The EULAR recommendations for involvement of #PRP in #rheumatology #research have officially been presented by Maarten de Wit 🤝 A big step forward to living #collaborativeresearch With Patient research partners its a win 🏆 for everyone

Brilliant talk by Kate Betteridge!! Kate Betteridge "What I want from my rheumatology services" 🎉❤️😊 #menopause #RA #treatmentoptions #EULAR2024

Results from NRAS - Kate Betteridge Kate Betteridge "What I want from my rheumatology services" 🎉❤️😊 #menopause #RA #treatmentoptions #EULAR2024

Dietary support during the menopause - Kate Betteridge "What I want from my rheumatology services" 🎉❤️😊 #menopause #RA #treatmentoptions #EULAR2024

Dodged COVID for 4 years, only to finally catch it on the plane going home!! ✈️🧫 - Will be self-isolating with 90s kids films if anyone needs me... 📺😅

🌟 Thrilled to have participated in #EULAR2024! Moderated a session on digital rheumatology 🖥️ and spoke about innovative ways to share scientific results 📄. Reconnecting with healthcare pros 🩺, expert patients 🌐, and rheumatologists 🏥 was uplifting. 🚀 #DigitalHealth

Two of our new BSMS #research papers out this month. 1.#emotion #neurodivergence #hypermobility #proprioception 2. #neurodivergence #inflammation #fatigue WATCH THIS SPACE! Thanks Dr Lisa Quadt Sarah Garfinkel Hugo D. Critchley

I was fascinated by this chat with Jessica (BendyBrain: Dr Jessica Eccles). It's so important that we understand the brain/body connection for autistic folk. Do have a listen if you want to learn more (or if you want to hear me overshare about my medical history - again!)

Great piece by Jeremy Gauntlett-Gilbert "The #Chatbot is no more empathic than a fruit fly.... Woebot isn’t here for you, and doesn’t care. It would be reasonable instead to say “this software will always generate personalised text that gives the strong impression of #Empathy, 24/7”" 😂 #AI

Calling paediatric physiotherapists and occupational therapists in the UK to support this important research about upper limb rehabilitation for cerebral palsy ⁦TheAPCP⁩ ⁦UCL Great Ormond Street Institute of Child Health⁩

#Neurodivergence is everyone's business. Investigation by BBC reveals troubling length of #ADHD waiting lists. As chair NDP SIG here is our Royal College of Psychiatrists response tinyurl.com/3z3ww553. Let's join forces with @NHS to find the solution Adrian James. I am featured on

🌟Meet Peter Boyd, a 39-year-old father from Dublin. 🚀Peter shares his personal journey, navigating through life with Fibromyalgia while addressing important aspects of his life. Watch his inspiring story here👉 pulse.ly/85ybrlrc5n @eularyoungPARE Peter Boyd

Honored to be featured in BristolUniPsych Spotlight in #PsychologicalScience! Huge thanks to my amazing colleagues & participants for making our researach possible!❤️😊#SleepWellStudy #WhyWeDoResearch #BehaviourChange #CoCreation #EhlersDanlosSyndrome #HSD #Disability #EDI

The ALPHA alert - Exciting new tool from Elizabeth Evans, Prof Shea Palmer & colleagues at Cardiff University to help with the diagnosis of adult hip dysplasia! ✨ #Hypermobility #HipPain #hipsubluxation #hipdysplasia #snapcracklepop

🌍 Engage with EULAR Communities, which work tirelessly to reduce the impact of rheumatic and musculoskeletal diseases (RMDs) and improve the quality of life for those affected across Europe! Watch 👉 pulse.ly/qv7ys0ez4s #EULAR #eularHPR #eularPARE #eularEMEUNET #eularPAED

Shoulder symptoms in hEDS/HSD are common yet significant gaps in knowledge remain. This NEW paper reviews what we currently know about non-surgical interventions like exercise, taping and compression garments. sciencedirect.com/science/articl… First publication for Anna Higo's PhD 👏

The project page about Anna Higo's PhD on the hypermobile shoulder has been updated! A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! hedstogether.com/projects/suppo… Anna Higo

The hEDS-START team (Dervil Dockrell Kathryn Berg) are engaging with policymakers on the findings of thier report on the lived experiences of those with hypermobile Ehlers-Danlos Syndrome & Hypermobile Spectrum Disorders in Scotland. Read more here: ed.ac.uk/institute-gene…

Kathryn Berg and I were back in Scottish Parliament today, sharing the results of the hEDS-START study at a round table hosted by Michael Marra MSP, and asking MSPs to commit to the development of a care pathway for hEDS/HSD patients in Scotland. #heds #hsd