Irish ME/CFS Association
@irishmecfsassoc
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
ID: 3298109847
http://www.irishmecfs.org 25-05-2015 17:29:07
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š¢ New Video! Prof. Dr. Georg Schomerus (Georg Schomerus) delves into the stigma of #LongCOVID and #MECFS, exploring the effects of psychologization and the need for better support and awareness. Watch his insightful talk from #UniteToFight2024 now! š½ļø youtu.be/xx8rV2YeIj8
Bateman Horne Center Melanie Hoppers Supriya Narasimhan 2/ "Panelists and commenters also described the irreversible harm that could occur when health practitioners push ME/CFS patients to exert themselves. (contd)" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Bateman Horne Center Melanie Hoppers Supriya Narasimhan 3/ "(Contd) For Enander, a six-minute walk test, that she quit after five minutes, put her flat on her back for two months, she said, noting that more training needs to be provided for physical therapists working with ME/CFS patients." #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps
Bateman Horne Center Melanie Hoppers Supriya Narasimhan 4/ Disappointing section: "At Santa Clara Valley Healthcare, doctors also use a variety of strategies to help patients manage ME/CFS, Narasimhan said. This includes āpacing,ā which is the gradual increase of physical and mental activity to avoid post-exertional malaise. (contd)"
Bateman Horne Center Melanie Hoppers Supriya Narasimhan 5/ "(Contd) Other treatment strategies include pain and sleep management, cognitive behavioral therapy, nutritional support and techniques to improve blood circulation." Though some professionals call this pacing, patients will tend to call it graded exercise/activity
Tom Kindlon I'm so grateful for this honest and insightful piece on living with ME. It's a must-read for anyone who wants to understand the daily struggles and triumphs of someone with this condition.
2/ āI didnāt go about my day boxing & hitting #MyalgicEncephalomyelitis, to do so would have been wasting precious energy. Instead, I danced around her, pacing myself, doing what I could. Attempting to be clever ā the way in which a farmer tactically approaches a tumultuous bullā
Join us for special screening of āDialogues of a Neglected Illnessā with M.E. Expert Dr. William Weir Q&A pls share #MyalgicEncephalomyelitis #LongCovid Southern Trust Belfast Trust Western Trust Northern Trust South Eastern Trust Northern Ireland Assembly Committee for Health Mike Nesbitt eventbrite.co.uk/e/dialogues-ofā¦ @Eventbrite
One of the authors of this article is David Tuller, DrPH davidtuller . We have arranged for him to giveĀ a free, 6-venue talking tour (Bray/Cork/Dublin/Galway/Limerick/Sligo) around Ireland in October. For more details see irishmecfs.org/blog/oct-2024-ā¦ #LongCovid #PwLC