HopOnACure (@hoponacure) 's Twitter Profile
HopOnACure

@hoponacure

Help us Hop On A Cure for ALS by donating at HopOnACure.org

ID: 1514614246763479055

linkhttps://hoponacure.komi.io calendar_today14-04-2022 14:44:19

324 Tweet

625 Followers

69 Following

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

100% FATAL #ALS IS NOT RARE! You or your loved one could be next Each day is a battle against the relentless progression of the disease as we are denied effective #Nurown due to #PeterMarks FDA Biologics Dr. Robert M. Califf INFLEXIBILITY. While cancer patients often have access to

HopOnACure (@hoponacure) 's Twitter Profile Photo

Calling all PALS and caregivers: Help us get to 1,500 ALS Clinic Advisor surveys this week. A record 31 surveys were recorded on Monday, let's keep it going! Take the survey, tell a friend: ffm.link/als-clinic-sur…

Calling all PALS and caregivers: Help us get to 1,500 <a href="/ALSClinicSurvey/">ALS Clinic Advisor</a> surveys this week. A record 31 surveys were recorded on Monday, let's keep it going! 

Take the survey, tell a friend: ffm.link/als-clinic-sur…
ALS Clinic Advisor (@alsclinicsurvey) 's Twitter Profile Photo

Thanks so much for the shout out, HopOnACure ! It's so important that patients, diagnosing doctors, case managers, etc. have a known place to go for authoritative clinic information.

HopOnACure (@hoponacure) 's Twitter Profile Photo

Yelp for ALS? Welcome to ALS Clinic Advisor! PALS and CALS please share your first-hand experience with your ALS Clinic to help others understand what clinics offer as they look for care. It takes 8-10 mins & is eye-gaze friendly. ffm.link/als-clinic-sur…

Yelp for ALS? Welcome to <a href="/ALSClinicSurvey/">ALS Clinic Advisor</a>! PALS and CALS please share your first-hand experience with your ALS Clinic to help others understand what clinics offer as they look for care. It takes 8-10 mins &amp; is eye-gaze friendly.

ffm.link/als-clinic-sur…
HopOnACure (@hoponacure) 's Twitter Profile Photo

It’s the last day of ALS Clinic Advisor Survey Week, and we’re almost halfway to our goal! We need 751 surveys to reach the goal of 1,500. PALS and CALS, your first-hand experience is invaluable as people look for the right ALS care. ffm.link/als-clinic-sur…

It’s the last day of <a href="/ALSClinicSurvey/">ALS Clinic Advisor</a> Survey Week, and we’re almost halfway to our goal! We need 751 surveys to reach the goal of 1,500. PALS and CALS, your first-hand experience is invaluable as people look for the right ALS care. ffm.link/als-clinic-sur…
I AM ALS (@iamalsorg) 's Twitter Profile Photo

Introducing: The Cures Collective! This amazing collaborative will focus on filling gaps, strengthening collective power, and increasing shared effectiveness to unite us all in pursuit of a future without neurodegenerative disease. Learn more: iamals.org/cures-collecti…

Introducing: The Cures Collective! This amazing collaborative will focus on filling gaps, strengthening collective power, and increasing shared effectiveness to unite us all in pursuit of a future without neurodegenerative disease. Learn more: iamals.org/cures-collecti…
HopOnACure (@hoponacure) 's Twitter Profile Photo

Hop On A Cure is thrilled to welcome Rachel Reid to our board. With her knowledge and passion for helping others, Rachel is an exciting addition to our team. Visit hoponacure.org/our-team to learn more about our newest board member!

Hop On A Cure is thrilled to welcome Rachel Reid to our board. With her knowledge and passion for helping others, Rachel is an exciting addition to our team. Visit hoponacure.org/our-team to learn more about our newest board member!
HopOnACure (@hoponacure) 's Twitter Profile Photo

Announcing The Accelerate a Miracle Project Award (or AMP Award). Hop On A Cure is excited to honor the first AMP Award recipient, Dr. Richard S. Bedlack, at this year’s Harmony for Hope gala! #cureALS #believeinacure💙

Announcing The Accelerate a Miracle Project Award (or AMP Award).

Hop On A Cure is excited to honor the first AMP Award recipient, Dr. Richard S. Bedlack, at this year’s Harmony for Hope gala!

#cureALS #believeinacure💙
HopOnACure (@hoponacure) 's Twitter Profile Photo

Hop On A Cure is excited to announce our online fundraising portal! With Team Hop, grassroots fundraising is now easier than ever. Learn more at hoponacure.org/fundraising #kickALS #believeinacure💙 #ALSresearchaccelerator

Hop On A Cure is excited to announce our online fundraising portal! With Team Hop, grassroots fundraising is now easier than ever. 

