Nine-year-old Jax Ramirez is the youngest patient undergoing gene therapy for IPEX syndrome, a very rare PI, in clinical trials at Stanford University. “We’re just taking it one day at a time,” said his mother Missy Ramirez. bit.ly/3Wv2pGD

Laura Zamora is diagnosed with hyper IgE syndrome and despite chronic severe health problems, tries to remain positive each day. “I’ve learned it’s about balance and pushing yourself when you can, and if you absolutely can't, respect it," she said. bit.ly/3y1EPaL

Plasma donors, you're our heroes! 🌟 Your generosity helps fuel hope and health for those living with #PrimaryImmunodeficiency. Donate today to help make a life-changing difference, one donation at a time. 💖 #Immunology #DonatePlasma #IVIG #SCIG #DonateLife Jeffrey Modell Foundation (JMF)

You all often ask us how we can make sure all clinicians recognize and understand how to treat primary immunodeficiency. Here's what we're doing to help! 🩺 Click bit.ly/3yctRj3 learn more. #MedTwitter

Dermatological care is important for those with primary immunodeficiency (PI), according to Dr. Edward Cowen of the National Institutes of Health (NIH) Dermatology Consultation Service who spoke at the recent 2024 PI Conference in Chicago bit.ly/4c8gSwD

💼 Working when diagnosed with primary immunodeficiency (PI) can be complex and involves more than just job satisfaction and making money! It also includes finding a job that accommodates your condition and provides good health insurance benefits. bit.ly/4frmRQ0

📚 ✏️ We created a back-to-school guide for primary immunodeficiency (PI) families because we know how stressful this time can be. Visit bit.ly/46dBK44 to download your copy, free! #livingwithpi #immunocompromised #primaryimmunodeficiency

Back to school with #PrimaryImmunodeficiency can be challenging, but we're here to help! Let’s ensure a safe and supportive school year for all children ✨🚌📚 #BackToSchool

People who are #immunocompromised should always have the choice to mask. Here's how a mask ban could impact someone with a weakened immune system.

San Francisco #WalkForPI is Saturday! Here is a throwback to our amazing volunteers at last year's walk at the San Francisco Zoo. We greatly appreciate our dedicated volunteers, and if you are interested in donating your time to the #PICommunity, contact [email protected].

It's #NationalNonprofitDay! The Immune Deficiency Foundation is proud to offer resources, education, and support for those with primary immunodeficiency, while partnering with clinicians and scientists to conduct research and promote public policy programs.

🗣️ Your voice matters! Customize each alert with your name and contact information and hit send. It’s that easy. The alert goes directly to your designated policymaker and you instantly join the process of creating change! Sign up here bit.ly/46pukuQ

⚕️🩹Whether you've been diagnosed for years or are just beginning your #PrimaryImmunodeficiency journey, we're here to support you! Here are a few of the ways you can connect with others and learn more about #LifeWithPI. Visit bit.ly/4c5eaI7 to learn more.

We are excited to announce our 2024 research grant recipients! Congratulations to Drs. Emily Harris, David Nguyen, Alexandra Martinson, and Lauren Meyer. Check out all the interesting ways they're working to improve #primaryimmunodeficiency diagnosis: bit.ly/473FHZN.

We're excited to attend the American Osteopathic Association annual conference on September 19-22 to discuss primary immunodeficiency (PI) diagnosis, research, and treatment! Stop by to learn more and say hi!

As a reminder, our office is closed today Monday, September 2 for Labor Day. We will be back in office tomorrow, September 3.

Siblings Ava, Olivia, and Landon Langenhop received gene therapy to treat leukocyte adhesion deficiency 1 (LAD-1) four years ago. Today, the children are active and healthy, with no infections or illness. bit.ly/479HYmf

Have you ever wondered why people with primary immunodeficiency often refer to themselves as zebras? Here's why! ⤵️ 🦓 #raredisease #primaryimmunodeficiency #immunocompromised

Frank Meuers, 85, celebrated his 500th dose of intravenous immunoglobulin (IVIG) replacement therapy in July. Diagnosed with common variable immunodeficiency (CVID), Meuers said the treatment lessened infections and improved his quality of life. bit.ly/47aJ014

We're so proud to be selected for our first film festival. "Compromised: Life Without Immunity" will be a part of this year's Social Impact Film Festival! Learn more here socialimpactfilmfestival.org/films #filmfestival #healthequity #immunocompromised