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Hemophilia News Today

@hemophilia_news

We are dedicated to sharing the latest news, research, and Hemophilia patient perspectives.

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linkhttps://hemophilianewstoday.com/ calendar_today16-06-2021 16:55:19

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Clotting factors normally work together to help form blood clots to prevent excessive bleeding. In hemophilia, this process is impaired. See how: bit.ly/3XbEuek #HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia

Clotting factors normally work together to help form blood clots to prevent excessive bleeding. In hemophilia, this process is impaired. See how: bit.ly/3XbEuek 

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia
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Being prepared has always been important to columnist Cazandra Campos-MacDonald, but for a hemophilia parent, the motto takes on new meaning. bit.ly/4d4u3Ps #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Being prepared has always been important to columnist Cazandra Campos-MacDonald, but for a hemophilia parent, the motto takes on new meaning. bit.ly/4d4u3Ps #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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As a father, pastor, caregiver, and more, columnist Joe MacDonald works to find a balance while juggling his various responsibilities. bit.ly/3Xo5w2j #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

As a father, pastor, caregiver, and more, columnist Joe MacDonald works to find a balance while juggling his various responsibilities. bit.ly/3Xo5w2j #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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How your physicians interact with you matters. What communication style do you respond best to in healthcare settings? #HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia

How your physicians interact with you matters. What communication style do you respond best to in healthcare settings?

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia
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Tomorrow, at the Bleeding Disorders Conference, Joe MacDonald and his wife plan to share the “scariest, most intimate parts” of life with hemophilia — and he's hoping not to cry. bit.ly/3ASQA4v #HemophiliaLife #HemophiliaCommunity #LivingWithHemophilia

Tomorrow, at the Bleeding Disorders Conference, Joe MacDonald and his wife plan to share the “scariest, most intimate parts” of life with hemophilia — and he's hoping not to cry. bit.ly/3ASQA4v 

 #HemophiliaLife #HemophiliaCommunity #LivingWithHemophilia
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Here is this week's most read article featured on our #HemophiliaNewsToday website! Are you caught up? bit.ly/47lUgrR #HemophiliaA #HemophiliaTreatment #BleedingDisorders

Here is this week's most read article featured on our #HemophiliaNewsToday website! Are you caught up? bit.ly/47lUgrR 

#HemophiliaA #HemophiliaTreatment #BleedingDisorders
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Nearly two-thirds of men with moderate or severe hemophilia A have joint problems that cause pain and reduce their quality of life. bit.ly/3ziIIsy #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Nearly two-thirds of men with moderate or severe hemophilia A have joint problems that cause pain and reduce their quality of life. bit.ly/3ziIIsy #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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In case you missed it, we break down the three important components hemophilia B gene therapies have that help the body produce FIX clotting factor. bit.ly/3MzMoJE #Hemophilia #HemophiliaB #HemophiliaTreatment #GeneTherapy

In case you missed it, we break down the three important components hemophilia B gene therapies have that help the body produce FIX clotting factor. bit.ly/3MzMoJE 

#Hemophilia #HemophiliaB #HemophiliaTreatment #GeneTherapy
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Columnist Jennifer Lynne talks with Ashley Zebley, a carrier of hemophilia, about the battle to get proper care for her bleeding symptoms. bit.ly/4dSzjah #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Columnist Jennifer Lynne talks with Ashley Zebley, a carrier of hemophilia, about the battle to get proper care for her bleeding symptoms. bit.ly/4dSzjah #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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Catch up on the #HemophiliaNewsToday Column of the Week here: bit.ly/3XbF5MU #Hemophilia #HemophiliaAwareness #HemophiliaCommunity #LivingWithHemophilia

Catch up on the #HemophiliaNewsToday Column of the Week here: bit.ly/3XbF5MU 

#Hemophilia #HemophiliaAwareness #HemophiliaCommunity #LivingWithHemophilia
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Though hemophilia patients were once advised not to exercise, preventive treatments have changed the game. We now know that physical activity offers an abundance of benefits. Explore them: bit.ly/3XbF7V2 #HemophiliaLife #HemophiliaCommunity #LivingWithHemophilia

Though hemophilia patients were once advised not to exercise, preventive treatments have changed the game. We now know that physical activity offers an abundance of benefits. Explore them: bit.ly/3XbF7V2

#HemophiliaLife #HemophiliaCommunity #LivingWithHemophilia
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Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/43r9r0I #Hemophilia #HemophiliaTreatment #HemophiliaCommunity #BleedingDisorders

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Explore findings from a study out of the U.K. showing the effect of chronic ankle pain on patients with moderate-to-severe hemophilia: bit.ly/3Tnj10H #HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia

Explore findings from a study out of the U.K. showing the effect of chronic ankle pain on patients with moderate-to-severe hemophilia: bit.ly/3Tnj10H 

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia
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Columnist Alliah Czarielle feels torn between work burnout and financial well-being, which is especially important with hemophilia. bit.ly/3XvjkI2 #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Columnist Alliah Czarielle feels torn between work burnout and financial well-being, which is especially important with hemophilia. bit.ly/3XvjkI2 #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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With this “preclinical milestone,” the therapy’s developer is on track to file an investigational new drug application in 2026. bit.ly/4dYraRR #Hemophilia #HemophiliaA #HemophiliaTreatment #GeneTherapy

With this “preclinical milestone,” the therapy’s developer is on track to file an investigational new drug application in 2026. bit.ly/4dYraRR 

#Hemophilia #HemophiliaA #HemophiliaTreatment #GeneTherapy
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Obizur was effective and safe in treating severe bleeding episodes in Japanese patients with acquired hemophilia A, per a study. bit.ly/3TxEGDs #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

Obizur was effective and safe in treating severe bleeding episodes in Japanese patients with acquired hemophilia A, per a study. bit.ly/3TxEGDs #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife
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Joe MacDonald admits he finds himself overwhelmed trying to manage the many roles he fills, but when he slows down, he's able to find comfort in his purpose. bit.ly/3TxIG73 #HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates

Joe MacDonald admits he finds himself overwhelmed trying to manage the many roles he fills, but when he slows down, he's able to find comfort in his purpose. bit.ly/3TxIG73 

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates
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Thanks to treatment advancements, life with hemophilia looks a little different than it did in years past. Here are a few considerations to keep in mind: bit.ly/4e3eyst #HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia

Thanks to treatment advancements, life with hemophilia looks a little different than it did in years past. Here are a few considerations to keep in mind: bit.ly/4e3eyst 

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #HemophiliaAdvocates #LivingWithHemophilia
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Researchers believe FVIII-QQ could be a promising next-generation gene therapy that provides “complete and sustained bleed control.” Read why: bit.ly/3Tp9whG #Hemophilia #HemophiliaA #HemophiliaTreatment #GeneTherapy

Researchers believe FVIII-QQ could be a promising next-generation gene therapy that provides “complete and sustained bleed control.” Read why: bit.ly/3Tp9whG 

#Hemophilia #HemophiliaA #HemophiliaTreatment #GeneTherapy
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At the recent Bleeding Disorders Conference, columnist Cazandra Campos-MacDonald had the opportunity to share her story and be an advocate. bit.ly/4gs8CuK #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife

At the recent Bleeding Disorders Conference, columnist Cazandra Campos-MacDonald had the opportunity to share her story and be an advocate. bit.ly/4gs8CuK #hemophilia #bleedingdisorders #hemophiliaawareness #vonwillebranddisease #hemophiliacommunity #hemolife