Janet Dafoe(@JanetDafoe) 's Twitter Profileg
Janet Dafoe

@JanetDafoe

Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...

ID:2544045019

calendar_today03-06-2014 17:50:13

11,1K Tweets

15,4K Followers

220 Following

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Bottsie Hicks(@BottsieHicks) 's Twitter Profile Photo

Glad that Ron and @Janet are able to go to the IIME Conference in Cambridge next week! Praying for pieces of the puzzle to fall into place as some of the best and brightest researchers brainstorm! Also looking forward to any sneak-peeks Janet can give us! 😉🙏🧩🙏🧩🙏

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davidtuller(@davidtuller1) 's Twitter Profile Photo

Some things I read this week. Jeannette Burmeister's scathing review of 'effort preference;' Australian coverage of kids with Long Covid; The Sick Times' look at new LC definition, and a view from Leonard Jason
virology.ws/2024/06/22/tri…

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davidtuller(@davidtuller1) 's Twitter Profile Photo

I recently interviewed Oonagh Cousins, the world-class rower who had discussed her negative assessment of the Lightning Process with the BBC. I wanted to hear more about her LP experience and find out what she is up to now. virology.ws/2024/06/21/tri…

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Janet Dafoe(@JanetDafoe) 's Twitter Profile Photo

We’re going to the invest in ME conference near London leaving Monday. It’s always so hard to travel and really hard to leave Whitney for that long. Kind of scary but he has good caregivers.🙏🏼

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Janet Dafoe(@JanetDafoe) 's Twitter Profile Photo

How many people have MECFS? New estimate by the CDC but still such an underestimate. Read this fantastic analysis by Hillary Johnson. open.substack.com/pub/hillaryjoh…

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