PRETTY PLEEEEEEEASE REGISTER AND SHARE about the DecodeME the ME/CFS Study

If you have #ME #ME CFS #LongCovid in the UK or know someone who does please show them info on this study & SHARE!!

Proper. Actual. Biomedical. Research into #ME #ME CFS & also #LongCovid AT LAST!!!!

Lets do this!!

23 people followed me and 7 people unfollowed me // automatically checked by fllwrs.com

I'm concerned that the exps of the #MECFS community are being co-opted & erased through mainstream coverage on #longCovid (I believe we should move forward together, I'm not seeing that). This LC article uses an image of #pwME , with no acknowledgement of that, or mention of ME.

“Our results denote an altered and chronically aroused anti-viral profile against latent viruses in ME/CFS.

SARS-CoV-2 infection even in its mild/asymptomatic form is a potent trigger for reactivation of latent herpesviruses (EBV, HHV6) and endogenous retroviruses (HERV-K)”

POLLS on Vaccine Boosters🧵

1/2: mRNA in #pwLC
3: Novavax in #pwLC
4/5: mRNA in #pwME
6: Novavax in #pwME

1. BIVALENT in #LongCovid :
How did the BIVALENT mRNA vax affect you?
Consider:
1) Worsening of current symptoms
2) Onset of new symptoms
3) Other adverse events

Decades of the same knowledge of the same symptoms of the same illness, with countless hypotheses left untested. Decades of the same social and economic stigma, relentless suffering and consequential suicidal thinking.
1992 - 2022 no further forward #ME CFS #LongCovid #ME

1/2 Today (25th Oct) marks Postural Orthostatic Tachycardia Syndrome (PoTS) Awareness Day

According to PoTS UK, 50% of PoTS patients are unable to attend work or school, 27% of patients with M.E. and chronic fatigue syndrome

So the dog not only ate Professor Crawley's missing corrections, but all the correspondence associated with them. Got it! Here's what I heard from The Health Research Authority about University of Bristol's explanation for this mess: facebook.com/david.tuller.1…

People living with #ChronicIllness including #MyalgicEncephalomyelitis and #LongCOVID ....

Have you heard about our #ShakeItUP campaign yet??

It's been running for a year and we still need loads more signatures on our intl petition.

Campaigning for a new reporting system to 1/2

🚨A new study shows that, ' #LongCovid post-viral chronic fatigue and affective symptoms are associated with oxidative damage, lowered antioxidant defenses and inflammation.' nature.com/articles/s4138…

'My great hope is that if theres one good thing that comes out of #LongCovid blighting our 🌍 is that in the process of trying to crack it we will crack #MEcfs too
It's been a travesty the gaslighting dismissal & minimisation But we have an opportunity to do something about it'

So many people & businesses are having their instagram accounts hacked at the moment, some with years of work there, all suddenly lost..
🙁

Huge thanks to Gez Medinger for these words 👇

#MEcfs
#pwME
#MyalgicEncephalomyelitis
#LongCovid
#MedTwitter
#MedEd

ME has been called 'The Disease of a Thousand Names” (David Bell 1991).

There may have been over 60 epidemics last century, some of which resulted in a new name for the illness.

Excerpt from Living Hell Documentary by Larry King 1993.

Another look at the new NICE guideline for ME/CFS

#mecfs #MyalgicEncephalomyelitis #myalgicE RME

thesciencebit.net/2022/10/24/ano…

Complexity and news media are a very poor fit. For everyone with #ME #LongCovid this has been deadly. #ME Kills

David Tuller's work to uphold proper standards in medical research, helps to protect vulnerable people from the consequences of 'dodgy' studies, which might otherwise inflict harmful treatments on patients.
Please give if you can.
#LongCovid #MEcfs #POTS
crowdfund.berkeley.edu/project/33528