#SMAawarenessMonth Day 3: As we're shining a light on respiratory health in #SMA, today's focus is 'Sleep Studies' ! Learn how sleep studies help assess abnormal breathing patterns in SMA and why they matter. #SMAawareness #RespiratoryHealth #BattleAgainstSMA

#SMAawarenessMonth Day 4: Meet Isha Mehrin,8 yr old #SMArtWarrior from Kerala! Despite delays & recurrent pneumonia, Isha's journey with #Spinraza has shown remarkable progress. Physio + Hydrotherapy led to major improvements! Her parents eagerly await her 1st independent steps!

Our 2nd Run/Ride for #SMA was a HUGE success! Thanks to all participants, volunteers, and supporters who helped raise awareness and advocate for those affected by SMA. Together, we're creating a future where SMA no longer limits a bright life! #SMAawareness #BattleAgainstSMA

#SMAawarenessMonth Day6: Helping hands for SMA warriors! High-frequency chest wall oscillation devices like InCourage & SmartVest aid in coughing, loosening lung fluids & mucus for easy expulsion. Ayrah Mehrin, 6 yrs old with SMA Type 1, benefits from vest therapy! #SMAcare

Can you imagine raising INR 16 crores / USD 2.1 million in 4 months for your unwell child? Cure SMA Foundation of India 🇮🇳 organised a Run / Ride for SMA on August 4, 2024 in Hyd to raise awareness on this health theme. Ms.Archana Suresh, Director T-SIG was a Guest of Honour too.

#SMAawarenessMonth Day 8 : #AFO makes a big impact in #SMA care! It improves mobility & balance, enhances strength & posture, & boosts independence. Anfal Abdullah, an SMA Type 2 warrior, saw significant improvement with AFO & physiotherapy! #MobilityMatters #BattleAgainstSMA

Incredible day at 2nd Run for SMA! Hundreds showed solidarity with SMA families, raising awareness for this rare genetic disorder. Together, we're making strides towards a brighter,SMA-free future. Thanks for making this event unforgettable! Archana Suresh Ramesh konanki @lokeshlingappa

#SMAawarenessMonth Day 9: Meet Harsh, a 7-yr-old #SMArtwarrior ! Standing frames are crucial in #SMAcare, preventing contractures, maintaining range of motion, promoting bone density & strength, and improving circulation. Let's prioritize standing frames in #SMA management!

#SMAawarenessMonth Day 11: Meet Debosmita Ghosh, a 13.5 yr old #SMA Type 2 warrior! Her journey with #Risdiplam is a testament to courage & resilience. From challenges to triumphs, her positivity & determination shine bright! #SMAAwareness #BattleAgainstSMA #SMArtWarrior

With so many posts on ‘women don’t come to India’ and ‘women go abroad’, here is my own story. My daughter did her three years of graduation in Delhi. We, then, lived in a super posh colony in South Delhi. College was 15 minutes walk of which 7 mins was within colony and seven

Explore the future of rare disease care with groundbreaking research and AI advancements. Join us to uncover how technology is revolutionizing treatment and understanding in SMA and Rare Diseases. #rarediseaseresearch Register at: curesmaindiasmartcon.com

Join our Wheelchair Clinic with an expert panel to receive personalized guidance and support. Optimize mobility solutions and enhance quality of life! #wheelchairaccessibility #wheelchairusers #empowerthroughmobility #wheelchairlife Register at: curesmaindiasmartcon.com

#SMAawarenessMonth Day 19: Meet Al Mira & Al Faiz in school with their peers! Inclusive education empowers children with #SMA to reach their full potential. Let's break down barriers & create a supportive community where EVERY child thrives! #InclusiveEducation #BattleAgainstSMA

#SMAawarenessMonth Day 20: Empowering #SMA affected at work: Provide accessible facilities, flexible arrangements, disability awareness & equal opportunities. Inspired by #SMArtwarriors like Dr. Archana Vijayan, conquering dreams while battling #SMA! #Inclusion #BattleAgainstSMA

Enhance your skills at our Free Physiotherapy Workshop with our expert panel—exclusively for students and professionals. Join us to learn specialized techniques for SMA care and treatment! #physiotherapy #SMA #workshop Register at: curesmaindiasmartcon.com

Discover the latest advancements in navigating disease-modifying therapies for #SMA. Empower your journey with insights into cutting-edge treatments and personalized care strategies. #SMAtreatment #SMAresearch #futureofSMA Register at: curesmaindiasmartcon.com

SMArtCon2024: A Resounding Success! 🎉 Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions & unforgettable connections made. Heartfelt thanks to esteemed guests & panelists 🙏 Let's keep the momentum going 💪 & make a difference !

A momentous occasion today in India’s R&D ecosystem !! The First meeting of the Governing Board of Anusandhan National Research Foundation (ANRF) was Chaired by the Hon’ble Prime Minister today creating a milestone in the country’s science, technology and innovation journey. It

Abhay Karandikar We hope 2 see reverse innovation in d R&D landscape dat will benefit d society especially in d healthcare sector, right frm diagnosis 2 drug discovery, treatment n beyond. DSTIndia Narendra Modi Dr Jitendra Singh Principal Scientific Adviser, Govt. of India Jonaki Sen Amitabha Bandyopadhy Director, IIT Kanpur Tata Institute for Genetics and Society, India

This is amazing! Big shoutout to Roli, and thanks so much SMA-Europe for this opportunity. A big round of applause for the talented Turkish band who brought it to life! 🎶✨ This powerful song is symbolising unity and strength in the face of adversity! #WeAreOne Cure SMA Foundation of India 🇮🇳