Pleased to contribute to the EORTC Board meeting, which as of today is led by WinetteVanDerGraaf. Perfect timing for #WomenInScience! Improving outcomes and #qualityoflife of all #cancer patients! eortcresearchfund.org eortc.org

"NOW in JNCI, Husson et al explore the critical need to develop a Core Outcome Set for adolescent/young adults #AYA w #cancer to standardize research & clinical practice for this unique patient group globally! #ayacsm Read more here: bit.ly/3FhSOqz"

Vandaag konden we het #AYA KIB rapport IKNL Nationaal AYA 'Jong & Kanker' Zorgnetwerk overhandigen aan Fleur Agema om het belang van #AYA kanker zorg, onderzoek en financiering ervan te benadrukken.

Great news: research groups across Europe will join forces in a new consortium led by the NKI to improve scientific research and healthcare for #AYAs: STRONG-AYA. A major step towards improving the lives of adolescents and young adults with cancer. ➡️ bit.ly/3J5dIgb

Very proud of Vivian Burgers presenting her qualitative study findings at #IPOS2022 on the experiences of adolescents and young adults (AYA) with an uncertain and/or poor cancer prognosis WinetteVanDerGraaf

We came live & virtual together for a very good reason:first meeting of #STRONGAYA European consortium in Amsterdam. Data driven project to improve healthcare services & outcome for #AYA Olga Husson Anne-S Darlington Horizon Europe🇪🇺 UK Research and Innovation Youth Cancer Europe European Cancer Organisation EORTC a.o.

💡🔦 Spectacular new programme to improve care for #AYA with cancer led by Olga Husson WinetteVanDerGraaf We will develop University of Southampton Health Sciences, UoS a Core Outcome Set: outcomes that matter to young people! 👀 southampton.ac.uk/news/2022/10/y… Samantha Sodergren @ClaireFosterW Prof Alison Richardson

AYAs with an uncertain and/or poor cancer prognosis live longer due to advancements in treatments, but what does this mean for these young people? Check out the results of our interview study ! Olga Husson WinetteVanDerGraaf Niels #AYA #PalliativeCare frontiersin.org/articles/10.33…

Delighted that our EU project can be found on line now. Highlighting this website during our biannual General Assembly (online) meeting today. #AdolescentYoungAdultCancer #AYA Olga Husson Anne-S Darlington Youth Cancer Europe EORTC European Cancer Organisation IKNL

Inspiring start of 3 days focussed on PROs. Today with a focus on #AYA cancer research & care. Important global perspectives. Delighted to have William Tap Vishu Avutu and Marie Barnett from Memorial Sloan Kettering Cancer Center and Samantha Sodergren from University of Southampton in Amsterdam The Netherlands Cancer Institute Michael Senter Olga Husson

If we want to measure HRQoL as endpoint of trials we need the best #PRO measures. Same for healthcare evaluation, research. #Sarcoma not an easy one for this topic but we made a start! Grateful to colleagues who came for the meeting from Europe, Jordan, US, Asia, Canada(virtual).

5 yr survivors of cancer at AYA age (18-39 yrs at diagnosis) compared to controls. Significant drop in income Ties Siebinga Silvie Janssen Olga Husson Financial outcomes of AYA survivors: a longitud. population-based registry study pubmed.ncbi.nlm.nih.gov/37280086/

Super thought-provoking session! 👏🏻 v revealing audience & #AYA advocate responses to: “What’s the most important thing to you about #QoL?” (relationships with family!) & “How can we hear EVERYONE’S voice?” (ask!) Relationships + communication, people…💛 #AYACancerCongress

Sign up for our stakeholder forum “Caught in the Middle: Identifying Gaps for Adolescents and Young Adults (AYA) with cancer” & engage with leading European initiatives in AYA #cancer care. 📅 27 September 15:00 -17:00 📌Online 🔗 bit.ly/3OipSFB

Proud of three PhD students of our research team who ran succesfully the Lindahl's Singelloop Utrecht today for KWFKankerbestrijding Well done Lina, Catarina and Emily Holthuis ! Olga Husson #AYA #sarcoma COMPRAYA #GenAYA study EORTC Quality of Life Group (QLG) Margot Tesselaar #rarecancers

'Daniël J. van der Meer and colleagues describe accelerated aging for #AYA #survonc patients showing this increases secondary cancer risk. Olga Husson doi.org/10.1093/oncolo…

Great to see attention ESMO - Eur. Oncology #SarcomaRareCancer meeting Lugano for HRQoL&diagnostic delay in rare cancer pts. Happy to see my team members on stage & the discussant referring to our previous work. Olga Husson Emily Holthuis Catarina Simoes EORTC Quality of Life Group (QLG) The Netherlands Cancer Institute marga_nfk NFK

A new journal on cancer survivorship research and care. We made a start.. on the next steps of #AYA survivorship research Olga Husson Professor DM Thomas tandfonline.com/doi/full/10.10…

🌟 Curious about our commitment to Adolescent and Young Adult (AYA) cancer? Experience it firsthand at #SIOPEurope2024 in Red Room 2, where the #SIOPEAYACommittee and ESMO - Eur. Oncology are presenting on "Sharing and integrating big data sets in the AYA cancer population." #AYACancer