COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile
COVID-19 Longhauler Advocacy Project

@c19lh_advocacy

A U.S. based grassroots, patient-led, all-volunteer 501(c)(3) nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC

ID: 1325992895334256642

linkhttp://longhauler-advocacy.org calendar_today10-11-2020 02:45:28

3,3K Tweet

9,9K Followers

9,9K Following

COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

Are you interested in potentially meeting with your senators to get them to support and cosponsor this bill? Please complete the interest form here: bit.ly/lcrmasenatemtgs

COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

🚨 BREAKING COVID-19 Cases Reach Critical Levels: 1 in 37 Americans Infected (JP Weiland Statistics). The United States 🇺🇸 is grappling with a staggering surge in COVID-19 cases, with an alarming 1 in 37 people currently infected. A dire milestone has been reached in the

🚨 BREAKING 

COVID-19 Cases Reach Critical Levels: 1 in 37 Americans Infected (JP Weiland Statistics).

The United States 🇺🇸 is grappling with a staggering surge in COVID-19 cases, with an alarming 1 in 37 people currently infected.

A dire milestone has been reached in the
CURE ID (@id_cure) 's Twitter Profile Photo

Thank you to the #LongCovid community that has rallied- CURE ID now has 400 approved cases! Check out the detailed data to see what others have tried and whether it helped them or not. Submit your own treatment experience and help us get to 1,000 cases! cure.ncats.io/explore/overvi…

Thank you to the #LongCovid community that has rallied- CURE ID now has 400 approved cases! Check out the detailed data to see what others have tried and whether it helped them or not. Submit your own treatment experience and help us get to 1,000 cases! cure.ncats.io/explore/overvi…
Patient-Led Research Collaborative (@patientled) 's Twitter Profile Photo

Here's the full list of organizations endorsing The Long COVID Research Moonshot Act! If you’d like to add your organization, please email [email protected]. We are thrilled to see so many fantastic groups, including: longcovidmoonshot.com/the-bill/ #LongCovid

COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

Advocates have submitted thousands of comments to reinstate required hospital reporting of COVID, flu, and RSV outside of public health emergencies, and the rule passed! #AdvocacyatWork

Advocates have submitted thousands of comments to reinstate required hospital reporting of COVID, flu, and RSV outside of public health emergencies, and the rule passed! #AdvocacyatWork
Mike Hoerger, PhD MSCR MBA (@michael_hoerger) 's Twitter Profile Photo

Just plugged today's CDC numbers into my new forecasting model (releases Mon). My initial reaction was "Jesus Christ. That's bad. That's really really bad." If you live in the West in particular, it's currently about as bad as last winter. About 1 in 23 infectious out West.

Just plugged today's CDC numbers into my new forecasting model (releases Mon). My initial reaction was "Jesus Christ. That's bad. That's really really bad."

If you live in the West in particular, it's currently about as bad as last winter. About 1 in 23 infectious out West.
COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

Do you have experience, or know someone who does, in editing and designing #eBooks? #C19LAP is lookong to hire for our volume 2 of our #ComprehensiveGuidetoLongCOVID To apply, visit linkedin.com/jobs/view/3998…

Do you have experience, or know someone who does, in editing and designing #eBooks? #C19LAP is lookong to hire for our volume 2 of our #ComprehensiveGuidetoLongCOVID 

To apply, visit linkedin.com/jobs/view/3998…
COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

August 9th update: Estimated daily infections reach 1 million. Remarkable infection rates for a summer surge. Only BA.2->BA.5 was higher in the 2022 summer. 🔸1,000,000 new infections/day 🔸1 in every 33 people currently infected 🔸74% higher than 12 month avg. Prevalence by

August 9th update:

Estimated daily infections reach 1 million.  Remarkable infection rates for a summer surge.  Only BA.2->BA.5 was higher in the 2022 summer.

🔸1,000,000 new infections/day
🔸1 in every 33 people currently infected
🔸74% higher than 12 month avg.

Prevalence by
COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

No they are not. US cases are at 1 million per day, that’s an average of 1 in 33 people infected. Basically one child per classroom. Cases are the highest they’ve ever been during summer going right into the reopening of school where cases always sky rocket. With things like

Karyn Bishof (@k_bishof) 's Twitter Profile Photo

Bernie Sanders will be speaking at the #DNC convention on healthcare, specifically cost reduction pharma. I hope he discusses #LongCOVID, bc what a stage to do so on, & an important time to do so on. I did just send an email to office, though not optimistic! facebook.com/share/2fPQyPYp…

Senior and Disability Action (SDA) (@sdaction1) 's Twitter Profile Photo

It's not too late to register for our teach-in TOMORROW, 8/20! bit.ly/maskbanteachin. Hear insights from NY & North Carolina organizers fighting mask bans on what we can do next. Plus, learn about how to stay safe from COVID in 2024, cross-movement solidarity building, & more.

It's not too late to register for our teach-in TOMORROW, 8/20! bit.ly/maskbanteachin. Hear insights from NY & North Carolina organizers fighting mask bans on what we can do next. Plus, learn about how to stay safe from COVID in 2024, cross-movement solidarity building, & more.
Eric Feigl-Ding (@drericding) 's Twitter Profile Photo

BREAKING—Free #COVID tests (4 per address) will once again be offered by the US government, starting late September 2024, according to Biden HHS HHS ASPR. The tests will be available via Covidtests.gov when ready. #COVIDisNotOver

COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

This is a C19LAP developed map of estimated #LongCOVID cases in the U.S. built w/ the assumption 20% of those who get COVID-19, develop #LongCOVID. It’s important to note these estimates were developed based on population & that other factors should be considered.

This is a C19LAP developed map of estimated #LongCOVID cases in the U.S. built w/ the assumption 20% of those who get COVID-19, develop #LongCOVID. It’s important to note these estimates were developed based on population & that other factors should be considered.
COVID-19 Longhauler Advocacy Project (@c19lh_advocacy) 's Twitter Profile Photo

Investigators within and beyond the RECOVER Initiative can now apply (recovercovid.org/ancillary) to use RECOVER study data and biosamples for ancillary studies. RECOVER ancillary studies will allow researchers to leverage these resources to conduct independent research projects.