Listen to Episode 34: Hospital Lyon – Philippe Chevalier (Duration: 8:29): guardheart.ern-net.eu/podcast/34-hos… #podcast #ernguardheart #EU4Health #europe #interviews #hospital #lyonfrance

Please, find attached the flyer for the next ERN Webinar, subscribe via the link and add it to your agenda. Register now to receive the link: lnkd.in/e74Z_x6q #webinar #HCM #RareCardiacDiseases #Therapy #ErasmusMc #puertadehierromajadahonda #hopitalpitiesalpetriere

Listen to Episode 35: Hospital Zagreb – Davor Milicic & Ivo Planinc (Duration:15:11) guardheart.ern-net.eu/podcast/35-hos… #podcast #ernguardheart #EU4Health #europe #interviews #hospital #hospitalzagreb

Listen to Episode 36: Hospital Fondazione Policlinico Universitario Agostino Gemelli Rome – Massimo Massetti & Maria Grandinetti (Duration:17:41) #podcast #ernguardheart #EU4Health #europe #interviews #hospital #hospitalrome

Ruth’s daughter, Judith, died suddenly in 2011 at 14 years old from sudden cardiac death as a result of undiagnosed cardiomyopathy. #Cardiomyopathy is a predominant cause of sudden cardiac death in people under 35. Watch Ruth’s video⬇️ youtu.be/2bQko577LKs #ThinkCardiomyopathy

Watch the powerfull story of Ruth, chair and epag of our patient network board.....

Each week one of our member-centres is in the spotlight with an interview of the main representative and one of her/his junior colleagues. Episode 37: Hospital Münster – Eric Schulze Bahr & Gerhard Diller lnkd.in/etFAPX-a

Hereby our latest newsletter: Cardiomyopathy Awareness Save The Date: board meeting Joint action on Integration of ERNs into National Healthcare systems JARDIN Who are our ePAG’s with Katja Laine CPMS 2.0 Desktop version Latest publications #europeannetworks #EU4Health

Listen to Episode 38: Hospital Madrid – Maria Espinosa & Ana Fernández Avila (Duration:13.45) guardheart.ern-net.eu/podcast/38-hos… #podcast #ernguardheart #EU4Health #europe #interview #hospital #Madrid

Hereby you can watch the recording 16: Cardiac amyloidosis: from diagnosis to management youtu.be/w_eKZh-wkqg?si… #webinar #EU4Health #europe #guardheart #ernguardheart #CardiacAmyloidosis #diagnosis #Management

Listen to episode 2, Inês Pinto Gonçalves (Associação Coragem) and Giovanna Campioni (AICCA) guardheart.ern-net.eu/.../epag-podca… #podcast #EU4Health #ernguardheart #rarecardiacdisease #achd

Hereby you can watch the recording 17 Pediatric ARVC: diagnosis, family screening, phenotype and outcome youtu.be/-F7w2hc6bNA?si… #Webinar #EU4Health #europe #guardheart #ernguardheart #ARVC #pediatric #screening #phenotyping #outcomes

Listen to episode 3, Lorraine McGlinchey (Irish Heart Foundation) and Sophie Pierre (AMRYC - Association des Maladies Héréditaires du Rythme Cardiaque) lnkd.in/e6Qwry6A #podcast #EU4Health #ernguardheart #rarecardiacdisease

Hereby you can watch the recording 18: Arrhythmias and ablations in very small patients youtu.be/90jtuZizhvA?si… #Webiner #EU4Health #europe #guardheart #ernguardheart #ablations #Pediatrics #arrhythmias

Hereby you can watch the recording 19; Innovative therapy in HCM youtu.be/PvkxWBx2CJw?si… #webinar #EU4Health #EuropeanUnion #guardheart #ernguardheart #HCM #cardiomyopathy #hypertrophiccardiomyopathy

Listen to episode 6: Ester Costafreda (SAMS) and Carmen Balan (Romania Asociației CardioGen) guardheart.ern-net.eu/.../epag-podca… #podcast #EU4Health #ernguardheart #rarecardiacdisease #patientexperience #patientrepresentative

Listen to episode 7: Sophie Muir (Timothy Syndrome Alliance) and Gaelle Marguin (Petit Cœur de Beurre) guardheart.ern-net.eu/.../epag-podca… #podcast #EU4Health #ernguardheart #rarecardiacdisease #patientexperience

Hereby the fourth newsletter of 2024, with topics: Conect4children.org Agenda boardmeeting Who are our ePAG’s, Inês Pinto Gonçalves-Portugal LMNA PRIORITY project awarded prestigious Leducq grant Upcoming Webinar Latest Publications #guardheart #europeannetworks #EU4Health