Zipper Sisters
@ZipperSisters
Sisterhood of Women with Congenital Heart Defects
We are 1 in 100! #CHD #ACHD awareness. Patient first.
Established 2012
ID:1248460162551013378
10-04-2020 03:58:19
2,0K Tweets
1,0K Followers
360 Following
JACC Journals Int’l Society for Adult Congenital Heart Disease🌎 statement:
Sexual Health & Well-Being in Adults With Congenital Heart Disease #ACHD
doi.org/10.1016/j.jaca…
🙏🏻Lorna Swan for leading & Jonathan Windram Dr Liza Morton, Healing Hearts & Minds Luke Burchill Laila Ladak Leigh Reardon Beatriz Fernandez Roni Jacobsen David Harrison
Interview with Leigh Kamping-Carder about body image, exercise, and some of the struggles with living with #CHD . I think many will relate. Brave and honest ❤️ cchaforlife Zipper Sisters The BeatRetreat Camp Global ARCH Conquering CHD Mended Little Hearts ACHA virginiasolesmith.substack.com/?utm_source=na…
I highly recommend this excellent & heartwarming radio show with words of wisdom from Tracy Livecchi & Dr Liza Morton, Healing Hearts & Minds & Dr. Robert Elder! ❤️
Patients, cardiologists, nurses, & mental health professionals are now advocating for psychological care embedded within #ACHD programs!
🧡 BE PART OF OUR NEW STUDY
If you’re a teen or adult with congenital #heartdisease , or a parent of a person (any age) with #CHD , we want to hear from you!
Tell us what you like & dislike about the words used to talk about #CHD
Click for our survey:
redcap.sswahs.nsw.gov.au/surveys/?s=HYH…
Congratulations to fellow #zippersister & friend Aliza Loewy Marlin for her recent award 'The Heart of Artivion' for embodying the mission of treating & impacting the lives of those with diseases of the aorta from Artivion ! #CHD #ACHD
In the ❤️ of New York City, the capes flew for #CHD !! youtu.be/Ku9mh24RNaI?si… #TBT #HeartHeroes #1in100 #morethanjustacape
A few years after the pandemic, most #CHIregistry participants reported that their lives had returned to normal. Please read our annual report to learn other unique insights about living with #congenitalheartdisease . bit.ly/3OFnA50
Heart and mind to the fore…
Lene Osmundsen reviews Tracy Livecchi and Dr Liza Morton, Healing Hearts & Minds's book 'Healing Hearts and Minds: A Holistic Approach to Coping Well with Congenital Heart Disease'.
bps.org.uk/psychologist/h…
Starting in January, and led by our ACHD specialist psychologist, these group sessions will explore a holistic approach to living with congenital heart disease ♥️
Call 0117 342 8168 or email: [email protected] to join.
CHD Network South Wales & South West Heart Heroes |Charity|❤️
Big thanks to the Congenital Heart Alliance of Cincinnati (Congenital Heart Alliance of Cincinnati) for including The Heart Dialogues on their list of resources for families with congenital heart disease. So meaningful to think of my newsletter as a support to the #CHD community! chaoc.org/family-resourc…
Former TV news reporter Leah Shields was born with a heart condition called tetralogy of Fallot. She calls it her superpower; it helped her empathize with interview subjects. But she also gets angry at her heart sometimes. bit.ly/theheartdialog… #CHD Awareness #CHD
Tom Glenn JAHA Eleanor Schuchardt, MD (she/her) Melissa Cousino, PhD Gil Wernovsky Here’s a recent article about the important role of CHD patient groups and a list of resources cjcpc.ca/article/S2772-…
Are you a medical center and looking for ideas to help engage and educate patients and families?
Offer telehealth or virtual health education options for patients and families who may have difficulty attending in-person sessions, ensuring accessibility for everyone.
#MedTwitter
#mikelandzberg - Wayne Gretzky of #ACHD such a moving grand rounds VUMC Heart/Vascular. Like Gretzky - a master, but also LOVED by ALL! ACHA Alexander (Sasha) Opotowsky Fred Wu, MD 🫀 吳明杰 Wayne J. Franklin MD Brigham and Women's Hospital Ari Cedars Jane Freedman MD Vanderbilt Cardiology Fellowship Hasan Siddiqi Josh Beckman John McPherson MD
