Wir haben unsere Mitglieder nach ihren Erfahrungen mit Aktivierungstherapien (CBT und GET) gefragt. Innerhalb weniger Tage haben wir weit über 100 Antworten bekommen und möchten hier eine Auswahl zeigen.

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mecfs.de/aktivierung-be…

#MECFS #LongCOVID

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Gene expression data in the Cornell Center’s latest preprint (tinyurl.com/4e7cdeum) suggests monocytes are receiving signals from tissue under assault—perhaps from infection or injury. More work to do—what are these signals and where are they coming from?

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🚨We are happy to announce the recipient of the 2022 'Johadamis #MECFS Research Grant.' Prof. Akiko Iwasaki
Prof. Akiko Iwasaki , in collaboration with
PolyBio , will screen blood + cerebrospinal fluid of a well-defined Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cohort.

A recently published draft report on ME/CFS from a German health agency promotes CBT and GET:
virology.ws/2022/10/28/tri…

Quite interesting: the IQWiG (the German NICE) which currently summarizes the evidence base for #MECFS treatments, accepts the PACE trial as scientifically valid. I.e., the trial used by renowned statisticians as an example how NOT to do a clinical trial:
youtube.com/watch?v=PRCQ-k…

Carmen Scheibenbogen spricht über die verschiedenen Pathomechanismen von ME/CSF beim PostCOVID Symposium der Deutsche Zentren der Gesundheitsforschung (DZG) #postcovid #LongCovid

Get down from there this instant…don’t make me come up there! 😏🤣🥴🐻

‼️NEW IMPORTANT #LongCovid SURVEY‼️ (2-10 min)

If enough respond, results will be presented at a large conference next month to raise #LongCovid awareness. We may also present a poster to policy makers!

PLEASE take survey to help advocate for #pwLC !🧵
docs.google.com/forms/d/1i7FII…

The TEMPI Foundation now has a Twitter account TEMPI-Foundation

Do also consider following Christoph, someone with #SevereME who tweets in English & German
#MEcfs #CFS #PwME

fereshteh jahanbani antibodies directed against the pituitary could also play a role in ME/CFS pubmed.ncbi.nlm.nih.gov/34254637/

More than two months after writing a 4500-word report on the oxaloacetate trial for #LongCovid and #MECFS , I l haven’t received any update from BMC’s Journal of Translational Medicine.

The article has been accessed 14,000+ times & is used as advertisement meanwhile.

AMMES Thanks for sharing this study! More signs of a role for autoimmunity in ME. I'm not an 'estimation statistics' pro, but by eye: that nearly all are shifted in one direction may be more important versus these six specific genes that just eked out hypothesis test significance.

charlos Another Problem is there are many useless trials of stuff LC and ME/CFS patients have already trialed plenty and it does not make any significant difference. We need more then just 10 days Paxlovid sorry - so many LC patients I know have taken this already.

Ein sehr wichtiger Artikel im Focus über die falsche Behandlung von #LongCOVID Betroffenen mit Belastungsintoleranz (PEM) in Rehas.

focus.de/gesundheit/cor…

Instant regret..🐈🐾🌊