ME Association (@meassociation) 's Twitter Profile
ME Association

@meassociation

We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.

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linkhttps://linktr.ee/meassociation calendar_today04-12-2009 20:38:02

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Sally Doherty writes 👩‍💻 (@sally_writes) 's Twitter Profile Photo

Thanks so much to the ME Association for featuring this! Please read the blog below if you'd like to find out more about how and why I wrote Max and Monty: The Raven Thief with a protagonist who has #MECFS 👨‍🦽🐕🍦💰🦅 Shares appreciated

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The #MEAssociation charity #ChristmasCards 2024 are now available! With two designs to choose from: Village Snow Scene or Red Robin. Please see our website shop - £4.50 per pack & UK Delivery Only - to order your choice of charity cards. meassociation.org.uk/cc24 #pwME #MECFS

The #MEAssociation charity #ChristmasCards 2024 are now available!

With two designs to choose from: Village Snow Scene or Red Robin. 

Please see our website shop - £4.50 per pack & UK Delivery Only - to order your choice of charity cards.

meassociation.org.uk/cc24

#pwME #MECFS
ME Association (@meassociation) 's Twitter Profile Photo

.SciTechDaily Long Covid Still a Mystery: Routine Labs Show No Reliable Biomarkers "A new study found that most routine laboratory tests are not reliable for diagnosing #LongCovid......" scitechdaily.com/long-covid-sti… #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #PostCovid

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"They found participants with prior SARS-CoV-2 infection showed modest increases in HbA1c (a marker of long-term blood sugar levels) and urinary albumin-to-creatinine ratio (uACR), along with small decreases in platelet counts. “While these differences are statistically

ME Association (@meassociation) 's Twitter Profile Photo

#Posters for #MECFS & #LongCovid Awareness - £5 A selection of excellent posters for raising awareness - order today to receive the 5 posters in the post! Or download the PDF copies via the link below: meassociation.org.uk/wc4g #pwME #MyalgicE #MyalgicEncephalomyelitis #pwLC

#Posters for #MECFS & #LongCovid Awareness - £5

A selection of excellent posters for raising awareness - order today to receive the 5 posters in the post! Or download the PDF copies via the link below:

meassociation.org.uk/wc4g

#pwME #MyalgicE #MyalgicEncephalomyelitis #pwLC
ME Association (@meassociation) 's Twitter Profile Photo

The Lancet: SARS-CoV-2 Antivirals and Long Covid "Early promising evidence of effectiveness came from observational analyses that showed that among non-hospitalised individuals (with mild to moderate #COVID19) who have at least one risk factor for the development of severe

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Parliamentary Question To ask the Secretary of State for Health and Social Care, what steps he is taking to support biomedical research into (a) long covid and (b) myalgic encephalomyelitis. See the answer here: questions-statements.parliament.uk/written-questi… #pwME #MECFS #MyalgicEncephalomyelitis

Parliamentary Question

To ask the Secretary of State for Health and Social Care, what steps he is taking to support biomedical research into (a) long covid and (b) myalgic encephalomyelitis.

See the answer here:

questions-statements.parliament.uk/written-questi…

#pwME #MECFS #MyalgicEncephalomyelitis
ME Association (@meassociation) 's Twitter Profile Photo

Research: The Index of ME Symptoms (TIMES) for ME/CFS We have completed the initial analysis for the TIMES, and made revisions in the light of that analysis and your feedback. Therefore, we would now like to double-check that the revised version provides the robust data that we

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Wizard wheeze to beat school holiday summer boredom - family cycle ride from Wales to Italy | ME Association blog | 13 September 2024: meassociation.org.uk/2024/09/summer… #mecfs #PoTs #MyalgicEncephalomyelitis

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Updated Booklet: Vitamin B12 & ME/CFS This comprehensive booklet covers everything you need to know about B12 and ME/CFS.... meassociation.org.uk/ibyw #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #PostCovid #B12 #B12Deficiency

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#Research Preprint: How Long is #LongCovid? Evaluation of Long-Term Health Status in Individuals Discharged from a Specialist Community Long COVID Service (Sivan et al 2024) preprints.org/manuscript/202… Please also see the ME Association website blog - Professor MANOJ SIVAN to

#Research Preprint: How Long is #LongCovid? Evaluation of Long-Term Health Status in Individuals Discharged from a Specialist Community Long COVID Service (Sivan et al 2024)

preprints.org/manuscript/202…

Please also see the ME Association website blog - Professor <a href="/sivanmanoj/">MANOJ SIVAN</a> to
ME Association (@meassociation) 's Twitter Profile Photo

Benefits & Work: PIP health conditions - Claim PIP for ME and CFS "In 2024, there were 28,121 PIP claimants with CFS listed as their main disabling condition by the DWP. (ME is not used in the DWP's classification). This makes it 25th most common condition to get an award of

Benefits &amp; Work: PIP health conditions - Claim PIP for ME and CFS

"In 2024, there were 28,121 PIP claimants with CFS listed as their main disabling condition by the DWP. (ME is not used in the DWP's classification). This makes it 25th most common condition to get an award of
ME Association (@meassociation) 's Twitter Profile Photo

. Nation.Cymru Long Covid treatment guidelines are three years out of date says Doctor "Doctors, charities, and victims of Long Covid are calling for “outdated” NHS guidelines on #LongCovid to be updated." nation.cymru/news/long-covi… #MECFS #MyalgicEncephalomyelitis #LongCovid

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RE: Nation CYMRU: Long Covid treatment guidelines are three years out of date says Doctor Dr Charles Shepherd, MEA Hon. Medical Adviser says: Unlike the NICE guideline on ME/CFS the NICE guideline on Long Covid was put together very quickly at the start of the pandemic during

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News Medical: Cardiovascular risks of COVID-19 antivirals "Emerging evidence reveals that COVID-19 antiviral therapies may pose severe cardiovascular risks, urging caution in treating vulnerable patients." Read Dr Shepherd's comment via the website blog: