These guys are making a difference! Great work leaving ALS better than you found it. #ONWARD #ALSawareness #lougehrigsdisease

Folk wisdom that is invaluable in all human endeavors “A stitch in time saves nine”.
In neuroscience “we will find the solution for holes by waiting until the defect grows to a point it renders the garment inoperable then and only then we will have proof to fix the small holes!”

Do any major disease advocacy organizations decline donations from businesses that sell goods or services to the people living with their diseases?

'...with a focus on securing six-figure plus revenue partnerships...'
alsassociation.applytojob.com/apply/z7GMkOLL…

Some interesting tidbits in this... So around 30% of PLWALS in the US are in the ALSA clinic system?
als.org/sites/default/…
And go to page 2-12 for the requirements for clinic certifications.

Today's ALS word is

To be more clear — Chris has had a g-tube for 2 years. I don’t have general feeding tube questions — I’m looking for someone who has experience specifically with the AMT Applied Medical G-Jet tube, which is a skin level gastro-jejunal tube. ❤️

ALS Uncensored I AM ALS ALS TDI Target ALS KICK ALS! ⚽ The ALS Association AnswerALS ALS Hope Foundation ALS Advocacy ALS CURE Project Not sure, just going off of what they told my brother. I will say that the inconsistency in how this kind of stuff is handled by different doctors/insurance companies is very frustrating. To say the least.

HYPOTHETICAL : If you were just diagnosed with ALS and discovered you had a pathogenic SoD1 mutation , which medicine would you pursue?

ALS Advocacy Racing for ALS I AM ALS ALS TDI Target ALS KICK ALS! ⚽ The ALS Association AnswerALS ALS Hope Foundation ALS CURE Project I have PBA but it's not worth the $1000/mo to get help. I took it for a month and it definitely helped.

From open enrollment to changing insurance policies, we know it’s hard to select a medical plan that will meet your needs. We can help! Join us on Wed., Oct. 26 @ 7pm ET for the MDA #Advocacy Institute: Accessing Health Insurance for the #NMD Community. bit.ly/3RWN2kG

In 2014, Shawn Sexton was diagnosed with #ALS .

Realizing he would gradually lose his ability to walk, communicate and eat, he and his son, John, set out to create opportunities for independence.

See how they're fighting for the dignity of independence: go.nd.edu/DignityOfIndep…

Did you miss our webinar on Voice Banking? We have you covered! Here is the recording, available with English and Spanish subtitles.
youtube.com/watch?v=8o_Cz0… #ALSMNDWithoutBorders

Medicare is going to cap patients’ spending on drugs. But there’s no such limit for hospital or... statnews.com/2022/10/21/med… via STAT

Just wow. 💕The kind and wonderful Paul Jameson wants to give a free copy of his fabulous book ‘Very Much Alive’ to anyone who is also living with MND.Please share this and DM me with your email address and I will forward it to Paul #endmnd #MND #ALS MND Association