Registration is open for PIBD 2022 in Edinburgh on 10th September! This is an amazing opportunity to meet world-leading IBD experts and connect with other families affected by Crohn's and Colitis. Find out more here: eventbrite.com/e/paediatric-i… or check out the poster below!

Population Data Science at Swansea University is part of a thriving UK & international data linkage research community. We work closely with the public & other stakeholders to produce new research & knowledge that can be translated into policy & practice👉popdatasci.swan.ac.uk Swansea University SU Medical School

Research opportunity with Cardiff University

Great news from our partners UK IBD Registry 👇

Impressive recruitment numbers since Feb into the UK IBD Registry (our partners on Gut Reaction Health Data Research Hub) If you're living with #IBD and have not already joined, head to ibdregistry.org.uk/join to help grow this health research resource!

Do you have experience of taking Mirikizumab for Ulcerative Colitis? If so, we would like to hear from you! We've been asked by NICE to share your experiences of taking these medicines to help them to decide if they should be made available on the NHS. crohnsandcolitis.org.uk/get-involved/y…

Research opportunity ⬇️

We're commissioning a study into the Economic Costs of IBD, looking at costs to individuals, the NHS, & the economic impact of delayed diagnosis. Deadline extended to 19th September. Please share! Click here to see the invitation to tender 👉 bit.ly/3byr8Fb

An opportunity has arisen for a Corporate Partnerships Officer to join us on a fixed term contract. The ideal candidate will be experienced in corporate fundraising and responsible for supporting the Corporate Fundraising team diversify our portfolio. crohnsandcolitis.org.uk/our-work/about…

Great news from UK IBD Registry 👇

The new UK Young Academy provides a forum for talented early-career leaders to join colleagues from other fields to drive global innovation across different disciplines. Any early-career IBD researchers interested? Find out more: ukyoungacademy.org

With partners Anna Freud we've been talking to young people & families to get their input as we develop the Young People's BioResource 🙏Herts YPAG & all who've contributed so far! Anna Moore @GenrYPAGs Article on our #PPI efforts over recent months👇 bit.ly/3Aibdob

This year, we’re reviewing our approach to supporting PPI and engaging with researchers. Help us to understand your views and experiences by answering a few questions to shape our new approach! Take our survey for researchers today: forms.office.com/r/fxmQkvZ0af

🤔 What's a Trusted Research Environment (TRE)? TREs provide approved researchers with a single location to access datasets. They make research more efficient, but TREs also ensure that people's data is secure and their privacy protected. Read more: hubs.li/Q01k6RVX0

The MEErKAT team is studying which methods of ileocaecal surgery are better than others to prevent Crohn's recurrence. The trial is UK wide & they particularly welcome sites in Scotland and NI! Training for surgeons in Kono-S procedure will be available. bit.ly/3bAns5N

Please do disseminate these #secondment opportunities across your networks. Both roles working across UK wide #healthdata landscape supporting the Data and Connectivity National Core Study Health Data Research UK (HDR UK) (also working with some amazing people and teams!)

Delighted to be a finalist in the @AHSNNetwork Innovate Awards. So proud of the team effort, particularly the #PPI contributors on our Patient Advisory Committee (PAC) without whom we'd be nowhere! Delegation will be in London on 29/9 for the ceremony. Well done to all finalists!

We’ve published our 2022 annual report on biological therapies in #IBD – an essential part of our expanding programme to support greater understanding and improved quality of care for people with IBD in the UK #healthdata #NHS Find out more at bit.ly/3DZ3Bc3

🎉 Congrats to Gut Reaction Health Data Research Hub - shortlisted for the Public and Patient Involvement and Engagement Award! They work with the #IBDcommunity to improve treatment options and patient outcomes through safe, transparent and responsible use of patient data.