Building on my message last week about my work with Health Canada as a Patient Advisor, the first part of my report to Health Canada focused on exploring patient engagement in general terms which I won’t go into excruciating detail about... (1/8)

What is it that patients and their families want from clinical trials? I'm prepping for a conference discussion about just that, and am wondering how you would answer that question. Let me know in this 1-2min survey by Wed 5Jun 8am AEST bit.ly/WhatPtsWantFro…

What do patients and their families want from clinical trials? I will be exploring this with a panel of trial participants at the #2024ARCS conf next week. But, how would YOU answer this question? Let me know in this quick survey by 12 Jun, 8 am AEST. bit.ly/WhatPtsWantFro…

Here’s what I am up to the next couple of days. Will be tweeting from the AccessCR account if you want to follow along

Humbled to be announced as one the inaugural ⁦ARCS Australia⁩ Fellows, amongst a group of exceptional peers. Thankyou ARCS Board. #2024ARCS

📢Share your feedback on potential resources to support patient partner scientific reading and writing, digital health knowledge, and #patientpartner led research. 👉bit.ly/Patient-Engage… #PatientEngagement #PPI #ConsumerInvolvement

Grateful to be working with these 🌟amazing folks🌟 on #PXP24 - pxphub.org/event/steering…. Hope you can join us virtually in September again (more coming soon) - sign up for the mailing list so you're the first to know! #PatientEngagement #PPI #ConsumerEngagement

ACTA is delighted to announce that abstract submissions are now OPEN for the upcoming ACTA 2024 Clinical Trials and Registries Symposium. Visit the conference website to view the themes and to submit your abstract bit.ly/2024_ACTA #ACTA2024 #abstracts #clinicaltrials

Periodic reminder of how much #PatientPartners reveal/bare/share about themselves and their conditions/experiences for the sake of #Research and in hope of helping others. Please respect this vulnerability, openness, and hope. #PatientEngagement #PPI #ConsumerInvolvement

⏰Deadline this week! We'd love to hear from all members of the research team, especially #PatientPartners about what tools and resources we should generate: 👉bit.ly/Patient-Engage… #PPI #PatientEngagement

A pleasure to be involved in this work

📢 Are you a #PatientPartner in #Research or never been one but want to learn more? #PxP24 is a free, virtual conference for you! PxP is 100% #PatientLed & designed, and all about #PatientEngagement in research! Learn more & register at pxphub.org PxP /1

Can’t wait to be part of #PxP again. Register now, and learn more about this fab initiative through all the tweets in this thread 👇👇👇

Exciting news! ACTA is offering 10 consumer scholarships for this year's Symposium! These cover complimentary registration for Days 1 and 2. Want to apply? Head over to our conference website for all the details. Don't miss out! bit.ly/consumer_schol… #ACTA2024 #consumer

Are you a patient partner in research? Make sure you sign up for it… you will definitely find your tribe! #PxP24

Tweeting today some reflections/insights whilst listening to #pxp24 via the AccessCR account (for as long as I can manage to stay awake).

🤩Wow! 😲 That’s a wrap on #PxP24. A HUGE thank you to our audience for making this year so amazing. You are all awesome! We look forward to connecting again soon. Watch this space for our upcoming October webinar and #PxP25.

Phew - what a few days of excellent learning and sharing amongst patient partners in research and their allies. And thankfully, not to many scary questions in the last "You Can't Ask That" session today. Congrats to all involved in #PxP24 #patientpartnership #research #CCReW

#PxP24 was a joy to be involved in. And if you want to check out some of my learnings, they were tweeted through AccessCR and shared into my online facebook community of "Research Gamechangers". Congrats everyone involved!