I AM ALS(@iamalsorg) 's Twitter Profileg
I AM ALS

@iamalsorg

I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.

ID:1064599477342875649

linkhttps://iamals.org/ calendar_today19-11-2018 19:21:09

5,1K Tweets

26,0K Followers

799 Following

I AM ALS(@iamalsorg) 's Twitter Profile Photo

We are exactly ONE MONTH out from the ALS Community Summit! Join us in Washington DC May 29th - June 1st for this first-of-its-kind event. Find everything you need to know on our landing page: iamals.org/2024-i-am-als-…

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The Write Stuff's first of two Eyegaze panels is TONIGHT at 6:30pm ET! It's not too late to register, and you won't want to miss it: iamals.org/action/eyegaze…

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I AM ALS's Clinical Trials Team is inviting you to their first Clinical Trials 101 webinar! This will kick off a series of webinars covering various clinical trial topics, but this first one just covers the basics. Sign up to join on May 9th at 6pm ET. iamals.org/action/clinica…

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MISSOURI: the Legislative Affairs Team needs you! Every day they approach legislators about important issues. But their approach will be way more effective with Missouri legislators if they have someone from Missouri to back them up. Sign up: iamals.org/action/help-th…

MISSOURI: the Legislative Affairs Team needs you! Every day they approach legislators about important issues. But their approach will be way more effective with Missouri legislators if they have someone from Missouri to back them up. Sign up: iamals.org/action/help-th…
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Reminder: I AM ALS and Live Like Lou are presenting an informative virtual webinar about Lou Gehrig on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…

Reminder: I AM ALS and @LiveLikeLou4 are presenting an informative virtual webinar about Lou Gehrig on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
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All 32 MLB teams are participating in celebrations of the fourth annual Lou Gehrig Day! Find the event closest to you: iamals.org/lou-gehrig-day…

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We're counting down the days until May 1st, when we get to kick off ALS Awareness Month with this awesome event! It's not too late to sign up: iamals.org/action/the-luc…

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April social hour is next week! Gather with your fellow advocates on April 30th for an hour of low-key social time. Don't forget to sign up if you haven't already in 2024. iamals.org/action/april-s…

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Maycee Wilkie cared for her father before he passed from ALS, and she's launching an awareness campaign called On Your Mark that focuses on self care and gratitude. Learn more from Maycee at the upcoming webinar on May 3rd! iamals.org/action/on-your…

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Sign up to receive email notifications from I AM ALS to ensure you never miss breaking news from us! iamals.org/action/join-th…

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It's here, it's here!! We just launched our Lou Gehrig Day 2024 landing page with everything you need to know about the festivities on June 2nd and beyond. Check it out and find an event near you: iamals.org/lou-gehrig-day…

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Emily Cerbone(@Emmazi) 's Twitter Profile Photo

Interested in learning about technology or have questions?

Join the first of our two-part series on on April 29 and hear from panel experts comprised of current eyegaze users.

Attendance is free but registration is required. See you there!

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I’m Dying To Tell You Podcast with Lorri Carey(@LorrisPodcast) 's Twitter Profile Photo

In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com Her ALS Story I AM ALS

In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com @HerALSStory @iamalsorg #als
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When a loved one is first diagnosed with ALS, there is so much to think about, it can be overwhelming. Check out this resource that will guide you through the initial steps of being and becoming a caregiver to someone living with ALS. iamals.org/get-help/careg…

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The Youth Lou Gehrig Day Team needs your help to connect with Little League and youth baseball teams across the US this summer! Sign up to join the team and learn how to get your local youth teams involved: iamals.org/action/youth-l…

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Emily Cerbone(@Emmazi) 's Twitter Profile Photo

Looking to be a part of a team that advocates and addresses concerns specific to people of color who are impacted by ALS?

Learn more about the Many Shades of ALS.

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Associazione conSLAncio Onlus(@ConslancioOnlus) 's Twitter Profile Photo

REMINDER: The deadline to add a flag to this year's display is May 2nd. If you haven't yet added a flag to honor yourself or a loved one, please do so soon! Note: please submit again if you've submitted in past years.

➡️tinyurl.com/sxamy3su

I AM ALS

REMINDER: The deadline to add a flag to this year's display is May 2nd. If you haven't yet added a flag to honor yourself or a loved one, please do so soon! Note: please submit again if you've submitted in past years. ➡️tinyurl.com/sxamy3su #ALSMNDWithoutBorders @iamalsorg
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Don't forget - the Write Stuff's first Eyegaze panel is next week! This panel, on Aprril 29th at 6:30pm ET, will feature advocates who have done some incredible things with Eyegaze. We hope to see you there! iamals.org/action/eyegaze…

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The Many Shades of ALS Team is working to address disparities for people of color within the healthcare system, and especially within ALS. If you're interested in addressing those as well, join the team! iamals.org/action/many-sh…

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