Early bird registrations for our #POTS conference close on the 31st January. Get your tickets here events.humanitix.com/better-togethe…

Today our #LongCOVID study drew to a close. 150 amazing people who gave up their energy and time and trusted us. 🙏🏻 to Celine Gallagher and Gemma Wilson ADARC researchers who gave so much time to help. #POTS is prevalent in #PASC !

“A mass disabling event” for which the Australian Government doesn’t appear to have a plan to cope with. Most #POTS treatments are not subsidised in Australia. Loss of income + $$$ medication = ? 😥

Early Bird registrations close tomorrow! Join us and Satish R Raj Sophie Scott Dennis H Lau Celine Gallagher and many others as we explore the latest research and science on #POTS events.humanitix.com/better-togethe…

Relevant too for #POTS and #LongCovid?? I wonder.

5 Weeks until our conference. There are only limited 'in person' tickets left available. Register below to avoid disappointment. events.humanitix.com/better-togethe…

NIH opens long COVID trials to evaluate treatments for autonomic nervous system dysfunction. The silver lining to COVID is the long overdue recognition of the autoimmune nature #POTS ’. Watch with interest. 🤔 nih.gov/news-events/ne…

Only one week left until our #POTS conference. Don’t miss out auspotsconference2024.com.au

Sophie Scott Australian POTS Foundation Sending love, thanks and support to everyone there!

Delivering our petition for #POTS research funding to the Hon Mark Butler’s Office. >3300 signatures from our fabulous #POTS community supporting our requests. ⁦⁦Marie-Claire Seeley⁩

It’s great to see the mainstream media bringing awareness to the rising prevalence of #POTS after #COVID The Washington Post washingtonpost.com/health/2024/04…

A truly inspiring story of resilience. Claire Clark details with rawness, the pain of chronic illness and loss of identity. Her response was one of determination, self agency and human spirit. We love her 💕 Australian POTS Foundation Sophie Scott #POTS podcasts.apple.com/au/podcast/cha…

Thanks ⁦Jessica Adamson⁩ for highlighting the barriers those with #POTS face in getting care in Australia. 🙏This article is behind a paywall but highlights the work of ⁦Australian POTS Foundation⁩ Celine Gallagher⁩ ⁦Dennis H Lau⁩ ⁦Marie-Claire Seeley⁩ adelaidenow.com.au/news/opinion/a…

Tickets are now open in Humanitix for our next Webinar. #POTS #MCAS #breastimplantsyndrome events.humanitix.com/australian-pot…

#POTS pts. are often told their orthostatic symptoms are d/t anxiety + hyperventilation. However Dr. Satish Raj’s Research Team show poor blood flow to the brain and out of the heart drives postural hyperventilation. This confirms blood volume and circulation should be targets in #POTS treatment. 🙌

There is a difference between FND and #LongCovid This article clearly lays out the research and clinical perspectives on these disorders. #POTS #longCOVID

Thanks to ⁦Aisha Dow⁩ for bringing attention to the long diagnostic delay experienced by women with #POTS in Australia. A time for change ⁦Chris Picton MP⁩ ⁦Mark Butler MP⁩ ⁦Australian POTS Foundation⁩ ⁦NHMRC⁩ ⁦Heart Foundation⁩ smh.com.au/national/this-…

This podcast lays bare the reality and struggles many clinicians with #POTS face while helping others navigate chronic illness. 🙏 to Caelum and all those who chose to care for our community instagram.com/p/C-3yVzsMfo1/…

I love to walk. So on October 26th I'm going to walk 30km from the Adelaide Hills to the city to raise funds for POTS research. Please consider giving to this great cause. DM me if you would like to walk with me!! gofund.me/a54afab6 Australian POTS Foundation