Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile
Interstitial Lung Disease Info

@ildinfo

Videos, Podcast, Posts about Pulmonary Fibrosis (lung scarring) and related conditions in an easy-to-understand format. By @scstanel #InterstitialLungDisease

ID: 1750616267076046848

linkhttps://www.youtube.com/@InterstitialLungDisease calendar_today25-01-2024 20:27:17

489 Tweet

479 Takipçi

293 Takip Edilen

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

Lots of companies, both large and small, as well as most large universities around the world are working on treatments for #ILD and pulmonary fibrosis. It's actually fascinating to see this work happening, how people from all over the world meet and work together to discuss the

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

54 - Is a CT scan necessary to detect Pulmonary Fibrosis? youtu.be/8aesObW1RFA An overview of why a chest CT scan is required in most cases of interstitial lung disease / pulmonary fibrosis. The CT scan is a radiological investigation which offers a 3D picture of the lung

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

If you are a Respiratory doctor / pulmonologist - Do you routinely ask your patients with ILD/pulmonary fibrosis about their family history?

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

If you're a patient suffering from a RARE lung condition would you agree to share details about your condition to help research? And under which circumstances? (Pls comment if 'Other'). Context: it is often very difficult for researchers to find suitable data to study rare

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

Rare, but not "rare" ! Limited awareness of Interstitial Lung Diseases (ILDs) likely leads to MANY missed diagnoses. Sept 24 is #pulmonaryfibrosis #awareness month!

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

Good summary slide on current understanding of pathogenic genomic variants in familial #pulmonaryfibrosis - the problem is that we need to do more testing to better understand what is pathogenic (i.e. causing disease) vs. benign (i.e. normal genetic differences)

Interstitial Lung Disease Info (@ildinfo) 's Twitter Profile Photo

Wonderful project presented by the #ILD specialist nursing team in Manchester, who have so much experience to share regarding real-life management of pulmonary fibrosis. Great team (!) and happy to see their work showcased at the #ERSCongress