If you are an allied health professional, researcher, clinician, or nurse who is looking for the latest research updates on Allied Health in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), this virtual event is for you! ehlers-danlos.com/events/allied-…

August is Gastroparesis Awareness Month. Gastroparesis, also called delayed gastric emptying, is a motility disorder. Gastrointestinal motility is the movement of food through the digestive system. Problems with this process are known as dysmotility. ⁠ ⁠ Gastroparesis occurs

Ever feel dismissed, overwhelmed, or forgetful during doctor's appointments? Swipe to learn how Guava's Visit Prep can help you feel prepared and empowered at your next appointment 💚⁠ ⁠The free comprehensive @Guavahealthinc app helps you manage your Ehlers-Danlos syndrome or

Registration is now open! ehlers-danlos.com/eds-echo-funda…

Shawn is 32 years old and works as a Government Relations Officer for a non-profit in Vancouver, British Columbia. He enjoys singing as well as traveling the world in his leisure time. He was diagnosed with EDS last year.⁠ ⁠ 🔵What symptoms of gastroparesis do you experience?⁠

Kyphoscoliotic Ehlers-Danlos syndrome (kEDS) is a heritable connective tissue disorder that causes low muscle tone, early-onset kyphoscoliosis, and joint hypermobility. People with kEDS also have an increased risk of life-threatening arterial dissection and rupture. kEDS is an

Happy International Dog Day! Meet The Ehlers-Danlos Society team dogs! If you're a dog lover, join us today and share a picture of your dog and why you love them so much 🐾🐶 Dogs can also have Ehlers-Danlos syndrome and we celebrate them today too! #dogs #dogsofinstagram

Shoulder symptoms in hEDS/HSD are common yet significant gaps in knowledge remain. This NEW paper reviews what we currently know about non-surgical interventions like exercise, taping and compression garments. sciencedirect.com/science/articl… First publication for Anna Higo's PhD 👏

Ahead of the Paralympics, Grace Nuhfer of U.S. Paralympics Swimming shares how her and her teammates are preparing for competition in Paris. #Paralympics #Paris2024

Please join us in sending a HUGE congratulations to grace nuhfer 💗, who has won a silver medal for Team USA at the Paris #Paralympics2024 in the 100m butterfly S13! Grace is scheduled to compete in three other races in the Paralympics: the 100 backstroke today, the 50 freestyle

The project page about Anna Higo's PhD on the hypermobile shoulder has been updated! A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! hedstogether.com/projects/suppo… Anna Higo

Congratulations Allysa Seely on winning Bronze in the triathlon at the Paris Paralympic Games for Team USA! ⁠ Allysa did her first triathlon in 2008 and fell in love with the sport. But not long after began to experience neurological symptoms of dizziness, headaches, passing

Congratulations Piers Gilliver @paralympicsgb on an incredible silver medal win in the men’s sabre category A at the Paris #Paralympics2024 !🤺⁠ ⁠ 29-year-old Piers, who has #EhlersDanlosSyndrome (EDS), started his fencing career in 2010. Piers made history by winning the epee