These are Sammy’s words. She tragically died from #MyalgicEncephalomyeltis on August 31st 2024, aged just 25. We can help her words be seen still. So her advocacy lives on 💙 ME must be better recognised & treated. The damage done to us cannot continue to be tolerated.

Reading through this #ThereForME collection of songs, poems, images, moving images was a balm today. Shall be listening to the playlist and sending love to everyone with #MyalgicEncephalomyelitis ❤️. Thank you for sharing

We need an NHS that's #ThereForME

I am thrilled to report that my local MP was very understanding & supportive. 🌟 Luke Charters MP will join the APPG for ME to advocate for @NHS that’s #ThereForME 🌟 Thanks to Luke for standing up for #pwME & #LongCovid ME Association Action for M.E. EndMalnutritioninME

We need an NHS that's #ThereForME

Last month #ThereForME sent a letter to Wes Streeting MP signed by 2,600 #ME #LongCovid patients & carers. On Friday we received a response. We’re disappointed he did not respond to us in person or commit to a meeting. We think patients deserve better. thereforme.uk/p/campaign-upd…

Very disappointing response from Andrew Gwynne MP to the #ThereFor ME letter. No mention of research or education of HCPs it’s just about ‘managing’ the condition, presumably so we #pwME can return to work! No time to talk about it either even though patients are dying. #ME #LC

1/ In August, 2,600 #ME & #LongCovid patients and carers signed a letter from #ThereForME to Wes Streeting MP. We received a response last week, but we're disappointed he didn’t reply personally or agree to meet. Patients deserve respect and real engagement.

To Andrew Gwynne MP Please show your genuine commitment to patients with #ME & #LongCovid & arrange to meet with #ThereForME & commit to a date for the publication of the Department of Health and Social Care delivery plan asap The situation for all #pwME remains critical & we need change urgently.

I’ve waited decades Wes Streeting MP. We’re still dying unnecessarily in NHS hospitals due to a failure of appropriate care for #SevereME patients. We’re still being advised #GradedExerciseTherapy by medics we trust, causing serious injury and making many housebound. Work with us!⚖️

Karen Hargrave Wes Streeting MP Fully agree - patients do deserve better! Both those who are patients now, and all those who will require services in the future. #LongCovidKids #LongCovid #ThereForME

The letter from Andrew Gwynne MP says the Government are working to change the NHS into an organisation that not only treats illness, but prevents it. How can that be true when the Government is making no effort to reduce Covid infections? Clean air in schools would be an easy win.

🧵#ThereForMe update Essentially: 🔹No response from Wes Streeting MP 🔹No meeting 🔹No commitment The Labour Party have shown no narrative that things will significantly change under them This is not proportionate to the need Andrew Gwynne MP /1

Andrew Gwynne MP Wes Streeting MP People with Myalgic Encephalomyelitis are desperate for change. Some of the most severely affected have died waiting. Please make this an urgent priority. Please meet with #ThereforME

Why is there never time for #pwME or #LongCovid? If you really understood the gravity of the situation you would make time. Andrew Gwynne MP Wes Streeting MP #ThereForME

Congratulations to Layla Moran 🔶🕊️ who has been announced as chair of the Health & Social Care committee. She has been a powerful voice for those with #LC so let's hope a safe NHS can be there for those severely affected by #LongCovid & #ME #ThereForME

Thank you so much Jenny Wilson for bravely sharing your story & #ThereforME for highlighting this. As Carole Bruce says, Jenny probably knows more about the lived experience of people with ME & its history than anyone in the UK. Her personal account speaks volumes.

In the most recent blog for #ThereForMe Jenny Wilson shares her experiences from decades of living with and supporting people with ME. "I remember a nurse hissing in my ear: “It is better to be dead than to have what you have.” I was trapped in a nightmare." Link below