Hey conference organizers: If you're serious about showcasing #PatientEngagement, be prepared to have #PatientPartner presenters/co-presenters. This may have budget or planning implications. And it shows how serious you are about walking the talk. #PPI #ConsumerInvolvement

OOf. Nothing quite prepares you for hearing the voice of a friend years after she was taken too soon. Feels like a gut-punch but also a little bit wonderful to hear the voice of Sandra Spivey in an online learning module.💗 #bcsm #patientadvocacy

our books are still working

THIS! In healthcare and beyond. Organizations invest time and money in their priorities. If there is dissonance in what organizations say they care about versus what they fund, the money speaks for itself.

Agree with "every adv cancer patient should get HER2 testing" Just compelled to add that T-DXd is not without SIGNIFICANT side effects. Hoping we can also take a good look at appropriate dosing & #SuppOnc with these treatments! #bcsm #gyncsm #lcsm #gyncsm #MakeCancerLessShitty

"Turns out all nausea is mild until it’s your nausea." "Manageable and Tolerable" is a great buzzphrase but hits different with patients #SuppOnc #MakeCancerLessShitty

Making history while making dinner! Normally getting kicked off Zoom during a meeting would annoy the hell out of me but today? #YesWeKam TY Andrea Gibson "No one is coming to protect us (women). We protect ourselves and we protect each other," ~Glennon Doyle

Eleven years in patient advocacy has taught me a lot about listening, leading, and turning hope into action. All my energy has gone into changing the narrative in cancer but, for the next 102 days I have GOT to focus on doing my part to protect women & girls. You have been warned

#MakeCancerLessShitty What's your cancer story? We'd love to hear it, share it, and send you a #MakeCancerLessShitty t-shirt. Help us spread the word that, while we are grateful for treatments, not all side effects are actually "manageable & tolerable" makecancerlessshitty.com/patient-stories

For all those interested in #healthequity - you do know that achieving equity in health requires social and educational shifts, right? Well, now you do. And these shifts require policy change and enforcement. Voting is the path to policy change. #VOTE

Altitude 💗

Eager to have an advocate for access to quality, affordable health care who understands, from a very personal co-survivor perspective, the realities of cancer including #FinancialToxicity Fixing the treatment cost issues will definitely help to #MakeCancerLessShitty cc: #lcsm

Hey there #btsm community - a friend's brother is dealing with glioblastoma & he's made a few YouTube shorts about his experiences. Hoping some of these may be enlightening and helpful. Here's one with the Optune device #GBM cc: Dr. rer. pol.Sabine Schwab Liz Salmi youtube.com/shorts/OjKkz5P…

"Minor" "Manageable" "Tolerable" are terms used by people who DON'T have cancer to describe the side effects of treatment. But all the 'minor' things add up. We need to #MakeCancerLessShitty to help people maintain their quality of life while dealing with cancer #SuppOnc #SurvOnc

Heading home after a fabulous visit with collaborators & friends. Also, my first ever visit to MD Anderson Cancer Center 🎉 Thank you, Houston, for absolutely everything EXCEPT that heat index 🥵

On our feet in the living room too 💕 No longer in a hotel, so watching #DNC2024 on laptops but it is just as absolutely fricking awesome this way #AllTheFeels for a future where we have bodily autonomy, smart gun regulation, and the protections to openly love who we love

THIS! So much this. "Don’t ask me to hide the parts that make you uncomfortable" Hugs to you Chelsey 💗

What is/was your worst cancer treatment-related side effect? There are MANY more so, if yours isn't listed, please write it in. Doesn't have to be physical. Emotional, mental, sexual, and financial issues are REAL side effects of cancer too! #MakeCancerLessShitty

It's a day that ends in 'y' so US oncologists are tied up on phones & patients are waiting for treatments because of a crappy #PriorAuth system. Just contacted my lawmakers about making changes & protecting patients' timely access to care. #ASCOAdvocacy asco.quorum.us/campaign/47459