EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile
EHC_Haemophilia

@ehc_haemophilia

The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.

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linkhttps://linktr.ee/ehc_haemophilia calendar_today14-04-2017 10:55:24

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After a short break in August, our monthly von Willebrand Disease (VWD) webinars are back! Don’t miss out on the next one on “Surgery” on the 19th of September, 2024 at 17:30 CEST! Speakers: Prof Flora Peyvandi and Julia Rauscher. eurobloodnet.eu/.../topic-on..… ERN EuroBloodNet

After a short break in August, our monthly von Willebrand Disease (VWD) webinars are back!

Don’t miss out on the next one on “Surgery” on the 19th of September, 2024 at 17:30 CEST!

Speakers: Prof Flora Peyvandi and Julia Rauscher. 

eurobloodnet.eu/.../topic-on..…

<a href="/ERNEuroBloodNet/">ERN EuroBloodNet</a>
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The #ThisWay Autumn Challenge starts in a few weeks! This time, no individual competition, just one community united for a common cause. The goal? To collectively cover 2,000 km in 2 weeks! 💪 Sign up here 🔗 tinyurl.com/mresecr7

The #ThisWay Autumn Challenge starts in a few weeks!

This time, no individual competition, just one community united for a common cause.

The goal? To collectively cover 2,000 km in 2 weeks! 💪

Sign up here 🔗 tinyurl.com/mresecr7
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On #WorldPTDay we remind you of the importance of ensuring access to high-quality individualised #Physiotherapy for all patients with #BleedingDisorders. Learn more in the European #PrinciplesOfCare we co-produced with EAHAD 👉 tinyurl.com/yc5u37w3

On #WorldPTDay we remind you of the importance of ensuring access to high-quality individualised #Physiotherapy for all patients with #BleedingDisorders. 

Learn more in the European #PrinciplesOfCare we co-produced with <a href="/EAHADnews/">EAHAD</a> 👉 tinyurl.com/yc5u37w3
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Last week to apply for the EHC #VWD Committee! "Together we can make sure that every individual living with VWD is supported to live long, happy, healthy lives." - Jo Traunter, VWD Committee Co-Chair 👉 tinyurl.com/ycnfaek3 #VWDunited #beVWDaware #VWDtogethere

Last week to apply for the EHC #VWD Committee! 

"Together we can make sure that every individual living with VWD is supported to live long, happy, healthy lives." - Jo Traunter, VWD Committee Co-Chair 

👉 tinyurl.com/ycnfaek3 

#VWDunited #beVWDaware #VWDtogethere
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"Together we can make a difference in #VWD care - ensuring nobody is left behind." - Miguel .Crato, EHC President "Collaboration between clinicians and patients is crucial. We need to listen to each other." - Dr Maria Elisa Mancuso, EHC MAG Chair #EHCVWDRT2024

"Together we can make a difference in #VWD care - ensuring nobody is left behind." - <a href="/CratoMiguel/">Miguel .Crato</a>, EHC President

"Collaboration between clinicians and patients is crucial. We need to listen to each other." - Dr Maria Elisa Mancuso, EHC MAG Chair

#EHCVWDRT2024
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Dr Susie Shapiro brought our #VWD Round Table participants back to basics, diving into details about the challenges of the diagnostic journey for people with VWD. #EHCVWDRT2024 #Diagnosis #BleedingDisorders

Dr <a href="/shapiro_susie/">Susie Shapiro</a> brought our #VWD Round Table participants back to basics, diving into details about the challenges of the diagnostic journey for people with VWD. 

#EHCVWDRT2024 #Diagnosis #BleedingDisorders
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Dr Maria Elisa Mancuso explored issues such as early prophylaxis, the treatment landscape and access to treatment for patients with #VWD. #ECHVWDRT2024 #BleedingDisorders

Dr Maria Elisa Mancuso explored issues such as early prophylaxis, the treatment landscape and access to treatment for patients with #VWD.

#ECHVWDRT2024 #BleedingDisorders
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The co-chair of the EHC VWD Committee, Julia Rauscher, shared her personal experience as a woman with #VWD who has struggled throughout her life to access proper diagnosis and treatment. Thank you, Julia, for sharing your story with us today! #EHCVWDRT2024

The co-chair of the EHC VWD Committee, Julia Rauscher, shared her personal experience as a woman with #VWD who has struggled throughout her life to access proper diagnosis and treatment. 

Thank you, Julia, for sharing your story with us today!

#EHCVWDRT2024
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The EHC New Technologies Workshop 2024 draft programme is available now, don’t forget to register! 🗓️ 1-3 November 📍Helsinki, Finland More info here: tinyurl.com/yc2pdhyf #EHCNTW2024

The EHC New Technologies Workshop 2024 draft programme is available now, don’t forget to register! 

🗓️ 1-3 November
📍Helsinki, Finland

More info here: tinyurl.com/yc2pdhyf 

#EHCNTW2024
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Our Health Economics Course 2024 starts today! In the next month and a half, our attendees will dive into our interactive webinars to learn how to impact #HTA bodies' evaluation processes & explore ways to balance access to innovative treatments with budget limitations.

Our Health Economics Course 2024 starts today!

In the next month and a half, our attendees will dive into our interactive webinars to learn how to impact #HTA bodies' evaluation processes &amp; explore ways to balance access to innovative treatments with budget limitations.