I love the design of these Christmas cards. I'll definitely be putting in an order. #eds #healthcare #mentalhealth

A big thank you to Woodhouse Moor Parkrun for helping us raise awareness of EDS. The organiser, Anne, was excellent- she let me know that the parkrun would run when many were cancelled because of the storm. Thank you ❤️ WoodhouseMoorparkrun parkrun UK Ehlers-Danlos Support UK

Today is ⭐️#PoTSAwarenessDay⭐️ ✨PoTS on a Page - GP Guide✨ If you are a healthcare professional please download this guide which summarises information about #PoTS For those seeking a diagnosis or attending medical appointments, please take this along to increase knowledge

The Pathway to Parliament team have treatment with Anna Higo at Physiocure in Leeds. An HSD /EDS specialist who understands the complexity of the condition. A huge support to me. Thank you.❤️ Physiocure Physiotherapy Clinic Leeds | Est. 2000 The Bannatyne Group The Ehlers-Danlos Society Stuart Andrew

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THANKYOU to Bannatyne Health Clubs, who helped publicise Ehlers Danlos Syndrome and the EDS UK petition when I walked the Bannatyne Trail. Last week, an encouraging meeting at Westminster and a trip to no.10. ❤️ The Bannatyne Group Cherylee Houston The Ehlers-Danlos Society

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Another summer spent raising awareness of Ehlers-Danlos Syndrome at parkrun. They have been hugely supportive. ❤️ Cherylee Houston parkrun UK #health #chronicillness #ChronicPain The Ehlers-Danlos Society

A lifetime battling with chronic pain and injury. Spent £1,000's on countless physios, chiropractors, osteopaths, and podiatrists. Until recently, not one mentioned EDS. More awareness needed. #chronicillness EDS awareness page #Health #mentalhealth

Frustrated with the lack of support for Ehlers-Danlos Syndrome, I've written a song 🎵 which will be launched next month. Also a fundraiser for Ehlers-Danlos Support UK. Watch this space! 😀 #health #chronicillness #ehlersdanlos #ChronicPain Cherylee Houston

Ehlers-Danlos Syndrome. Totally neglected. 😥 🦓 #ChronicPain #health #HealthAndWellness #fyppppppppppppppppppppppp

My final Ehlers-Danlos awareness event at Parkrun for this year. Parkrun has been so accommodating in helping raise awareness of the condition. 🦓🦓🦓 😀 #parkrun #eds #ehlersdanlos #ChronicPain #Health #chronicillness #mentalhealth

Do you have #EDS, #endo, #fibro, #IBS, #LongCovid, #lupus, #MECFS, #POTS, or #vulvodynia? I’m looking for patient feedback on a manuscript I’m working on on the psychological harm of #medicalgaslighting. DM me if interested!

Trying to raise awareness of Ehlers-Danlos Syndrome and the lack of medical support. This basic video was made to try and get an opening on the Today programme. Didn't succeed, but highlights a lot of the issues. #health BBC Health News #ChronicPain BBC Yorkshire

Sat outside Parliament being refused to deliver refused to deliver John Prong’s book about benefit deaths and have a meeting about the proposals about future cuts #TheDepartment #NoMoreBenefitDeaths

It's bad enough trying to self manage the symptoms of Ehlers-Danlos Syndrome. It's made worse by a medical system that leaves thousands of people with EDS devoid of medical support. #ChronicIllness #ChronicPain BBC Health News BBC Yorkshire #Health #hypermobilty

Faded, but damning. A&E gave me this when I went for a suspected cranial leak and EDS. They diagnosed me with FND down the telephone and sent me away with this sheet. Words fail me...#hypermobility #fnd BBC Health News Oh TWIST! #EDS #chronicpain #chronicillness

Most doctors, sadly, do not understand MCAS or keep an open mind to how the immune system is interacting with the connective tissue and or pain signaling. They’re all connected! 🧬❤️‍🩹 I talk about this a lot on my #BendyBodiesPodcast. bendybodiespodcast.com

eventbrite.com/e/ehlers-danlo… Announcing the most exciting opportunity for GPs this year! [Drumroll] Ehlers-Danlos Support UK are holding an afternoon event for FREE (thanks to a generous donor). I'm chairing alongside an amazing faculty. Workshop-based practical learning by GPs for GPs!

youtu.be/uJl1hyfFzMA?si… Frustrated by the lack of support for Ehlers-Danlos Syndrome, I've written this song. If you like the song, please share. If you don't like the song, please share! 🦓❤️BBC Health News BBC Yorkshire The Ehlers-Danlos Society #fyp #Health Yorkshire Evening Post