The #TalkingPF webinar is now available to watch on our website! 💻 So, for those of you who couldn't attend on 30 November, or could only join for part of it, you can now watch the event on-demand. Just click the link below ⬇️ actionpf.org/information-an…

"I can't thank them enough" - 9 years after being diagnosed with #IPF, 62-year-old Ron Flewett (Ron Flewett) received a life-saving lung transplant this autumn. A gift for which he feels immeasurable gratitude. Read more about Ron's journey here: tinyurl.com/Rontransplant

With 6 days until Christmas we are celebrating the 136 applications we were able to fund this year for mobility aids 🥳 Please get in touch if you think we can help you or a loved one 💙 Call 01543 442 191 or email [email protected] #pulmonaryfibrosis

Congratulations to all the NHS staff who have been recognised for their work in the New Year Honours list. Colleagues including nurses, doctors and surgeons have been awarded for their skill, compassion and dedication. Find out more. england.nhs.uk/2023/12/nhs-st…

🙏#ILD community for completing our survey & all co-authors Exeter Interstitial Lung Disease Team 💙 John Hurst Joanna Porter Anna Duckworth Especially Malik Althobiani | مالك Becky S St George's ILD Support Group💙 & JD for a joyful collaboration. We report on Utility & acceptability of digital devices #ILD dx.plos.org/10.1371/journa…

Post-transplant life and the 'big C' Date: Monday 12 February Time: 1pm to 2pm. Join us for the next in the series of webinars for heart and lung transplant patients, their families and carers. Select the link below to register rbht.nhs.uk/about-us/becom…

Our charity offers support with mobility aids, and we fund several people each and every week. It's wonderful to hear how we make such a difference to patients and their families lives. We funded a mobility scooter for Linda recently and received this lovely feedback 💙

If you can't make it to Castelldefels or don't want to make the journey - no problem! You can also attend #PFSUMMIT24, which is designed as a hybrid event, virtually and have the same experience as on site! Click here to register: tinyurl.com/2024PFS

We value and appreciate all feedback we receive. It is wonderful to know what a difference our charity makes to people's lives 💙 Get in touch today to see if we can help you or a loved one. Contact us today by phone call or email: [email protected] 💻 01543 442 191 ☎️

The REMOTE-ILD protocol now available, can't wait to understand more about how integration of remote spirometry can contribute to ILD management! bmjopenrespres.bmj.com/content/11/1/e… patientMpower

Gasping for air every day is exhausting. Taking a few steps & not being able to breathe properly is frightening. 🥺 This is how Pulmonary Fibrosis progresses. It robs you of the ability to breathe & steals your life as you knew it. Its devastating 🥺 Always Raising Awareness 💜

1/ Hot off the press 💥#REMAPILD concept and foundations now published on ThoraxBMJ Result of the effort of so many people! Kudos everyone to push for more efficient research in ILD! Special thanks to Berry Consultants Action for Pulmonary Fibrosis EU-PFF + thorax.bmj.com/content/early/…

Predicting progressive disease and mortality in IPF using automated analysis of CT scans. A massive collaborative effort between NHLI Qureight & AstraZeneca now in press ATS Blue Journal #cureipf atsjournals.org/doi/abs/10.116…

The aim of the Pulmonary Fibrosis Trust is to provide personal support to people affected by Pulmonary Fibrosis, a very debilitating and life-limiting illness.⠀ ⠀ We offer practical, emotional and financial support where there is a need. Contact us today [email protected].

On #WorldSarcoidosisDay, visit the European Lung Foundation information hub & its dedicated page to sarcoidosis, focusing on pulmonary sarcoidosis. The information hub is designed to explain symptoms, diagnosis & treatment. Share the resources with your patients: europeanlung.org/en/information…

🚨NEW REPORT ALERT🚨 #OneVoiceILD and Action for Pulmonary Fibrosis have launched an Optimum Integrated Care Pathway for transforming ILD services. actionpf.org/get-involved/t…

We have #justsponsored Denise Bray, who's fundraising for Action For Pulmonary Fibrosis on JustGiving. Donate now justgiving.com/page/denise-br…

Our chair, John, was grateful to ARNS for the opportunity to speak to respiratory nurses at #ARNS2024 about the challenges of living with IPF and being on the transplant list. Thanks to all the nurses there for their passion for improving patients' lives.

John Conway was a guest speaker at the ARNS Conference in Brighton. He spoke amazingly about a patients perspective: A lived experience of idiopathic pulmonary fibrosis.