We contributed to this report, highlighting inadequate NHS mental health support for people living with muscle wasting conditions.

We back SHCA's call for better care. Need support now? 📞0800 652 6352 (Mon-Thur 10am-2pm).
Browse our support groups: rb.gy/orkrej

Thank you for joining our Wales Information Day! 🙌

Our speakers shared knowledge & experiences which helped our community grow stronger!

There were valuable insights on exercise, fatigue management, & research updates.

What were your takeaways?

#MusclesMatter

We’re at Goodenough College until tomorrow for the 17th UK Neuromuscular Translational Research Conference.

Let's hear what's on the horizon for muscle wasting research!

#NMTRC #MuscleResearch #London #CureTheFuture

🌿Exploring nature shouldn't have limitations!

Martin (diagnosed with LGMD) proves it with his adventures. Read his story: shorturl.at/bcuA0

ICYMI: We've got an accessible garden at The RHS Chelsea Flower Show designed by Ula Maria & funded by @ProjGiveBack

The TCS London Marathon running show kicks off today and we’re delighted to be here! Really looking forward to meeting all of our wonderful runners over the next few days

.NICE is currently consulting on the guidance and we have created a short survey to capture further insight from the Duchenne community about the impact of existing corticosteroid treatments. Take the survey: surveymonkey.com/r/corticostero… - open until Sunday 19 April.

Today is Pompe disease awareness day. John Foxwell, who lives in Wales, shines a light on the importance of education for better diagnosis and the huge strides he's made to raise awareness. Read more: shorturl.at/hmsBL

🎉We're thrilled to announce that we've been awarded part of the Medical Research Charities Early Career Researcher Fund. This will fund seven researchers in the early stages of their career studying muscle wasting and weakening conditions.

Read more:
shorturl.at/wCOWX

West end musical theatre performer Jordan Cunningham is running the London marathon for his father and nephews with Charcot-Marie Tooth (CMT).

Jordan talks about how watching his partner complete the marathon last year convinced him to sign up: shorturl.at/moTW6

Our The RHS Chelsea Flower Show garden designer, Ula, inspired by our communities stories designed a space where one can reconnect with nature.

🌼Read her top tips for making your garden into a space for wellbeing: shorturl.at/nHXY8

Thanks to Project Giving Back.

As a manifesting carrier of Becker muscular dystrophy, Michelle has used her experience of living with a disability to start making gadgets and tools to help the disabled community.

Read more: shorturl.at/anyGM

The Ramadan month ends today. We want to wish all our Muslim followers a safe Eid Mubarak!

Jodie can't wait to cheer on #TeamMDUK at the Kiltwalk in Aberdeen on Sunday 2 June. There's a few spaces left if you would like to join! Jodie Whitham

musculardystrophyuk.org/get-involved/e…

“I really didn’t know much about muscular dystrophy before Miley was born...” Amy, Katie’s best friend.

Best friends Katie Rollo and Amy Stevens are taking on the Kiltwalk Challenge in support of Katie’s daughter, Miley.

Read more: shorturl.at/oprt1

Louise Halling Louise Halling Counselling by video will lead a health professionals webinar on emotional support for our community on Monday 29 April at 4pm.

Sign up here:
tinyurl.com/4pjvkhs5

It's the start of Spring! Join our 6 week countdown to
The RHS Chelsea Flower Show with Project Giving Back

Are you planting up your garden ready for spring and summer? Open it to your local community and change the future of muscle wasting conditions.

shorturl.at/qsZ27

Lauren and Rebecca are both young women who have muscular dystrophy and are full time wheelchair users.

For #WorldHealthDay , they share their experiences of accessing reproductive and sexual healthcare and reflect on prejudices they’ve faced.

rb.gy/mwj9p9

Good luck to @Gabby Logan and the rest of #TeamMDUK running the London Landmarks Half Marathon tomorrow!

Thank you for all your hard work fundraising and training for the event. Together we can change the future of muscle wasting conditions.