Excited to present at the Canadian Neurological Sciences Federation Congress #CNSF on cardiac amyloidosis, mixed phenotypes, new drugs. Canadian Neurological Sciences Federation University Health Network Hereditary Amyloidosis Canada Amyloidosis Amyloidosis Research Consortium

Smart Patients is thrilled to partner with Amyloidosis to enhance support for amyloidosis patients and caregivers. Join the community today! smartpatients.com/af

❣️ NASHVILLE SUPPORT GROUP ❣️ When: June 8th, 2024 12:00 pm - 2:00 pm CT Where: Mere Bulles Restaurant, 5201 Maryland Way, Brentwood, TN 37027 Speaker: Dr. Amanda Peltier - Topic: Neuromuscular Effects of Amyloidosis RSVP: [email protected] or 615-497-1770

🔴 Clinical Use of Biomarkers in Cardiac Amyloidosis CardiologyClinics #CardioEd #Cardiology #Amyloidosis

❣️ REGISTRATION IS OPEN for our annual Run - Walk - Roll - Bike ❣️ Registration includes a free t-shirt with a new design!!! Participate anywhere and at any time between May 15 and September 15. REGISTER HERE👇🏼 bit.ly/RunWalkRollBik…

REGISTER TODAY for our VIRTUAL Run-Walk-Roll-Bike, and participate at your leisure between now and September 15. REGISTER HERE: bit.ly/RunWalkRollBik… Registration includes a FREE t-shirt. Make sure to share your pictures with us at [email protected] and share on social

Great information!

Virtue Research is looking to interview ATTR patients in the US. They are trying to better understand the patient's journey. Click here to get started: bit.ly/3Wv1ZQl

Participation in the AFFIRM-AL study will help us understand whether an investigational medication is effective for adults newly diagnosed with advanced AL #Amyloidosis. Learn more about participating: bit.ly/4cXd2YA

The therapeutic landscape of AL amyloidosis has expanded in the past three decades. Visit our website to read Dr. Sanchorawala's (Vaishali Sanchorawala) New England Journal review. 📝 NEJM

TODAY'S SESSION! Clinical Trials 101: Everything You Need to Know To Get Started Wednesday, July 31, 06:00 PM - 06:40 PM America/Detroit You've got questions? We've got answers. This session will provide a beginner's guide to clinical trials. bit.ly/3WGQzZT

HAVE YOU REGISTERED FOR OUR VIRTUAL RUN YET? REGISTER TODAY for the AF VIRTUAL Run-Walk-Roll-Bike, and participate at your leisure between now and September 15tH REGISTER HERE: bit.ly/RunWalkRollBik… Registration includes a FREE t-shirt📷 #RunWalkRollBike #RunForAmyloidosis

REGISTER FOR THE NEW SESSION! How Practicing Gratitude Can Ease Your Amyloidosis Journey (with AF Board Director, Dr. Stacey Goodman). Aug 7, 2024 06:00 PM ET REGISTER HERE👇🏼 bit.ly/3WGQzZT

⏰⏰⏰ TOMORROW'S SESSION!!! Medical Ageism: What is it and how it may be affecting your care REGISTER FOR FREE HERE 👇🏼 us06web.zoom.us/meeting/regist…

GOOD NEWS FOR AUSTRALIA PATIENTS! ONPATTRO® (patisiran) is approved on the Pharmaceutical Benefits Scheme (PBS) for the treatment of hereditary transthyretin-mediated amyloidosis (hATTR amyloidosis) in adult patients, with stage 1 or stage 2 polyneuropathy bit.ly/3M1pxX2

Thank you Prothena Corporation for your support of our patient community!

Healthlink Solutions is looking for 10 patients diagnosed with ATTR-CM to participate in a research study. As a thank you for your time, you will receive an honorarium of $225.00. See if you qualify: healthlink-solutions.surveysparrow.com/.../tt-iPfgU

Due to the severe storms yesterday, we are closed today, August 28, 2024, with no power. We are still able to monitor emails from home. If you need immediate assistance, please contact us at [email protected].

We are excited to share new clinical outcomes data from our ATTRibute-CM Phase 3 study of acoramidis at @ESCardio 2024 and HFSA 2024! Learn more: bit.ly/3Xmq10f #Biotech #ClinicalTrials #Cardiology #HeartHealth

Systemic AL Amyloidosis in Patients Younger Than 40 Years of Age: Clin... sciencedirect.com/science/articl…