We're catching up with social media trends and have set up an instagram page. Please find and follow us - and even better if you have photos you're happy to share on the page please pass them on! #wesmilefromourhearts

We've been having 'technical difficulties' getting the online booking form onto the website - so have popped a downloadable conference form in the meantime as several of you have asked how to book places - just go to the 2019 conference page -moebiusresearchtrust.org/moebius-syndro…

The 2019 conference booking form is live - book your places now! moebiusresearchtrust.org/events/facing-…

This year we are thrilled to welcome Dr. Bryn Webb as a conference speaker - Assistant Professor in the Departments of Genetics and Genomic Sciences and Pediatrics at the Icahn School of Medicine at Mount Sinai in New York. Don't forget to book - moebiusresearchtrust.org/events/facing-…

With less than 4 weeks till the conference - now is the time to make sure you've booked your places moebiusresearchtrust.org/moebius-syndro… . And don't forget the free creche we've arranged with Tinies - tinies.com/creches/manage…

We're all organised and looking forward to the conference @HiltonBhamMet next weekend - there is still (just) time to book - moebiusresearchtrust.org/moebius-syndro… MoebiusSyndromeFdn Medics4RareDiseases Moebius Matters Rare Disease UK Syndrome Moebius FR Moebius Africa

Thanks to everyone who joined us at the 2019 Conference. We truly are facing the future. #moebiussyndrome #moebiusawareness #wesmilefromourhearts

It's nearly time to turn the world purple for Moebius Syndrome Awareness Day! #msad #wesmilefromourhearts

We've got fundraising and awareness ideas and downloads on the website for MSAD moebiusresearchtrust.org/msad/

Sunday Post article about supporter, Tuesday Mennie, from Aberdeen sundaypost.com/fp/aberdeen-wo…

Wishing our New York friends a wonderful day tomorrow Bryn Webb x.com/brynwebbmd/sta…

Turn your day purple and celebrate the 10th Moebius Syndrome Awareness Day moebiusresearchtrust.org/msad/ #msad #wesmilewithourhearts

Watch out for Dionne on Claire Stewart at 7pm this evening. Great opportunity to raise awareness on #MSAD

It's Moebius Syndrome Awareness Day on Sunday 24th January. Please join the global Moebius Syndrome community mfoms.org, moebiussyndrome.org, ccakids.com & faceequalityinternational.org to celebrate 10 years. Whatever you do - stay safe and thank you.

Wash away 'blue Monday' - make plans to turn the world purple on Moebius Syndrome Awareness Day - only 6 days to go!

A massive thumbs up and thank you to everyone who raised funds and awareness over the weekend. You are all stars and this year over £1,000 has been raised for the charity. #msad #moebiussydromeawarenessday #wesmilefromourhearts

It's #RareDiseaseDay. Rare Disease UK is the national campaign for people with rare diseases and all who support them.

There's still a week to complete this survey - please pass it on to young people / parents who might be interested.

MoebiusResearchTrust PleaseRT-short wellbeing survey for parents of children with learning disabilities/ASD bangor.onlinesurveys.ac.uk/therealproject #winvouchers

Lots of publicity about 4-7-8 technique for sleep - anyone tried it with their non sleeping children? independent.co.uk/life-style/hea…