PKD Charity UK (@pkdcharity) 's Twitter Profile
PKD Charity UK

@pkdcharity

Seeking a Cure for Polycystic Kidney Disease. UK charity. Supporting patients, generating awareness, fundraising for research #ADPKD #ARPKD #polycystickidneys

ID: 57301080

linkhttp://www.pkdcharity.org.uk calendar_today16-07-2009 10:49:28

5,5K Tweet

3,3K Followers

1,1K Following

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Are you skilled in operational roles and looking to make a difference in a small, dynamic, and growing organisation? We are seeking an experienced professional to join our team on a part-time basis (3 days per week, flexible hours). More👉🏻bit.ly/3ylHQDa

Are you skilled in operational roles and looking to make a difference in a small, dynamic, and growing organisation? 

We are seeking an experienced professional to join our team on a part-time basis (3 days per week, flexible hours). More👉🏻bit.ly/3ylHQDa
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

Congrats to ARPKD patient Claire, 44 years post transplant, winning bronze in the cricket ball throw at the British Transplant Games in Nottingham! #ADPKD #ARPKD👏🥳

Congrats to ARPKD patient Claire, 44 years post transplant, winning bronze in the cricket ball throw at the British Transplant Games in Nottingham! 

#ADPKD #ARPKD👏🥳
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🎉 Just over a year after receiving a kidney from his incredible wife, Donna, huge congratulations go to PKD patient Darren, who won 2 Golds in swimming and a Bronze in volleyball at the British Transplant Games in Nottingham! 🥇🥇🥉🙌 #organdonation #ADPKD

🎉 Just over a year after receiving a kidney from his incredible wife, Donna, huge congratulations go to PKD patient Darren, who won 2 Golds in swimming and a Bronze in volleyball at the British Transplant Games in Nottingham! 🥇🥇🥉🙌
 #organdonation  #ADPKD
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Inspiration in bucket loads this weekend at The British Transplant Games in Nottingham! Wonderful meeting so many amazing people, each with their own unique story. Congrats to our fantastic PKD athletes for their excellent efforts and outstanding results! 🥇🥈🥉 #ADPKD #ARPKD

Inspiration in bucket loads this weekend at The British Transplant Games in Nottingham!  Wonderful meeting so many amazing people, each with their own unique story.
Congrats to our fantastic PKD athletes for their excellent efforts and outstanding results! 🥇🥈🥉
#ADPKD #ARPKD
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🌟So grateful to Dr Aled Williams and Nurse Specialist Melanie Pickman of Morriston Hospital for their support through dialysis and a kidney-pancreas transplant, Rachel gets their photos printed on a T-shirt as a fun yet genuine tribute to her unsung heroes! 🦸🙌

🌟So grateful to Dr Aled Williams and Nurse Specialist Melanie Pickman of Morriston Hospital for their support through dialysis and a kidney-pancreas transplant, Rachel gets their photos printed on a T-shirt as a fun yet genuine tribute to her unsung heroes! 🦸🙌
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This #WorldOrganDonationDay let's honour the life-saving power of organ donation. With over 6,000 people in the UK waiting for a kidney - the highest in a decade - your decision matters more than ever. Please take two minutes to confirm: bit.ly/Orgreg

This #WorldOrganDonationDay let's honour the life-saving power of organ donation. 

With over 6,000 people in the UK waiting for a kidney - the highest in a decade - your decision matters more than ever. Please take two minutes to confirm:  bit.ly/Orgreg
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

📢For everything you need to know about PKD (ADPKD), join us in Birmingham on Saturday, Sept 28th, for this free full-day event! 🤝Expert talks, interactive workshops, and chances to make friends with others living with the condition. Lunch is on us! 🎫Places are limited - view

📢For everything you need to know about PKD (ADPKD), join us in Birmingham on Saturday, Sept 28th, for this free full-day event!
🤝Expert talks, interactive workshops, and chances to make friends with others living with the condition. Lunch is on us! 
🎫Places are limited - view
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

The reality of Autosomal Recessive Polycystic Kidney Disease (ARPKD), the rare form of PKD, occurring in approx. 1 in 25,000 children. And the power of living organ donation that transformed the life of 13 year old Luke! 👊 #PKDAwareness

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🌟 It's PKD Awareness Week! 🌟 Around 70,000 people in the UK are living with Polycystic Kidney Disease (ADPKD and ARPKD). For many, it means a life filled with pain, isolation, and an uncertain future - often endured in silence. This week, we’ll be sharing vital information

🌟 It's PKD Awareness Week! 🌟

Around 70,000 people in the UK are living with Polycystic Kidney Disease (ADPKD and ARPKD). For many, it means a life filled with pain, isolation, and an uncertain future - often endured in silence.

