Read our latest publication with Springer Nature in European Journal of Human Genetics on #CHRISstudy #participantperspective on #recallbygenotype research approach. With Deborah Mascalzoni Katharina andrewhicks and others at Biomedicine - Eurac Research & Universität Lübeck rdcu.be/c2JI3

Great morning discussing some of our Facilitate Project proposals. Lots of feedback to digest and a report to follow!

Amazing panel and insights into return of results. Across countries experiences and examples to be be brought home and implemented! Thank you all. Biomedicine - Eurac Research Facilitate Project Centre for Research Ethics & Bioethics

Deborah Mascalzoni discussing results from studies that we are building our work upon

Great to be in Venice Privacy Symposium to discuss the impact of #EHDS & last years' Garante opinion on data sharing later today! Deborah Mascalzoni Biomedicine - Eurac Research

Amazing academic contributions and real life projects for discussing AI Biomedicine - Eurac Research Centre for Research Ethics & Bioethics

MEPs to vote on proposed ban on ‘Big Brother’ AI facial recognition on streets theguardian.com/technology/202…

FACILITATE’s project partners here together in #Paris for a Semi-annual meeting discussing how to return data to study participants & secondary use of these data! To be updated join #FACILITATE's pool of stakeholders here! 👉facilitate-project.eu/stakeholders-r…

⁉️𝐖𝐡𝐚𝐭 𝐢𝐬 𝐅𝐀𝐂𝐈𝐋𝐈𝐓𝐀𝐓𝐄'𝐒 𝐎𝐕𝐄𝐑𝐀𝐋𝐋 𝐆𝐎𝐀𝐋? The overall goal of this 4years project is the development of a patient centered process prototype to allow the direct generation and the return of clinical trials data to study participants👉facilitate-project.eu

Wooowww ✨ now this is cool

Excited to start working with HAPLO-iPS that will bring new insights to Biomedicine - Eurac Research and Centre for Research Ethics & Bioethics on IPS

Time to celebrate! ENLIGHTENmeProject will be awarded the URBES award given to cities, institutions, foundations and people who have promoted #urbanhealth and wellbeing with their commitment and targeted projects @Horizon_EU 👉enlightenme-project.eu/news/urbes-awa…

This is why we need a more nuanced assessment of the public value emerging from research, instead of sticking with the dichotomy between research being “in the public interest” or not: tandfonline.com/doi/full/10.10… (See also thelancet.com/journals/landi…)

Unser erstes Ziel sind 20.000 Euro und wir haben bereits mehr als die Hälfte erreicht. Bitte beteiligt Euch, wenn Ihr könnt. Ein Beirat, u.a. mit Birgit Hebein, Barbara Prainsack (@[email protected]) & @JulyaRabinowich, entscheidet über die Mittelverwendung. Hier gibts Infos: gegenrechtsschutz.at (2)

DCE from 12 European countries on public preferences for health data sharing governance: Heterogeneity of preferences and necessity of governance flexibility. Please consider in HealthDataEU_pilot and EU One Health. jmir.org/2023/1/e47066/ ROSiE Responsible Open Science in Europe HYBRIDA UiO - Det medisinske fakultet #EHDS

JUST PUBLISHED: Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries 👇jmir.org/2023/1/e47066

What is hidden behind the concept of #ResearchIntegrity? Read the blog post here! 👇 #EthicsBlogThrowback ethicsblog.crb.uu.se/2024/05/14/wha…