SMA-Europe (@smaeurope) 's Twitter Profile
SMA-Europe

@smaeurope

SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.

ID: 423345947

linkhttp://www.sma-europe.eu calendar_today28-11-2011 11:38:36

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SMA-Europe (@smaeurope) 's Twitter Profile Photo

At SMA Europe, we work tirelessly to improve the lives of people living with #SMA. We believe in our dreams and join forces to make them a reality. This 31st August, we'll share our dreams.  Stay tuned.  One Community. Shared Dreams.  #WeAreOne #OneCommunitySharedDreams

At SMA Europe, we work tirelessly to improve the lives of people living with #SMA. We believe in our dreams and join forces to make them a reality.

This 31st August, we'll share our dreams. 

Stay tuned. 

One Community. Shared Dreams. 

#WeAreOne #OneCommunitySharedDreams
SMA-Europe (@smaeurope) 's Twitter Profile Photo

At SMA Europe, we work tirelessly to improve the lives of people living with #SMA. We believe in our dreams and join forces to make them a reality. This 31st August, we'll share our dreams.  Stay tuned.  One Community. Shared Dreams.  #WeAreOne #OneCommunitySharedDreams

At SMA Europe, we work tirelessly to improve the lives of people living with #SMA. We believe in our dreams and join forces to make them a reality.

This 31st August, we'll share our dreams. 

Stay tuned. 

One Community. Shared Dreams. 

#WeAreOne #OneCommunitySharedDreams
SMA-Europe (@smaeurope) 's Twitter Profile Photo

One of our goals is to unite the #SMA Community. We take our strength from everyone's dedication to our cause. Families, scientists, organisations... have the opportunity, every day, to pull their strengths and make true the unbelievable. Stay tuned this 31st of August.

One of our goals is to unite the #SMA Community. We take our strength from everyone's dedication to our cause.

Families, scientists, organisations... have the opportunity, every day, to pull their strengths and make true the unbelievable.

Stay tuned this 31st of August.
SMA-Europe (@smaeurope) 's Twitter Profile Photo

Mencía is passionate about the #SMA Community and science. On 31 of August, we will launch the #OneCommunitySharedDreams documentary where Mencía, among others, will exchange her views and share her dreams about the future of SMA.  Mark your calendars!

Mencía is passionate about the #SMA Community and science.

On 31 of August, we will launch the #OneCommunitySharedDreams documentary where Mencía, among others, will exchange her views and share her dreams about the future of SMA. 

Mark your calendars!
SMA-Europe (@smaeurope) 's Twitter Profile Photo

Tom is passionate about the #SMA Community and science. On 31 of August, we will launch the #OneCommunitySharedDreams documentary where Tom, among others, will exchange his views and share his dreams about the future of SMA.  Mark your calendars!

Tom is passionate about the #SMA Community and science.

On 31 of August, we will launch the #OneCommunitySharedDreams documentary where Tom, among others, will exchange his views and share his dreams about the future of SMA. 

Mark your calendars!
SMA-Europe (@smaeurope) 's Twitter Profile Photo

Kasia dreams of a better world for those who live with #SMA. With 3 approved and accessible treatments for SMA, many questions and gaps in knowledge remain. In our documentary #OneCommunitySharedDreams, Kasia explores the unknown while reaching for the stars.

Kasia dreams of a better world for those who live with #SMA.

With 3 approved and accessible treatments for SMA, many questions and gaps in knowledge remain.

In our documentary #OneCommunitySharedDreams, Kasia explores the unknown while reaching for the stars.
SMA-Europe (@smaeurope) 's Twitter Profile Photo

Anna, like Kasia, dreams of a better world for those who live with #SMA. With 3 approved and accessible treatments for SMA, many questions and gaps in knowledge remain. In our documentary #OneCommunitySharedDreams, Anna explores the unknown while reaching for the stars.

Anna, like Kasia, dreams of a better world for those who live with #SMA.

With 3 approved and accessible treatments for SMA, many questions and gaps in knowledge remain.

In our documentary #OneCommunitySharedDreams, Anna explores the unknown while reaching for the stars.
SMA-Europe (@smaeurope) 's Twitter Profile Photo

How do innovative scientific ideas become real solutions? What challenges does research face nowadays? How can communication be fluid between scientists and the #SMA Community? Thomas share his insights and draw a path for the future of SMA. #OneCommunitySharedDreams

How do innovative scientific ideas become real solutions? What challenges does research face nowadays? How can communication be fluid between scientists and the #SMA Community?

Thomas share his insights and draw a path for the future of SMA.

#OneCommunitySharedDreams
SMA-Europe (@smaeurope) 's Twitter Profile Photo

How do innovative scientific ideas become real solutions? What challenges does research face nowadays? How can communication be fluid between scientists and the #SMA Community? Thomas share his insights and draw a path for the future of SMA. #OneCommunitySharedDreams

How do innovative scientific ideas become real solutions? What challenges does research face nowadays? How can communication be fluid between scientists and the #SMA Community?

Thomas share his insights and draw a path for the future of SMA.

#OneCommunitySharedDreams
SMA-Europe (@smaeurope) 's Twitter Profile Photo

Mencía's dream is that the SMA Community gains the capacity and the resources to bring together researchers, healthcare practitioners and the wider SMA community to get the most groundbreaking research for #SMA. Her dream is our dream. Support us: sma-europe.eu/donate

SMA-Europe (@smaeurope) 's Twitter Profile Photo

Kasia dreams that all people with #SMA have the best quality of life possible. Her dream is our dream. Support us: sma-europe.eu/donate

SMA-Europe (@smaeurope) 's Twitter Profile Photo

Thomas dreams that the SMA Community have enough resources to support innovative ideas to solve real and critical problems that affect all people living with #SMA.  His dream is our dream. #WeAreOne Support us: sma-europe.eu/donate

SMA-Europe (@smaeurope) 's Twitter Profile Photo

This August 2024 has been a unique journey! Thank you to all who joined us! We hope that all our dreams will come true. In the SMA Community, #WeAreOne. We strongly believe that everything is possible. Support us here: sma-europe.eu/donate #OneCommunitySharedDreams

SMA-Europe (@smaeurope) 's Twitter Profile Photo

New partnership with EUPATI!  We are thrilled to announce our collaboration with EUPATI, an organisation committed to educating and empowering patient advocates. All together. One goal.   #WeAreOne #SpinalMuscularAtrophy #RareDisease #Partnership

New partnership with EUPATI! 

We are thrilled to announce our collaboration with <a href="/eupatients/">EUPATI</a>, an organisation committed to educating and empowering patient advocates.

All together. One goal.  

#WeAreOne #SpinalMuscularAtrophy #RareDisease #Partnership
SMA-Europe (@smaeurope) 's Twitter Profile Photo

We are excited to announce our new partnerships with RARE Revolution Magazine and SMA News Today, two leading digital health media outlets dedicated to the rare disease and SMA communities.#WeAreOne #SMA #RareDisease #Partnership  #WeAreOne #SpinalMuscularAtrophy #RareDisease #Partnership

We are excited to announce our new partnerships with <a href="/RareRevolutionM/">RARE Revolution Magazine</a> and <a href="/SMANewsToday/">SMA News Today</a>, two leading digital health media outlets dedicated to the rare disease and SMA communities.#WeAreOne #SMA #RareDisease #Partnership  #WeAreOne #SpinalMuscularAtrophy #RareDisease #Partnership