In collaboration with Medics4RareDiseases, the RArEST Project team brings you e-learning modules for healthcare professionals.

🩺CPD-accredited, person-centered care for rare diseases, informed by patient and professional insights.

Complete the course: learn.m4rd.org

'Digital Mental Health Resources Fact Sheet' tailored for Australians living with rare diseases, their families, and caregivers. You can find credible information about digital mental health and services.

Download now: rarevoices.org.au/rarest-project/

The RArEST Project was funded by the Australian Government to develop and deliver #RareDisease awareness resources, education, support and training. 🌟We will be sharing a selection of the initiative’s deliverables to date in the coming weeks.

Read more: rarevoices.org.au/rarest-project/

'They shall grow not old, as we that are left grow old;
Age shall not weary them, nor the years condemn.
At the going down of the sun and in the morning
We will remember them.' - The Ode
#AnzacDay2024

Spreading awareness about rare diseases one infographic at a time. 💡

Share the infographic to help spread the word!

Source: 'The evidence base for the National Strategic Action Plan for Rare Diseases 2020'

#RareDiseaseAwareness #Infographics #RareDiseaseSupport #HealthEd

A comprehensive disability reform agenda led by the Disability Reform Ministerial Council, guided by the Australian Disability Strategy 2021-2031 is underway.

📖 Read more about RVA's disability advocate here rarevoices.org.au/rare-voices-au…

Lucy shares her experience living with Relapsing Polychondritis and highlights the importance of diagnosis and how crucial it is to be surrounded by a team of medical professionals who are willing to work alongside her for the best outcomes.

Read more: rarevoices.org.au/rva-story/lucy…

Interactive Health System Simulation Workshop: Integrated Care for People Living with a Rare Disease - 6 May 2024, Perth.

For more information, visit bit.ly/RArEST-project…

RVA Partner, Childhood Dementia Initiative, is hosting a webinar on research activity and inequity, and opportunities for change to accelerate treatment for childhood dementia.

📍24 April (Wed), 10am - 11am (AEST), on Zoom.

RSVP: events.humanitix.com/global-researc…

New Paediatric End-of-Life Care Communication course to help healthcare professionals to better engage with young people, families, and colleagues about end-of-life care in paediatrics.
Visit bit.ly/palliative-car….

Happy Easter to those celebrating from the team at Rare Voices Australia! 🐇🥚

'But one of the hardest things about living with a rare disease (aside from keeping track of the growing pharmacy sufferers house in our bedside drawers), is the lack of awareness.'

Read more about personal stories of women living with rare disease: bit.ly/bodyandsoulart…

RVA Partner, Reflections has launched new support resources for people affected by mesothelioma: The Hope Companion. It combines lived experience with medical insights, offering tailored support for patients and caregivers.📖
Visit Reflections' website: reflections.org.au/mesothelioma/t….

Dr (Elizabeth) Emma Palmer, senior clinical lecturer at the UNSW and leading co-author of the National Recommendations for Rare Disease Health Care was interviewed by WIN TV. Emma is also a member of RVA's SMAC.

Watch the interview at: fb.watch/qYuylRe7FN/

2024 Sawatzky Cup Trophy Presentation!

🎾Thank you to everyone who made this event a great success.

The final tally of $7,025 will assist RVA in the implementation of the Action Plan for Rare Diseases.

Photos: Scotty’s Media