

Register for our new webinar ‘Life insurance & pension advice for those affected by cardiomyopathy’ hosted by our Cardiomyopathy Specialist Nurse Jayne and Bill Bartholemew Dip PFS, a wealth management partner from True Potential Wealth Management. 📲 buff.ly/3TwRlab
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Yesterday marked the start of .

Our Cardiomyopathy UK UK Specialist Nurse advice for fasting can be found on our website here:

cardiomyopathy.org/news-blogs/ram…

Yesterday marked the start of #Ramadan. Our @Cardiomyopathy UK Specialist Nurse advice for fasting can be found on our website here: cardiomyopathy.org/news-blogs/ram… #cardiomyopathy
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📌Based in Oxfordshire/the surrounding counties?📌

We now have an Support Group, which will meet 6 times a year, both online and in-person (Witney).

The group will be led by trained volunteer Laura, who is excited to meet you! ❤️

cardiomyopathy.org/oxfordshire

📌Based in Oxfordshire/the surrounding counties?📌 We now have an #Oxfordshire Support Group, which will meet 6 times a year, both online and in-person (Witney). The group will be led by trained volunteer Laura, who is excited to meet you! ❤️ cardiomyopathy.org/oxfordshire
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Cardiomyopathy UK UK are looking for volunteers to lead Regional Support Groups across the UK 🇬🇧💞

If you're sociable, empathetic, and well-organised, please get in touch to find out more ⬇️

📩[email protected]
🌐 cardiomyopathy.org/volunteer-roles

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Whatever your age, however impacts you, our Specialist Nurse Helpline is there for you.

Reach out by phone/email/live chat, Monday to Friday, 8:30am - 4:30pm 📞📩💻

Questions about cardiomyopathy? Our Cardiomyopathy UK UK specialist nurses are here to help! ❤️

Whatever your age, however #cardiomyopathy impacts you, our Specialist Nurse Helpline is there for you. Reach out by phone/email/live chat, Monday to Friday, 8:30am - 4:30pm 📞📩💻 Questions about cardiomyopathy? Our @Cardiomyopathy UK specialist nurses are here to help! ❤️
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