CharBearKeepsDancing (@charbeardancing) 's Twitter Profile
CharBearKeepsDancing

@charbeardancing

A bilingual book for families and advocates for Infantile Spasms justgiving.com/campaign/CharB…

ID: 1641106319619903490

calendar_today29-03-2023 15:53:44

45 Tweet

115 Followers

179 Following

Alissa D’Gama (@alissadgama) 's Twitter Profile Photo

Thrilled to share our paper in The Lancet Neurology demonstrating the feasibility, diagnostic yield, and clinical utility of rapid genome sequencing in infantile epilepsy, with many thanks to the families who participated thelancet.com/journals/laneu…

Epilepsia (@epilepsiajourn) 's Twitter Profile Photo

Interictal High-Frequency Oscillations, #Spikes, and Connectivity Profiles: a Fingerprint of Epileptogenic Brain Pathologies doi.org/10.1111/epi.17… #hippocampalsclerosis #focalcorticaldysplasia #gliosis #highfrequencyoscillations #epilepsy #ILAE ILAE Wiley Neuro

Interictal High-Frequency Oscillations, #Spikes, and Connectivity Profiles: a Fingerprint of Epileptogenic Brain Pathologies
doi.org/10.1111/epi.17…

#hippocampalsclerosis #focalcorticaldysplasia #gliosis #highfrequencyoscillations #epilepsy #ILAE  <a href="/IlaeWeb/">ILAE</a> <a href="/WileyNeuro/">Wiley Neuro</a>
Mickie's Miracles (@mickiesmiracles) 's Twitter Profile Photo

Are you feeling lost and overwhelmed, not knowing where to turn as your infant or child suffers from seizures? You're not alone. At Mickie's Miracles, we're here to guide you every step of the way. We believe no parent should navigate the complex world of epilepsy alone.

Are you feeling lost and overwhelmed, not knowing where to turn as your infant or child suffers from seizures? You're not alone. At Mickie's Miracles, we're here to guide you every step of the way. We believe no parent should navigate the complex world of epilepsy alone.
CharBearKeepsDancing (@charbeardancing) 's Twitter Profile Photo

Our website is open for preorders in English!! charbearkeepsdancing.com Spanish and French will be available in the next week! Did you know that Eloísa was the first woman physician practicing in South America (Chile)? #WomenInMedicine Follow us on IG!

Our website is open for preorders in English!! charbearkeepsdancing.com 

Spanish and French will be available in the next week! 

Did you know that Eloísa was the first woman physician practicing in South America (Chile)? #WomenInMedicine 

Follow us on IG!
Pediatric Epilepsy Surgery Alliance (@pesalliance) 's Twitter Profile Photo

📣 A generous donor and dad in our community has committed to match up to $10,000 in donations to our Give for Hope™ campaign to help get more kids to #epilepsysurgery evaluation without the financial barriers of travel costs. Give the gift of hope here: bit.ly/48mKci6

📣 A generous donor and dad in our community has committed to match up to $10,000 in donations to our Give for Hope™ campaign to help get more kids to #epilepsysurgery evaluation without the financial barriers of travel costs.

Give the gift of hope here: bit.ly/48mKci6
Juan F. Cabello (@jf_cabello) 's Twitter Profile Photo

El Ministerio de Desarrollo Social y Familia publica una "recomendación favorable" de la ampliación del Programa de Pesquisa neonatal de 2 a 26 condiciones. Esperemos que pueda estar incluido en el #Presupuesto2024 Ximena Aguilera INTA Sopnia Chile Sociedad Chilena de Pediatría …les.ministeriodesarrollosocial.gob.cl/pdf/2023/PRG20…

Stéphane Auvin (@stephane_auvin) 's Twitter Profile Photo

Levetiracetam vs Lamotrigine as First-Line Antiseizure Medication in Female Patients With Idiopathic Generalized Epilepsy: a different effect in JME between the 2 ASM while no difference for JAE and EwGTCA ⁦JAMA Neurology⁩ jamanetwork.com/journals/jaman…

Pediatric Epilepsy Surgery Alliance (@pesalliance) 's Twitter Profile Photo

< 10% of pediatric #epilepsysurgery cases in U.S. are performed on #Latino children. We're breaking down this disparity with our new video series Charlemos Sobre Cirugía Para Epilepsia. TY paedsepileptologist for joining us and LivaNova for your support 🎥bit.ly/45dBDUg

Pediatric Epilepsy Surgery Alliance (@pesalliance) 's Twitter Profile Photo

Stuck in an office space without enough flair? Swing by our booth at #CNSAM and grab our free buttons! Help raise awareness with your colleagues about #epilepsysurgery. stopthedelay.org

Hope for HIE ☀️ (@hopeforhie) 's Twitter Profile Photo

The Power of Community: ➡️ #NICU social worker reaches out to ask for resources in Haitian Creole. ➡️ Within 3 hours of our #SocialWorker asking if we have a parent who can help, we have a volunteer to help translate our materials & speak to the family. ➡️ New resource created

CharBearKeepsDancing (@charbeardancing) 's Twitter Profile Photo

Do you have name suggestions? We are thinking Waves, the Brave Buddy Bear. This is the mock up! This is a parent-driven initiative to create an EEG buddy. We hope they will make the tests a little less scary. ❤️❤️❤️ CharBearKeepsDancing.com

Do you have name suggestions? We are thinking Waves, the Brave Buddy Bear. This is the mock up!

This is a parent-driven initiative to create an EEG buddy.  We hope they will make the tests a little less scary. ❤️❤️❤️
CharBearKeepsDancing.com
Christina Briscoe Abath (@briscoeabath) 's Twitter Profile Photo

Infantile spasms are often easy to miss! Check out our learning module for primary care providers on how to recognize them, triage, and care inequities. learn.openpediatrics.org/learn/course/i… (free) #ISAW2023 #infantilespasms OPENPediatrics Boston Children's

DEE-P Connections (@dee_pconnection) 's Twitter Profile Photo

What Does Better Look Like? Our Inchstone Project partnered with FamilieSCN2A to ask what meaningful changes demonstrate improved quality of life & to document what matters to those with severe DEEs and their families. bit.ly/47OdgP0 Thanks to the #SCN2A families!

Pediatric Epilepsy Surgery Alliance (@pesalliance) 's Twitter Profile Photo

✅ 88 participants ✅ 69% show positive response to treatment with thalamic stimulation (RNS or DBS) No significant 🔗between treatment response and age, target area, modality, or laterality. 📊 We need more data! #epilepsy #neurmodulation

Pediatric Epilepsy Surgery Alliance (@pesalliance) 's Twitter Profile Photo

Your families need help navigating the maze of resources available to them. That's why we have our Almost Everything List. 150+ pages of almost everything! epilepsysurgeryalliance.org/portfolio-item…