This week, we’ll be sharing vital information
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🔍 Did you know high blood pressure can be an early sign of Polycystic Kidney Disease (PKD)? Often overlooked, untreated high BP can lead to severe complications. While PKD is usually inherited, it can also develop spontaneously - even without a family history. Unfortunately,

🔍 Did you know high blood pressure can be an early sign of Polycystic Kidney Disease (PKD)? 
 
Often overlooked, untreated high BP can lead to severe complications. While PKD is usually inherited, it can also develop spontaneously - even without a family history. Unfortunately,
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

🚫 PKD doesn’t discriminate! Both men and women, across all ethnicities, are equally at risk of Polycystic Kidney Disease (PKD). PKD begins at conception, with symptoms appearing as early as childhood or as late as middle age. Awareness, education, and timely monitoring are

🚫 PKD doesn’t discriminate!

Both men and women, across all ethnicities, are equally at risk of Polycystic Kidney Disease (PKD).

PKD begins at conception, with symptoms appearing as early as childhood or as late as middle age. Awareness, education, and timely monitoring are
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🔍Polycystic Kidney Disease (PKD) causes severe flank and abdominal pain due to fluid-filled cysts expanding, rupturing, or causing infections. For adults with Autosomal Dominant PKD (ADPKD), Tolvaptan offers hope by helping to slow cyst growth and preserving kidney function.

🔍Polycystic Kidney Disease (PKD) causes severe flank and abdominal pain due to fluid-filled cysts expanding, rupturing, or causing infections.

For adults with Autosomal Dominant PKD (ADPKD), Tolvaptan offers hope by helping to slow cyst growth and preserving kidney function.
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

Polycystic Kidney Disease (PKD) affects each of us differently and can show up when we least expect it - like during a routine dental visit or while joining a gym and discovering high blood pressure. How did you find out, how has impacted you or a loved one, and what have you

PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

👊PKD Myth Busting This Awareness Week! 👊 Whilst not a cure, a transplant can transform the lives of PKD patients with Kidney failure. Help us raise awareness and improve understanding. Like, share, and be #BePKDAware #PKDAwareness #ARPKD #ARPKD bit.ly/AboutPKD

👊PKD Myth Busting This Awareness Week! 👊
Whilst not a cure, a transplant can transform the lives of PKD patients with Kidney failure.
Help us raise awareness and improve understanding.
Like, share, and be #BePKDAware
#PKDAwareness #ARPKD #ARPKD
bit.ly/AboutPKD
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

🌟 Susan gets 2nd Kidney Transplant at 80! 🌟 Diagnosed with PKD, she had her first kidney transplant at 57, which lasted an impressive 20 years! On June 14th, just before her 80th birthday, she received her second transplant at University Hospital Wales, Cardiff - showing that

🌟 Susan gets 2nd Kidney Transplant at 80! 🌟

Diagnosed with PKD, she had her first kidney transplant at 57, which lasted an impressive 20 years!

On June 14th, just before her 80th birthday, she received her second transplant at University Hospital Wales, Cardiff - showing that
PKD Charity UK (@pkdcharity) 's Twitter Profile Photo

🔍Imagine carrying kidneys the size of a rugby ball - every single day. While a typical kidney weighs a third of a pound, PKD kidneys can reach up to 30 pounds - a harsh reality for many with PKD. Our new research consortium with Kidney Research UK aims to reduce this overwhelming

🔍Imagine carrying kidneys the size of a rugby ball - every single day.
While a typical kidney weighs a third of a pound, PKD kidneys can reach up to 30 pounds - a harsh reality for many with PKD.
Our new research consortium with <a href="/Kidney_Research/">Kidney Research UK</a>  aims to reduce this overwhelming