Lucky to have amazing colleagues and collaborators like NCI Center for Cancer Research-NCI Center for Cancer Research’s Dr. Xiyuan Zhang who presented amazing work using scRNAseq data to inform and improve clinical care! Children's Tumor Fdn #CTF2024 #endNF

Happy 4th of July - to celebrate, we asked if there is meaningful heterogeneity within somatic NF1 mutant glioblastomas? We think so biorxiv.org/content/10.110… As always, appreciate everyone that made this work possible UCSF Neurosurgery UCSF Helen Diller Family Comprehensive Cancer Ctr Neurofibromatosis Therapeutic Acceleration Program Children's Tumor Fdn

Hello X-verse! At Sage Bionetworks we're hiring for a bunch of new roles. Do you care about health & bio data to actually translate into patient benefit? Apply here: 👇 sagebionetworks.org/careers Please RT and help me spread the word!

So honored to be part of the team caring for the incredibly brave people living with GBM. We press on to find the answers needed to stop the suffering from this cancer.

Many congratulations! Well-deserved and excited to see your important work continue

It was such an honor to bring together NF patients with representatives of the U.S. FDA to talk about the lived experiences of cNFs that are not captured in tests and scans. Read the report at ctf.org/news/summary-r…

Thank you to the amazing patients and advocates who shared their daily experiences with #NF1 and #cnf. Thank you Children's Tumor Fdn and U.S. FDA for your attention to the needs of people living with #NF1. I am grateful for this brilliant and committed community.

Today Mike Bloomberg spoke about our $600 million gift to Howard University School of Medicine, Morehouse School of Medicine, Meharry Medical College, & @CDrewU to grow their endowments and help strengthen their financial stability. bloombg.org/4fyWbwz

#NF researchers, are you ready for Neurofibromatosis Young Investigators Forum this Dec? We've partnered with CEC Oncology to help you showcase your research, connect with other Young Investigators, & catalyze your career. Submit your abstract! ➡️ ce.ceconcepts.com/NFYIFsubmit   #NF #EndNF #MedTwitter #MedEd

Congrats! Proud to support Soragni:Lab! The lack of therapies for #cNF stems from the complexity of their cell composition. Dr. Soragni & team developed a high-throughput organoid screening platform that rapidly tests 3D tumor organoids for drug efficacy. Great work! #NF1

Thrilled that our long-term partner SpringWorks has received FDA Priority Review for mirdametinib, a potential treatment for NF1 children and adults. We are dedicated to deploying time, talent and funding towards accelerating the development of new treatments for NF! #EndNF

Excellent work @klemberg. Important prognostic data and insight into impact of neurofibromas. Thank you for making this work happen. #NF1 NCI CCR Pediatric Oncology Branch Johns Hopkins Children's Center Johns Hopkins Kimmel Cancer Center

Apply today! Up to $25M available in funding for NF-related research. Exciting opportunities for scientists across all disciplines & areas of biomedical focus. Don't miss this opportunity! Letter of Intent due 9/12/2024. cdmrp.health.mil/nfrp

The EANO youngster sessions are always artfully chaired ⭐️ Jan-Michael Werner et al offering some great pearls here - looking forward to seeing this in practice at our upcoming SNO Young Investigator session in Houston

New in Small Molecule Therapeutics from the September issue—MEK Inhibition Enhances the Antitumor Effect of #Radiotherapy in #NF1-Deficient #Glioblastoma. bit.ly/3XmdHMf Maria Ioannou Dr. Schreck Abiola Christine Pratilas MD Johns Hopkins Kimmel Cancer Center Johns Hopkins Neurosurgery

I was a dr before the Affordable Care Act. And people w/ cancer did hit lifetime caps & had further treatment denied by insurers. They were dropped from plans, declared bankruptcy, & died. We are NEVER EVER going back to that. #PresidentialDebate2024 #MedTwitter

We will never forget the 2,977 precious lives stolen from us on 9/11. We will never forget their families who still bear the grief of their loss. We will never forget the heroic citizens and survivors who rushed to help their fellow Americans. We will never forget.

In recognition of #ChildhoodCancerAwarenessMonth, we asked four families, “When faced with a brain tumor diagnosis, how did you tell your child the news?” Read their stories: braintumor.org/news/how-to-ta… #CCAM

The future of NF1 research is bright! These undergraduate students did phenomenal work under the excellent guidance of FCSs. thank you all! Keep going! Your efforts and discoveries matter