Richard Vallée
@richardvallee
I play language. Mostly irreverent. Debugger.
AI, global warming, integrity, healthcare & science.
Chronically ill. #MillionsMissing #pwME #MEcfs
ID: 22319012
01-03-2009 01:35:48
10,10K Tweet
3,3K Followers
4,4K Following
Dear President Levin, The speakers at the Stanford Medicine conference claim to have been censored. You are giving the intro & it’s your obligation to amplifying what they said. You should reject censorship. I can help. My latest for ScienceBasedMed sciencebasedmedicine.org/nocensorship/
The most harm caused to ME patients has been by cognitive-behavioural treatments like CBT + graded exercise therapy (GET), recommended by GPs. Even now when GET is explicitly warned against by NICE guidelines, some GPs insist on prescribing it. Please let The Telegraph know.
ME Association The Telegraph Richard Vallée Unfortunately, conventional medicine’s habit of either ignoring or psychologising post/persistent infection illness has created a vacuum. It allows the likes of highly controversial but scientifically unproven treatments like the lightning process or acuseeds to flourish.
Todd Davenport Main purpose of long covid clinics seems to be creating the illusion that treatments exist. But the deception is directed at the healthy public. Patients already know these clinics are a bad joke.
We are recruiting volunteers to join our policy-driven advocacy efforts, particularly those well versed in US government & policy. Our team is made of 50+ people with #LongCovid & we accommodate all access needs. Please circulate widely to your networks! docs.google.com/document/d/1l2…