Such a brilliant meeting. Thanks to the organisers and speakers. So much fantastic PCD clinical work and research in UK, supported by passionate patient advocacy. Together we can make a difference despite the limitations of NHS resources. AND the PCD community is so friendly.....

We want the opinions of people with PCD and their families on research priorities for primary ciliary dyskinesia! Tell us what YOU think research in #PCD should focus next! For info & participation link available several languages go to beat-pcd.squarespace.com/patients.

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Ya queda muy poquito para el encuentro anual internacional de investigación en Discinesia Ciliar Primaria. Liderado, como siempre, por el consorcio interdisciplinar de expertos/as en DCP :BEAT-PCD (ERS CRC) Nuestr@s investigador@s y clinic@s pensando junt@s para nosotros 😊 👇🏽Info

Impressive late breaking Sequoia trial results with #Aficamten in obstructive #HCM! Patients improvement by 10 points in quality of life score #ESCCongress2024

DCPes apoyando a nuestros clínic@s e investigador@s en DCP!!! 💪🏽💪🏽

#BeatPCD2024 🚀 ➡️ There's still time to register! Join us virtually or in person and be part of the future of research. 🌐 beat-pcd.squarespace.com/events/2024/9/… Organised by BEAT-PCD (ERS CRC) ERN-LUNG

Nearly ready for PCD meeting tomorrow Lena Group Respiratory Hub 🫁 ERN-LUNG #beatpcd2024

S Böker from « Leben mit PCD », the German advocacy group is presenting the patient perspective. More info bout this group on their website pcd-ks.info

Our own Leonie Schreck presents data from the #livingwithPCD study on incidence and predictors of pulmonary exacerbations among people with PCD #PCDVienna24 PCD research group at ISPM Bern Claudia Kuehni PCD Support UK PCD Foundation DCPES. Discinesia Ciliar Primaria / Kartagener PCD Australia

We are starting the industry sponsored session on genetics and mRNA trials. First speaker is Heymut Omran on a update of PCD genetics #beatpcd2024

A wife range of difficult cases presented in the current session coordinated by our BEAT-PCD (ERS CRC) diagnostic work package leads Dr Claire Jackson 🔬 Mathieu Bottier, PhD and P.Kouis. #beatpcd2024 #PCDVienna24

Back from lunch with our session on consensus guidelines: management of PCD chaired by Amelia Shoemark and nd Myrona Goutaki. First speaker, E Dehlink, is presenting the current treatment approaches for PCD #beatpcd2024

We are starting our inflammation in PCD session with our own Amelia Shoemark talking about neutrophilic inflammation #beatpcd2024

Neutrophilic inflammation in PCD by Amelia Shoemark #BeatPCD2024

PCD Annual Research Meeting 2024 #BEATPCD2024

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Come to PS-20 for Leonie Schreck results on exacerbations in #PCD #ERSCongress Claudia Kuehni Myrona Goutaki