In 2014, I gave up breathing for lent... I'm grateful for resurrecting technology like the ventilator that has allowed me to have glorious moments like this with our family. It ain't easy, but it's awesome. Live the adventure. Thanks Kyle!

My favorite baseball player got new cleats today and promptly personalized them. ❤️⚾️ #4ALS #LouGehrigDay #SnowyStrong #EndALS

Are you a skilled programmer with a creative mind, collaborative nature and a passion for hockey? If so, we’d encourage you to apply to join the Calgary Flames Hockey R&D team. recruiting.ultipro.ca/CAL5002/JobBoa…

4 years and 51 spinal injections later my experimental drug is no longer experimental. So grateful, proud & relieved to be a part of bringing the first-ever genetically targeted ALS drug to market. Thank you ⁦U.S. FDA⁩ for giving hope to the hopeless. fda.gov/drugs/news-eve…

The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen. If you have any questions or have not yet had testing, Synapticure is here for you. Visit Synapticure.com to learn more.

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Mikael and Frida Backlund have been long-time supporters of the ALS Society of Alberta, working with them on a variety of initiatives and they have been personally responsible for raising over $400,000 for the non-profit. Chris Snow shares why this work is so important ❤️

Mikael and Frida in partnership with Alberta Apparel are proud to announce a donation of $19,500 to ALS Society of AB! The funds raised will support the Equipment Loan Program, providing much-needed equipment free of charge to individuals and families living with and affected by ALS ❤️

As MLB recognizes Lou Gehrig Day today, a look at the relationship formed between Chris Sale and ALS survivor Chris Snow. mlb.com/redsox/news/ch…

We get to watch our favorite baseball player on Lou Gehrig Day. Go Foothills Expos, go. ❤️⚾️ #LouGehrigDay #4ALS #SnowyStrong #EndALS

The Calgary Flames have hired Kitchener Rangers Video Coach and Senior Developer Hendrix Hanes in the role of Developer and Data Scientist. DETAILS 📰: bit.ly/3N4RDR9

NHL Draft 2023 made for the guy in the middle. ❤️

Huge thanks to the Calgary Flames development staff and all of the players. Now, let’s go get our names on THE Cup! 👊

Guy on the right inspired my career. Guy on the left inspires me every day. Steve Gleason - "Live Impossible" MLB #HRDerby #EndALS

I could say so many things about this moment but Steve Gleason - "Live Impossible" says it best — this life ain’t easy, but it sure is awesome. ❤️

Had breakfast at 3 yesterday morning, sh#t & showered at 330 to catch a 7am flight to Seattle. Got to hang with the Snows, our friends living this crazy wonderful Life. We got to see our kids shag balls in the home run derby! All possible bc of our friends at MLB

The most incredible couple days with the most incredible people. This disease is the worst; the people fighting it — those who have it, their caregivers and families and those who are working to help end it — are just the best. ❤️ #EndALS #SnowyStrong #TeamGleason #NoWhiteFlags