Childhood brain cancer is one of the most devastating forms of cancer, yet it receives a fraction of the funding it deserves. September is our chance to demand more research & funding.Share this post with your friends & #inflateawareness during #ChildhoodCancerAwarenessMonth

Rare or Not Rare? We don't think 100,000 kids dying yearly worldwide from camcer should be considered "Rare." We need to consider it a PRIORITY and fund the research as if it were a REAL priority. CAC2 Happy Quail Lisa (Loehr)Spaulding Susannah Koontz, PharmD, BCOP 🎗 #StopTalkingTakeAction

Families in our #ChildhoodCancer community honor the Mothers, Fathers, Daughters, and Sons who perished on 911. We will never forget...

Day 12🎗️ #ChildhoodCancerAwarenessMonth There are parents who've seen their child suffer with cancer and then turn that sorrow into life-saving works for all children. These heroes get 0 recognition. But, recognition doesn't matter. Their child's life matters. #ChildhoodCancer

INVEST IN RESEARCH that will reduce our dependency on chemotherapy to treat #ChildhoodCancer. Survivorship is increasing but so are those who have late effects from treatments. Today the lifespan of survivors is 57years while unaffected adults is 78 CAC2 Happy Quail

Day 13🎗️ #ChildhoodCancerAwarenessMonth "The chemotherapy, my lifesaver, was just as scary as my disease. I had a choice, but I didn't have a choice. I could slowly suffocate to death, or take on the possible deadly effects of chemo." #ChildhoodCancer 🎗️ #Survivor 🧡

Day 14🎗️ #ChildhoodCancerAwarenessMonth "I sat in the bathtub slumped over, the hot water gushing out, making my head pound. The chills commanded my entire body, making me travel from Antarctica to the Mojave Desert in a matter of seconds." #ChildhoodCancer🎗️ #Survivor 🧡

Day 15🎗️ #ChildhoodCancerAwarenessMonth Do you know who the most powerful #ChildhoodCancer advocates are on Capitol Hill? Survivors Bereaved parents Families advocating together You can make a difference. A great big, life-saving difference. Photo: 8 years after treatment🧡

Day 15🎗️ #ChildhoodCancerAwarenessMonth There are children who, after being diagnosed with #ChildhoodCancer , become gifted speakers for all children with cancer. Natasha Gould is one🧡 Her wise words touched hearts. Tragically, she's no longer with us, but her voice still is.

Day 17🎗 #ChildhoodCancerAwarenessMonth A breathtaking sight is visible every September in WA DC. This never-ending wall honors children who’ve faced cancer. Their names Their faces Their diagnosis Until the demise of #ChildhoodCancer , may it always take our breath away. 🎗

Worldwide, EVERYDAY, 1095 children are diagnosed. Instead of calling kids' cancer "rare," everyone should call it a "priority." Call attention to #ChildhoodCancer by using facts like this. Plenty are available to use here: cac2.org/.../aware.../c… CAC2 Happy Quail

#Drugshortages are impacting thousands of individuals w/ cancer, including individuals with cancer in your state @repkiggans. Time is not on our side. Please work with your colleagues to mitigate these shortages. #ASCOAdvocacy #ChildhoodCancer Happy Quail CAC2

#Drugshortages are impacting thousands of individuals w/ cancer, including individuals with cancer in your state @markwarner. Time is not on our side. Please work with your colleagues to mitigate these shortages. #ASCOAdvocacy #ChildhoodCancer CAC2

#Drugshortages are impacting thousands of children w/ cancer, including individuals with cancer in your state @sentimkaine. Time is not on our side. Please work with your colleagues to mitigate these shortages. #ASCOAdvocacy #ChildhoodCancer CAC2 Susannah Koontz, PharmD, BCOP 🎗 Mary lckc 🎗️

Day 18🎗 #ChildhoodCancerAwarenessMonth “I sat in yet another doctor’s office. On the wall hung a bulletin board, with dozens of pictures of their patients. Their innocent eyes pierced my heart, and I, at last, noticed they were all bald.” #ChildhoodCancer #Survivor

UPDATE ON HOUSE E&C MARKUP OF PRV AND GIVE KIDS A CHANCE ACT Dear members of the pediatric cancer and pediatric rare disease community: At 10:00 am today, September 18, 2024, the House of Representatives Energy and Commerce Committee met to markup 16 bills, including the Give

CONGRESS JUST ADVANCED THE GIVE KIDS A CHANCE ACT, INCLUDING THE PRV REAUTHORIZATION! With a unanimous bipartisan vote of 43-0, the U.S. House of Representatives Energy & Commerce Committee just passed the Give Kids a Chance Act, HR 3433, a pediatric drug development bill that

This is a big step for #ChildhoodCancer BUT we need your help, we can't let it fail when we are so close. Please see Nancy's post and follow the next steps we MUST get this done. CAC2 Happy Quail Nancy Goodman Lisa (Loehr)Spaulding Jan Halash 🌻💙💛 Judy Fulmer Susannah Koontz, PharmD, BCOP 🎗

Thank You Rep. Anna G. Eshoo, Michael McCaul, Chair @CathyMcMorris & RM Rep. Frank Pallone. Next steps are a House Floor vote & inclusion of the Creating Hope Reauthorization Act in the September CR. #ChildhoodCancer Nancy Goodman CAC2 Happy Quail Lisa (Loehr)Spaulding Susannah Koontz, PharmD, BCOP 🎗

There is UNITY in our #ChildhoodCancer Community! People from all 50 states and DC are registered for this year's CureFest! What's happening today, Saturday and Sunday? Click here for the full schedule of events: curefestusa.org/about CAC2 Happy Quail Lisa (Loehr)Spaulding