Learn more at hoponacure.org/fundraising

#kickALS #believeinacure💙 #ALSresearchaccelerator
HopOnACure (@hoponacure) 's Twitter Profile Photo

We need YOUR help in the fight for a cure for ALS! By hosting a grassroots fundraiser for ALS research, you can make a true difference. Learn more at hoponacure.org/fundraising #cureALS #ALSresearchaccelerator #believeinacure💙

We need YOUR help in the fight for a cure for ALS! By hosting a grassroots fundraiser for ALS research, you can make a true difference.

Learn more at hoponacure.org/fundraising 

#cureALS #ALSresearchaccelerator #believeinacure💙
HopOnACure (@hoponacure) 's Twitter Profile Photo

Setting up an online fundraiser for ALS research is simple with Team Hop. In just a few quick steps, you’ll be on your way to making a real difference for PALS! Learn more at hoponacure.org/fundraising #cureALS #believeinacure💙

Setting up an online fundraiser for ALS research is simple with Team Hop. In just a few quick steps, you’ll be on your way to making a real difference for PALS!

Learn more at hoponacure.org/fundraising 

#cureALS #believeinacure💙
HopOnACure (@hoponacure) 's Twitter Profile Photo

Hop On A Cure is excited to spotlight Joe Hanna, who will be sharing his talents at Harmony for Hope. The owner & Executive Chef of Hanna Brothers's journey into the culinary world was ignited by his deep-rooted passion for sharing exceptional food experiences with others.

Hop On A Cure is excited to spotlight Joe Hanna, who will be sharing his talents at Harmony for Hope. The owner &amp; Executive Chef of <a href="/HannaBrothers_/">Hanna Brothers</a>'s journey into the culinary world was ignited by his deep-rooted passion for sharing exceptional food experiences with others.
HopOnACure (@hoponacure) 's Twitter Profile Photo

We are excited to spotlight Andrea Montobbio who will be sharing his talents at Harmony for Hope. The owner and Executive Chef of ENZO Steakhouse & Bar, Chef Montobbio grew up in Northern Italy & is establishing an institution embodying the artistry & passion of independent chefs

We are excited to spotlight Andrea Montobbio who will be sharing his talents at Harmony for Hope. The owner and Executive Chef of ENZO Steakhouse &amp; Bar, Chef Montobbio grew up in Northern Italy &amp; is establishing an institution embodying the artistry &amp; passion of independent chefs
HopOnACure (@hoponacure) 's Twitter Profile Photo

We are excited to spotlight Megan Brent, who will be sharing her talents at Harmony for Hope. A native of North GA, Chef Brent's love of the Local Craft Beer Industry led her to Hop City Craft Beer and Wine, where she is the Culinary Director of Boxcar Boxcar at Hop City & Barleygarden Kitchen and Craft Bar.

We are excited to spotlight Megan Brent, who will be sharing her talents at Harmony for Hope. A native of North GA, Chef Brent's love of the Local Craft Beer Industry led her to Hop City Craft Beer and Wine, where she is the Culinary Director of Boxcar <a href="/boxcaratl/">Boxcar at Hop City</a> &amp; <a href="/barleygarden/">Barleygarden Kitchen and Craft Bar</a>.
I’m Dying To Tell You Podcast with Lorri Carey (@lorrispodcast) 's Twitter Profile Photo

Have you heard my latest chat with John Driskell Hopkins (Hop) about life with ALS, the future and how he's doing with touring with Zac Brown Band? Listen in: bit.ly/ListenOnAppleP… or bit.ly/ListenInOnSpot… HopOnACure Zac Brown Band #als #zbb

Have you heard my latest chat with John Driskell Hopkins (Hop) about life with ALS, the future and how he's doing with touring with Zac Brown Band?  Listen in:   bit.ly/ListenOnAppleP… or bit.ly/ListenInOnSpot…
<a href="/HopOnACure/">HopOnACure</a> <a href="/zacbrownband/">Zac Brown Band</a> #als #zbb
HopOnACure (@hoponacure) 's Twitter Profile Photo

Can't attend Harmony for Hope but still want to support Hop On A Cure? Join in our silent auction online and help us raise funds for ALS research wherever you are! qtego.us/qlink/hoponacu… Bidding ends at 8:30 PM Eastern on Saturday, 9/14. Please note shipping charges may apply

Can't attend Harmony for Hope but still want to support Hop On A Cure? Join in our silent auction online and help us raise funds for ALS research wherever you are! 

qtego.us/qlink/hoponacu…

Bidding ends at 8:30 PM Eastern on Saturday, 9/14. Please note shipping charges may apply
HopOnACure (@hoponacure) 's Twitter Profile Photo

Hop On A Cure would like to extend a heartfelt thank you to our Harmony for Hope sponsors. Thank you for helping make a difference in the lives of PALS. With your help, we raised $1.1 MILLION to support ALS research! #kickALS #believeinacure💙

Hop On A Cure would like to extend a heartfelt thank you to our Harmony for Hope sponsors. Thank you for helping make a difference in the lives of PALS. With your help, we raised $1.1 MILLION to support ALS research! 

#kickALS #believeinacure💙