I'm sorry to say that if your #LongCovid develops into #MECFS, no one is coming to save you. It's very unlikely you'll even see a doctor who believes you're unwell. Be prepared for your life to change utterly. Do everything you can to avoid getting it. #r4today #MedTwitter

"In 2004, we documented that at least half of annual household income was lost when #MECFS took a person’s career. We are seeing history repeat itself with #LongCOVID, affecting hundreds of thousands more with devasting human & economic impact," said S. Vernon, PhD & Research Dir

A Vlad's ME Diary on what it's like to get covid as a patient with ME. With emotional tips for ME patients. But of interest to anyone interested in ME or in my health behind the scenes of my public work. #pwME youtube.com/watch?v=7ukGA3…

theyworkforyou.com/wrans/?id=2024… Yet another non-answer from a government minister on #mecfs. Just like the answers under the old government. @danielzeichner we were hoping things would improve?

Dr Claire Taylor has got the job of Specialty Doctor for NHS Doncaster with a fantastic team in the Long covid clinic. (Alongside her own work in Scotland) ⭐️⭐️⭐️👏🏻

I made this short (90 sec) video of me out of breath without physical activity or mental exertion. Something I believe a lot of #MECFS and #LongCovid patients experience. I hope to make more videos about everyday life experiences with #SevereMECFS. ❤️ youtu.be/wIjAXhNnbnk?si…

I couldn't agree more. The parallels between the Grenfell inquiry & the neglect of pwME are striking

Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc

#mecfs24 Ron Davis. Initiating discussion of how to integrate the various theories to really explain this disease. Connect our theories.

#mecfs24 Ron Phair leading discussion amongst the presenters.

This feels fundamentally wrong.

See you next month!

My dreams for my daughter were of watching her live a fabulously big life. She planned to backpack Morocco. Dive several oceans. Visit Galapagos. Study in Amsterdam (she’s half Dutch). See her fall in love, with people and the world. Build wisdom. She wants to be a doctor. She

Jess By the time they do it will be too late. Generations of damaged bodies. I’d say each clinic I do at least half of my patients have been recently Reinfected with Covid. What other disease do we keep giving more to?If it was TB it would be seen as outrageous to keep getting it.

Covid-19 was presented as a one and done infection, that ‘only’ killed the vulnerable, that didn’t harm kids, that was spread by droplets not air. That vaccines would prevent. Now NONE of the above are true, we are floundering in denial with no plan. Covid is not over.

Sending healthcare workers onto the front line with no protection is like sending your infantry into battle with no weapons. I do believe there is a level of trauma in healthcare workers where they have switched off because they survived. Many didn’t. We don’t even know how many

The "working group 2024" #mecfs24 is not a continuation of any other meeting, this is a new thing, organized explicitly for #MECFS researchers around the world to come together and share all of their ideas so that they can try to make them line up into one theory that makes

I am thrilled to report that my local MP was very understanding & supportive. 🌟 Luke Charters MP will join the APPG for ME to advocate for @NHS that’s #ThereForME 🌟 Thanks to Luke for standing up for #pwME & #LongCovid ME Association Action for M.E. EndMalnutritioninME

It was so great to chat with Jake Briggs on his Keep Rolling podcast. Jake went DEEP with his research and we had a great convo. Logitech G: let’s get some adaptive esports action happening in the southern hemisphere!!!

Why are investigators studying whether exercise "causes" PEM in a cohort of Gulf War Illness patients who mostly do not experience PEM? It's hard to understand how this got published in this form. virology.ws/2024/09/07/tri…