“Our job is to stand in the face of suffering and not run away.” Rick Bauer Grateful to be in a field that works to discern how to intentionally and carefully stay & struggle in messy now(s) with children & families living at the fragile edges of humanity. #maruzzacongress2022

“If we really believe paediatric palliative care is every child’s right, a human right, then we can’t just do it where it’s comfortable.” Joan Mary Marston on Palliative Care in Humanitarian Aid Situations support of those providing palliative care in Ukraine.Honoured to know this powerhouse woman!#maruzzacongress2022

Final day of #maruzzacongress2022 and grateful to end with the wise words of Christina Puchalski and Parker J. Palmer on accompanying and companioning children and families at the end of life and into the wilderness of grief.

Admiration to these amazing #PPC experts from all the regions working together for a global access and improvement of the field #globalpalliativecare #maruzzacongress2022 Maruzza Foundation Justin Baker Poh Heng Chong Joan Mary Marston Dr Emmanuel B.K Luyirika (personal account &views)

“Ped cancer is exquisitely cruel for how it forces suffering as the only path to life”…phew did I feel that line in my bones after a particularly tough few days for the courageous and weary children and families of Subira ward. #ChildhoodCancer

Cis people: I need you to understand (and help others understand) that “the trans debate” is NOT relevant “to only a small number of people” but to everyone. Thread below for why: (This is focused on cis women, but cis dudes I need you to listen too. You are also in danger.)

Many have rightfully pointed out that poor and working class women of color and trans people who can become pregnant will be the most impacted by the criminalization of abortion.

I have always wanted for my research to create something beautiful, and now, placing trust in each other, 9 families of children with shortened & important lives & I have committed to doing so together. Learn what we've been up to and accompany us. calliedh.com/2022/09/11/wil…

Paediatric palliative care is not about losing, it’s about living. It is not about giving up, it’s about holding close. #WHPCDay22 #Palliative

Christian Ntizimira The Bulletin of the World Health Organization World Health Organization (WHO) HMS Palliative Care IAEA PACT Ophira Ginsburg Naheed Dosani KESHO Union for International #CancerControl NIGERIAN CANCER SOCIETY MD Anderson Cancer Center Dana-Farber Dana-Farber/Boston Children's Mass General Cancer Center @diana_mbhf The Elevate Prize Foundation #MakeGoodFamous Tällberg Foundation Gates Foundation Bill Gates And palliative care IS about equity, in cultural and ethnic diversity in structural inequity, in privilege and in power relationships. Colonisation cannot be left out as a consideration about palliative care. And it IS about communities, not just the person with the illness.

Absolutely yes.

Excited & grateful for this support to continue working alongside recently bereaved families of 9 Kenyan children with shortened & important lives to explore care-centred approaches to co-constructed narrative research on child dying through the UCL Engagement Team Beacon Bursary!

Excited to present next week on our collaborative reflexivity practice! We'll talk about how spaces for deep reflection & exploring uncomfortable truths have led to transformation in our global health doctoral research Ros Greiner Faith Miller Callie Daniels-Howell Alma Ionescu

Excellent job representing the team, Hattie Lowe and Ros Greiner ! Grateful for the ways our work together on collaborative reflexivity has made me a better researcher, storyteller, and person, & for the opportunity to share it with others today.