From someone who tried to ask questions in #moonshot today, a person w/ legislative experience: "What I saw in that space today is disrespect. Disrespect for LCAP, disrespect for people outside of America. This is wrong." I agree. Stop gatekepeing. Do better. #LongCovidMoonshot

“I felt compelled to act today because the government continues gatekeeping the patient community to curate a “moonshot” story that minimizes Long Covid demands,” said Roberts. longcovidactionproject.com/long-covid-act… Grace Wade Hallie Levine Heath Haussamen Irene Wright Jackie Fortiér

Tell Bernie Sanders that $1B/yr:10yrs is not sufficient. ~$33/yr PP is not enough for an illness Dr. Monica M. Bertagnolli confirmed (per 100s of studies proving it) has #ViralPersistence. LC need #AntiviralsNow & comprehensive legislation to #HELPHEALUS ✊🏼 actionnetwork.org/letters/tell-b…

Serious people doing serious work. Seriously ill people doing serious work. SERIOUS people will read this, absorb it, support it, & promote it. Let's get serious.

Cristina🍉 We need to ask for what we deserve. The misinformation campaign has killed & disabled millions. We want treatments now. This impacts ALL of us. Pls sign.

Time to sign again in support of the HEAL legislation! The letter has been updated and will be sent to President Biden, Congress, and federal agencies. #HelpHEALus #LongCOVID actionnetwork.org/letters/tell-b…

Moonshot is a kill shot & betrays Long Covid grassroots activism. The bill targets “symptoms” leaving sus Tx ideas like “deep breathing” as options for $. Bernie’s given us a hospice approach to Long Covid instead of etiological science to identify/measure/treat LC. Support HEAL

Our full statement sent to Sick Times: “Bernie Sanders Moonshot fails to adequately fund etiological science for Long Covid research, supporting IACC disease conflation over proven SARS-CoV-2 viral persistence. LCAP withholds support for Moonshot in favor of more comprehensive

No one serious about AIDS would draft legislation that failed to mention HIV, so why does Bernie Sanders Long Covid Moonshot bill, a "comprehensive Federal response to Long COVID," omit all of the following words: ❌ SARS-CoV-2 ❌ COVID-19 ❌ Virus ❌ Pathogen 🤔🤔🤔

I'm writing about The Long Covid Research Moonshot Act. What are your thoughts? A good start? Problems? Let me know.

Nevertheless she persisted…that is what I want to be remembered as. I did not give up. I was not silenced. I WILL NOT ACCEPT crumbs. I will fight for what is right. Vice President Kamala Harris Governor Tim Walz Bernie Sanders Do better. A lot better. okdoomer.io/the-long-covid…

WOWOWOW have been a HUGE fan of ⁦Jessica Wildfire⁩ other pieces and this one is just as amazing. Please read and share if you care about the future of Long Covid treatments and advocacy. Great job Jessica! okdoomer.io/the-long-covid…

The Long Covid Moonshot « The burden shouldn't fall on us to tiptoe around, stroke egos, and accept legislation that falls short of addressing a global emergency. Our job is to tell those in power what needs to happen » okdoomer.io/the-long-covid…

Don't settle for what you get. Fight for what you deserve. okdoomer.io/the-long-covid…

“We deserve better.” As someone nearing 4 years of Long COVID Jessica Wildfire reinforces my worth along with 25M+ other Americans. “The point of constructive criticism isn't to make people feel good. It's to make something better and get things done.” okdoomer.io/the-long-covid…

If you have Long Covid you should be able to get legislation equal to HIV/AIDS at $28B annually covering research, social support & international aid when LC grassroots activists did the work for you actionnetwork.org/letters/tell-b… No bureaucracy. It’s that simple. #HELPHEALUS

People no longer earn a weekly wage due to Long Covid. U.S. Long Covid costs 📈 are $3.7T over 5yrs - economist David Cutler stated LC needs legislation = to HIV/AIDS at $28B annually. Grassroots LC activists responded w/ HEAL. Where is your economic policy change in Moonshot?

Here is a masking study that's based on my recent forecast that was through January 8th. These are various levels of masking compliance using N95's with a 78% prevention rate. Do you think we should mask more? MAPS thinks so. Even if we could get to 15% it'd make a big difference

What if their motive is greed? Perhaps the economic press has crunched the numbers of potential economic losses, amplified by the direct costs of caring for those injured? What if paying for sick leave saves money in the long run? x.com/JoshuaPribanic…

some of us have been in serious decline for literally years and im glad our own community is finally noticing but we've been trying to say this is coming for years and kept getting patronized and told its not persistent or progressive and well here we are