#ME #MyalgicE

Patients with severe ME at risk of starvation, doctors say Well done #ThereForME Team ⁦ archive.is/2024.09.16-234…

Today’s open letter is a collaboration between #ThereForME and Dr. Binita Kane, who recently spoke about gaps in care for ME on BBC Breakfast The full letter and signatures below - if you ever wanted a list of healthcare workers who are #ThereForME 👇#ME thereforme.uk/p/9ee430f4-53b…

“The more severely ill you are, the less care you get” Never so true as for those like Sophia with #verysevereME bedbound, unsupported, forgotten, reliant on family carers, too scared to go to hospital for fear of harm. They need a NHS that’s #ThereforME Wes Streeting MP Department of Health and Social Care

On #WorldPatientSafetyDay, happy to be one of the 200 healthcare professionals who signed the letter to Wes Streeting MP in collaboration with #There4ME calling for urgent action to improve care for people with severe #ME and #LongCovid.

13 years with #MEcfs No NHS treatment. No support. When will you act? Wes Streeting MP Andrew Gwynne MP Sarah Russell MP (my MP) Hospital needs to be safe for #pwME #pwlc #WorldPatientSafetyDay #ThereForME

Urgent Call for the creation of an NHS protocol for Severe M.E. Seems appropriate to share this again on #WorldPatientSafetyDay. Hospitals are currently not safe spaces for this patient group. organise.network/actions/petiti… #pwME #MEcfs

We are now trending at No.5, well done everyone. @ThereForME #WorldPatientSafetyDay #Myalgicencephalomyelitis #pwLC

As an NHS clinical scientist who also has ME, I dearly wish for a healthcare system that is #ThereForME Department of Health and Social Care Wes Streeting MP

Calling all UK based healthcare workers wanting to stand in solidarity with people (including many of your former colleagues) with #MyalgicEncephalomyelitis Please add your name to the #WorldPatientSafetyDay #ThereforME letter forms.gle/f87kuUfT4qWxbQ…

'Patient safety incidents' While I am campaigning for a new system to report harms from non-pharma harms (such as CBT/GET), I am encouraging #pwME to fill in one of these forms in the event you are harmed Watch this video for specific instructions youtu.be/FhRKG9Afcwo

#MEAwarenessHour A doctor involved in PACE trial has influenced a DWP work programme targeting ME/CFS & long Covid Hannah Sharland finds the DWP WorkWell scheme is neck deep in a controversial model for disability used to psychologise people with #MEcfs : thecanary.co/long-read/2024…

It make me so SadMad Oonagh Cousins should not have suffered this dreadful disease if there had been enough funding into ME she and the rest of us would be in a better place #MEAwarenessHour

The DWP has awarded a contract for the upcoming WorkWell programme (a back-to-work scheme) to an organisation with extensive ties to the biopsychosocial lobby... what could possibly go wrong?! My article on this for Canary #MEAwarenessHour #MEcfs

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#MEAwarenessHour #ThereForME

#MEAwarenessHour #ThereForME

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#MEAwarenessHour #SevereME

#GreatestMEdicalScandal #MEAwareness