Sarita Edwards(@SaritaEdwards) 's Twitter Profileg
Sarita Edwards

@SaritaEdwards

CEO @everyoneiswe | Podcaster | Global Speaker | Award Winning Advocate | Creator | Expert | JEDI | Policy 🦓 #Trisomy18 #RareDisease #MentalHealth #MeToo

ID:318600298

linkhttp://linktr.ee/ewefoundation calendar_today16-06-2011 18:58:22

3,5K Tweets

837 Followers

651 Following

Sarita Edwards(@SaritaEdwards) 's Twitter Profile Photo

In just under one week, the rare disease community will gather in Washington, DC to hear from experts and thought leaders on a variety of topics like the benefits of collaboration, the importance of mental health, and the future of drug approvals. See you there!

In just under one week, the rare disease community will gather in Washington, DC to hear from experts and thought leaders on a variety of topics like the benefits of collaboration, the importance of mental health, and the future of drug approvals. See you there! #NORDSummit
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Join us on October 19th for an exclusive Being Rare Podcast episode about knowing your family's health history! Tune in for the live premiere recording at buff.ly/3St2qpY!

Join us on October 19th for an exclusive Being Rare Podcast episode about knowing your family's health history! Tune in for the live premiere recording at buff.ly/3St2qpY!
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ZEBRA is a comfort care program that supports families living with life-limiting diagnoses, medical complexities and special health needs. Our comfort care program addresses physical comfort, daily care, mental health, emotional balance & spiritual support.

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How we mental health... The E.WE Foundation along with several other community organizations joined Madison City Schools and Madison City PTA for another Mental Health Matters event! buff.ly/3V9qiR8

How we mental health... The E.WE Foundation along with several other community organizations joined Madison City Schools and Madison City PTA for another Mental Health Matters event! buff.ly/3V9qiR8 #mentalhealthmatter #worldmentalhealthday
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Sarita Edwards(@SaritaEdwards) 's Twitter Profile Photo

Check out Moms & Mental Health: The Importance of Self Care. We are committed to normalizing mental health and to providing support to families living with rare diseases, like Edwards Syndrome, medical complexities, and special health care needs. buff.ly/3elQlEg

Check out Moms & Mental Health: The Importance of Self Care. We are committed to normalizing mental health and to providing support to families living with rare diseases, like Edwards Syndrome, medical complexities, and special health care needs. buff.ly/3elQlEg
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Today is World Mental Health Day, an international day for global mental health education, awareness and advocacy against social stigma. How do you take care of your mental health?

Today is World Mental Health Day, an international day for global mental health education, awareness and advocacy against social stigma. How do you take care of your mental health?
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Talking about your family’s health history can feel uncomfortable. Knowing your family’s health history can help you find out if a disease runs in your family before it becomes a problem. The earlier you find out about potential health risk, the earlier you can start treatment.

Talking about your family’s health history can feel uncomfortable. Knowing your family’s health history can help you find out if a disease runs in your family before it becomes a problem. The earlier you find out about potential health risk, the earlier you can start treatment.
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Sarita Edwards(@SaritaEdwards) 's Twitter Profile Photo

Join FDA’s virtual webinar on October 27 to learn how to organize, execute, and participate in . Hear first-hand experiences from researchers, patients, and advocates. The event is free and open to the public. Register: buff.ly/3fR4j1k

Join FDA’s #RegenMedEd virtual webinar on October 27 to learn how to organize, execute, and participate in #NaturalHistoryStudies. Hear first-hand experiences from researchers, patients, and advocates. The event is free and open to the public. Register: buff.ly/3fR4j1k
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Excited to join this panel of professionals to speak about clinically relevant outcomes and the acceleration of medical product development for rare diseases. The NORD Summit is happening October 17-18 in Washington, DC. See you soon! NORD

Excited to join this panel of professionals to speak about clinically relevant outcomes and the acceleration of medical product development for rare diseases. The NORD Summit is happening October 17-18 in Washington, DC. See you soon! #NORDSummit @RareDiseases
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Baby's First Test(@BabysFirstTest_) 's Twitter Profile Photo

On this episode of the Being Rare , our director, Natasha B., joins host Sarita Edwards and guest Briyana Brown in an honest conversation about awareness and education. Click the link below to listen today!

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October is National Family History Month. This is a great opportunity to talk about family history, including health, and make sure your story is remembered for decades (and centuries) to come. Join us all month as we share why you should care about your family's health history!

October is National Family History Month. This is a great opportunity to talk about family history, including health, and make sure your story is remembered for decades (and centuries) to come. Join us all month as we share why you should care about your family's health history!
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Sarita Edwards(@SaritaEdwards) 's Twitter Profile Photo

You asked, we listened! Being Rare Podcast is on Facebook! If you hangout on Facebook, give us a follow at buff.ly/3St2qpY!

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NORD Summit, live and in-person, Washington, DC., October 17-18! Join rare disease leaders from patient advocacy groups, government, industry, and academia for exclusive access to insights, compelling connections, and expert resources. Register today! NORD

NORD Summit, live and in-person, Washington, DC., October 17-18! Join rare disease leaders from patient advocacy groups, government, industry, and academia for exclusive access to insights, compelling connections, and expert resources. Register today! #NORDSummit @RareDiseases
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Baby's First Test(@BabysFirstTest_) 's Twitter Profile Photo

Because of our joint efforts, our content was liked, commented on, shared, and saved on social media over 1,500 times this month! Thank you to everyone who rose to the challenge of helping us make this Newborn Screening Awareness Month a memorable one.

Because of our joint efforts, our #newbornscreening content was liked, commented on, shared, and saved on social media over 1,500 times this month! Thank you to everyone who rose to the challenge of helping us make this Newborn Screening Awareness Month a memorable one. #2022NBS
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