We are celebrating 21 years of kidney transplants in CHI at Temple Street this week. There will be an online event for patients and families on the 15th June at 11am. Join the event here ➡️us06web.zoom.us/j/81889554207?…

Next up is Lorna, Director of Love Knowledge Consultancy & Manager of the PHRU UL School of Medicine, along with Anne Lawlor of 22Q11 Ireland & the HSE National Patient & User Forum. Anne is sharing her lived experience, giving valuable insight into #PPI impacts. #PPIUL24

When audience members respond with words like 'authentic' 'real' and 'impactful' not only is it appreciated- we know we've hit the mark! 🤗 #PPI #PartnershipInAction

Looking for young people (between 18-24 years) and parents/caregivers to participate in a short interview, about your experiences with moving from paediatric to adult services. If interested, contact [email protected] (PhD Graduate Student).

Tickets for Rare Ireland’s first Charity Ball are now on sale. Join us in celebrating rare families in Ireland at what promises to be a fun filled night. Tickets are not €55 and special hotel room rates apply. Contact us for info eventcreate.com/e/rareireland2…

✨ Have your say! We are still actively recruiting young people between the ages of 18-24 who are living with a rare kidney disease and/or parents! Please reach out if interested! ✨

Excited to be in Liverpool for the NCRM participatory research methods course led by Dr. Kim Ozano. Loads of learning for my PhD study 📚🤔

1st day of our Hands on participatory methods course covered freezeframe, body mapping, power line, presentations on governance network mapping & governance diaries from Bachera Aktar. Also insightful discussions about doing a copro PhD from Beatrice Egid. More to come! #PAR

Super helpful paper when considering evaluation of co-creation - including both process and impact evaluation ⭐️

🎉🎉Massive congratulations to Matthew J Douma and all his co-authors for their research project "What Are the Care Needs of Families Experiencing Sudden Cardiac Arrest?" which was recently announced as The Journal of Emergency Nursing Article of the Year for 2023 Full article: bit.ly/4fbtjL0

We are thrilled to expand our #cocreation network into Africa — Danielle Agnello is heading to #zanzibar w/ School of Global Health - University of Copenhagen & The State University of Zanzibar (SUZA) to teach #PhD students about co-creation! In the area? Reach out to Danielle to connect! #PhDTraining #codesign #coproduction

🚨 Publication Alert 🚨 Thrilled to share that the first paper of my PhD has just been published; A systematic scoping review synthesising interventions to support youth and families with healthcare transition within nephrology services: lnkd.in/ebY4R2Me

"Fantastic Cup o' Collaboration meeting—engaging, proactive, and full of energy! 🌟 #PPI #PLWRD #RAIN"

Delighted to dust off my thesis in three presentation skills at the UCD School of Nursing, Midwifery & Health Systems international conference this morning, alongside Rachel Howe! 😀 Thank you for having me.

Some of the PhD Students at the UCD School of Nursing, Midwifery & Health Systems Conference 2024

Congratulations to all our PhD students ⁦UCD School of Nursing, Midwifery & Health Systems⁩ ⁦University College Dublin⁩ for their excellent work! thesis in 3 minutes/ oral/poster presentations 👏 congratulations ⁦Yvonne McCague⁩ ⁦Melissa Kinch⁩ for their excellent presentation focusing on #childhealth #Family

No child should be deprived of early diagnosis and care that can improve or save lives. Support a harmonised European approach to newborn screening. Read the 11 Key Principles, available in 13 languages: go.eurordis.org/Jakheu #NewbornScreening #RareDiseases #EqualCare