Neuro Sjogrens (@neurosjogrens) 's Twitter Profile
Neuro Sjogrens

@neurosjogrens

Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. RT's appreciated, helps spread the word!

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calendar_today25-09-2022 20:12:13

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Outbreak Updates (@outbreakupdates) 's Twitter Profile Photo

Long COVID patients’ brain activation is suppressed during walking and severer symptoms lead to stronger suppression link.springer.com/article/10.100…

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

There's some pushback to getting a new updated Sjogrens paradigms into The Field of Medicine. Man, I wonder what the pushback might be to a partial dethroning DNA as the sole carrier of heritable diseases? Injected amyloid led to progeny to have same amyloidosis. + more! ⬇️

Nick #RespiratorsFilterPathogens😷 Anderegg (@nickanderegg) 's Twitter Profile Photo

NEW PREPRINT! Another study about ABNORMAL BLOOD CLOTTING related to SARS-CoV-2, but unlike the others I've covered, this isn't related to the spike protein. Turns out that Mpro, a viral protease [pro-tee-ace], can START the cascade. Thread (written for everybody!)... 1/many

NEW PREPRINT! Another study about ABNORMAL BLOOD CLOTTING related to SARS-CoV-2, but unlike the others I've covered, this isn't related to the spike protein.

Turns out that Mpro, a viral protease [pro-tee-ace], can START the cascade.

Thread (written for everybody!)...

1/many
thetranscendedman (@atranscendedman) 's Twitter Profile Photo

Study in Catalonia, Spain, with 1,083 participants found severe COVID-19 and #longCOVID, especially with neuropsychiatric symptoms, linked to higher antibody responses to viruses like Epstein-Barr and Varicella Zoster. onlinelibrary.wiley.com/doi/10.1002/jm…

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Cool tech! New programming of old MRI tech allows visualization of brain neuroinflammation by recognizing the shape of brain glial cells. I'm curious what strides forward may come from visualizing the inflammation in loads of diseases (including Sjogrens.)

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

In the event its not obvious, a Systemic disease like Sjogrens demands systemic criteria. Farting around with just the salivary & tear glands & a nonspecific antibody/SSA as criteria is harmful to the large % of Sjogrens patients the research classification criteria exclude.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

👏👏👏 Bravo! Bring disciplines together at conferences! We need this done at Sjogrens conferences w Neuro. Neuro & Rheum need to educate one another about what to look for in ea other's specialties. Most Rheums & Neuro's spend no time in the other's clinic in training.

Elizabeth Land Quant (@elizabethlquant) 's Twitter Profile Photo

Neuro Sjogrens I have Sjögren’s, CNS Vasculitis, and MG. I was “hot potatoed” between neuro and Rheum for decades before getting my correct diagnoses. We NEED collaboration between neuro and rheumatology!

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

A remarkably high %age of severe covid cases had co-infection (at least 70%-see tweet.) But lets not lose sight of the fact that even mild covid infections are all too frequently assoc w strep throat, shingles, EBV reactivation et al. Covid isn't a cold. Colds dont do this.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Sadly, clinicians have been bamboozled about Sjogrens (by med school ed & by @ACR) & now they are now bamboozling patients about the Sjogrens disease attacking their own body. Per Carl Sagan quote below, its a hard path to find one's way out of (Sjogrens) bamboozlement.

Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Fantastic article re obstacles to Sjogrens education/research/care, invitation for researchers to look into researching Sjogrens & for those with Sjogrens to consider volunteering in research.

Bateman Horne Center (@batemanhorne) 's Twitter Profile Photo

The Severe ME Caregiving webinar will focus on navigating health systems, role changes, daily care, caregiver mental health, and maintaining healthy relationships. Register bit.ly/3Xa4IyW #SevereME #MECFS #caregiving #LongCOVID #MyalgicEncephalomyelitis

The Severe ME Caregiving webinar will focus on navigating health systems, role changes, daily care, caregiver mental health, and maintaining healthy relationships.

Register bit.ly/3Xa4IyW

#SevereME #MECFS #caregiving #LongCOVID #MyalgicEncephalomyelitis
Neuro Sjogrens (@neurosjogrens) 's Twitter Profile Photo

Wow! A simple dye allows one to see thru skin & visualize tissues such as muscle & even brain blood flow in research rodents! 🤯x.com/JuliaBauman2/s…