If you’ve not yet heard about the Fontan Outcomes Network, there’s no time like the present!

Apply Today: we’re looking for parent and provider champions of parent/patient engagement to lead our new Community Engagement Committee. Interested? Learn more and apply by January 28: lp.constantcontactpages.com/sv/fNJGjqh?sou…

January 2022 Newsletter - mailchi.mp/644637a3c544/j…

I am studying what makes congenital heart patients resilient with @schuch_doc and Melissa Cousino, PhD and we need patients’ help. CHD patients 10-25yrs old, spare 15 minutes and share your perspectives in this survey: redcap.rchsd.org/surveys/?s=FCJ… #CHD

April 2022 Newsletter - mailchi.mp/5b68f4015d48/a…

The Roadmap Project is a national effort to foster the emotional health of patients with chronic conditions and their families. ⁦Learning Health Networks⁩ ⁦American Board of Pediatrics (ABP)⁩ ⁦Sisters by Heart⁩ ⁦FON⁩ ⁦NPCQIC⁩ ⁦Cardiac Networks United⁩ ⁦⁦⁦⁦

SBH is a proud partner of FON. If you’ve not checked out this network of patients, families, and clinicians, take a look, get involved, ask your care center if they’re a member! fontanoutcomesnetwork.org

Psychological care is a MUST have for #ACHD care. #ACHD2022

ICYMI: Meg Didier conducted our first-ever FON Social Media Takeover last Friday! She answered questions and shared a day in her life as 30-y/o born with #HLHS who is now >30-weeks pregnant. Check it out via the Takeovers archive on our Instagram profile: instagram.com/fontanoutcomes…

Are you or someone you know in the FON #singleventricle community interested in sharing a day in your life via our FON Social Media Takeover? Whether you’re a patient, family member, caregiver, or provider, you can share your interest at the link below! fontanoutcomesnetwork.org/social-media-t…

July 2022 Newsletter - mailchi.mp/0491d268bc16/j…

Follow along this Friday, July 29 on our FON Facebook and Instagram stories as Tyler Sajdak, a 28-year-old with single ventricle circulation, will discuss his experience moving away from family and transitioning care centers as a part of our monthly social media takeover!

ICYMI: Tyler Sajdak conducted our second FON Social Media Takeover! Tyler answered questions & shared a day in his life as a 28-y/o w/ single ventricle circulation who has moved & transitioned care centers. Check it out via the archive on our Instagram: instagram.com/fontanoutcomes…

If you missed the webinar- I would highly recommend watching the recording. Emotional Health & Resilience in the single ventricle community put on by FON

Registration is now open for the Fourth Annual Single Ventricle Patient Day, taking place in person and virtually on Saturday, Nov. 12 from 9 a.m. to 4 p.m. CT! Click here to learn more about the event: fontanoutcomesnetwork.org/events/single-…

October 2022 Newsletter - mailchi.mp/f8aca65c6b34/o…

On our first #WeShareWednesday, we are highlighting The Single Ventricle Journey: A Guide for Parents and Families, from NPC-QIC. This extensive guide to the SV experience offers resources, support, & info. from birth to Fontan and beyond with HLHS. Visit: bit.ly/3NSz2q0

This is such a grand partnership for #SingleVentricleCare #FONLS #NPCQICLS #StrongerTogether NPCQIC FON Sisters by Heart

January 2023 Newsletter - mailchi.mp/9907b7dfb853/j…

July 2023 Newsletter - mailchi.mp/sistersbyheart…